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Accelerating pediatric hodgkin lymphoma research: the hodgkin lymphoma data collaboration (NODAL)
Journal of the National Cancer Institute ( IF 10.3 ) Pub Date : 2024-01-26 , DOI: 10.1093/jnci/djae013
Kirk D Wyatt 1 , Suzi Birz 2 , Sharon M Castellino 3, 4 , Tara O Henderson 2 , John T Lucas 5 , Qinglin Pei 6 , Yiwang Zhou 7 , Samuel L Volchenboum 2 , Brian Furner 2 , Michael Watkins 2 , Kara M Kelly 8 , Jamie E Flerlage 9
Affiliation  

Data commons have proven to be an indispensable avenue for advancing pediatric cancer research by serving as unified information technology platforms which, when coupled with data standards, facilitate data sharing. The Pediatric Cancer Data Commons (PCDC), the flagship project of Data for the Common Good (D4CG), collaborates with disease-based consortia to facilitate development of clinical data standards, harmonization and pooling of clinical data from disparate sources, establishment of governance structure, and sharing of clinical data. In the interest of international collaboration, researchers developed the Hodgkin Lymphoma Data Collaboration (NODAL) and forged a relationship with the PCDC to establish a data commons for pediatric Hodgkin lymphoma. Herein, we describe the progress made in the formation of NODAL and foundational goals to advance pediatric Hodgkin lymphoma research.

中文翻译:

加速儿童霍奇金淋巴瘤研究:霍奇金淋巴瘤数据合作 (NODAL)

数据共享已被证明是推进儿科癌症研究不可或缺的途径,它作为统一的信息技术平台,与数据标准相结合,促进数据共享。小儿癌症数据共享 (PCCDC) 是数据公益 (D4CG) 的旗舰项目,与基于疾病的联盟合作,促进临床数据标准的制定、不同来源临床数据的协调和汇集、治理结构的建立,并共享临床数据。为了国际合作,研究人员开发了霍奇金淋巴瘤数据协作 (NODAL) 并与 PCCDC 建立了关系,以建立儿科霍奇金淋巴瘤的数据共享。在此,我们描述了 NODAL 形成方面取得的进展以及推进儿科霍奇金淋巴瘤研究的基本目标。
更新日期:2024-01-26
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