Abstract
Purpose
To understand the patient journey to Lumbar Spinal Fusion Surgery (LSFS) and patients’ experiences of surgery.
Methods
Qualitative study using interpretive phenomenological analysis. Adult participants following LSFS were recruited from 4 UK clinical sites using purposive sampling to ensure representation of key features (e.g. age). Semi-structured interviews informed by a piloted topic guide developed from the literature were audio-recorded and transcribed verbatim. Framework analysis for individual interviews and then across participants (deductive and inductive) identified emerging themes. Trustworthiness of data analyses was enhanced using multiple strategies (e.g. attention to negative cases).
Results
Four emerging themes from n = 31 patients’ narratives were identified: decision for surgery, coping strategies, barriers to recovery and recovery after surgery. Decision for surgery and recovery after surgery themes are distinguished by the point of surgery. However, barriers to recovery and coping strategies are key to the whole patient journey encompassing long journeys to surgery and their initial journey after surgery. The themes of coping strategies and barriers to recovery were inter-related and perceived by participants as parallel concepts. The 4 multifactorial themes interacted with each other and shaped the process of an individual patient’s recovery. Factors such as sporadic interventions prior to surgery, time-consuming wait for diagnosis and surgery and lack of information regarding recovery strongly influenced perceptions of outcome.
Conclusion
Patient driven data enables insights to inform research regarding surgery/rehabilitation through depth of understanding of the patient journey. Awareness of factors important to patients is important; ensuring that patient-driven data informs research and patient care.
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Acknowledgements
Eleanor Keeling and Sarah Rich from the Royal Orthopaedic Hospital. Jayne Edwards, Claire Wright and Lisa Burgess Collins from the Robert Jones and Agnes Hunt Orthopaedic Hospital NHS Foundation Trust, UK. Tim Noblet, Michael Dunn and Abby Newdick from St George's University Hospitals NHS Foundation Trust, UK. Julie Sterling and Marie Morley, patient involvement.
Funding
This work was supported by Chartered Society of Physiotherapy Charitable Trust Physiotherapy Research Foundation, grant number PRF-16-A21.
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AR is the chief investigator leading protocol development, approvals, analyses and dissemination. AR, JBS, MV, AC, PW, LB and NRH have led on conception, design and are overseeing data analysis, interpretation and synthesis of findings into parallel studies. NRH was the lead for patient involvement. AS oversaw the qualitative methods and data analysis. AE and MR were the principal investigators at two clinical sites. AM carried out data collection and contributed to data analysis. EB led on data analysis with AM, AR, FJ and AS. All authors have contributed to methodological decisions. All authors contributed to data interpretation, conclusions and dissemination. EB, AR, FJ and AS drafted the initial manuscript. All reviewers have read, contributed to and agreed the final manuscript. AR is the guarantor.
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Rushton, A., Elena, B., Jadhakhan, F. et al. Immediate patient perceptions following lumbar spinal fusion surgery: semi-structured multi-centre interviews exploring the patient journey and experiences of lumbar fusion surgery (FuJourn). Eur Spine J 31, 3590–3602 (2022). https://doi.org/10.1007/s00586-022-07381-x
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DOI: https://doi.org/10.1007/s00586-022-07381-x