A Journey of Doing Research “In a Good Way”: Partnership, Ceremony, and Reflections Contributing to the Care and Wellbeing of Indigenous Women Living with HIV in Canada

Authors

  • Doris Peltier Canadian Aboriginal AIDS Network, Dartmouth, Nova Scotia, Canada
  • Carrie Martin Mi’gmaq, Canadian Aboriginal AIDS Network, Dartmouth, Nova Scotia, Canada
  • Renée Masching Canadian Aboriginal AIDS Network, Dartmouth, Nova Scotia, Canada
  • Mike Standup Elder, Mohawk Nation
  • Claudette Cardinal Plains Cree, Faculty of Health Sciences, Simon Fraser University, Burnaby, British Columbia, Canada
  • Valerie Nicholson Faculty of Health Sciences, Simon Fraser University, Burnaby, British Columbia, Canada
  • Mina Kazemi Women's College Research Institute, Women’s College Hospital, Canada
  • Angela Kaida Faculty of Health Sciences, Simon Fraser University, Burnaby, British Columbia, Canada
  • Laura Warren Women’s College Research Institute, Women’s College Hospital, Toronto, Canada
  • Denise Jaworsky Northern Medical Program, University of Northern British Columbia, Prince George, British Columbia, Canada
  • Laverne Gervais Ka Ni Kanichihk, Winnipeg, Manitoba, Canada
  • Alexandra de Pokomandy Department of Family Medicine, McGill University, Montreal, Quebec, Canada
  • Sharon Bruce Max Rady College of Medicine, Rady Faculty of Health Sciences, University of Manitoba, Winnipeg, Manitoba, Canada
  • Saara Greene School of Social Work, McMaster University, Hamilton, Ontario, Canada
  • Marissa Becker Centre for Global Public Health, Department of Community Health Sciences, University of Manitoba, Winnipeg, Canada
  • Jasmine Cotnam Canadian Aboriginal AIDS Network, Dartmouth, Nova Scotia, Canada
  • Kecia Larkin Pikanii Nation and Kwa'kwa'ka'wakw Nation
  • Kerrigan Beaver Women’s College Research Institute, Women’s College Hospital, Toronto, Canada
  • Carrie Bourassa College of Medicine, University of Saskatchewan, Saskatoon, Saskatchewan, Canada
  • Mona Loutfy Women’s College Research Institute, Women’s College Hospital, Toronto, Canada

DOI:

https://doi.org/10.18584/iipj.2020.11.4.8215

Keywords:

Indigenous women, HIV, CHIWOS, data transfer, ceremony, Indigenous ethics, allyship, Truth and Reconciliation Commission of Canada, self-determination

Abstract

The relationship between the First Peoples of Canada and researchers is changing as processes of self-determination and reconciliation are increasingly implemented. We used storytelling and ceremony to describe a historic event, the Indigenous Women’s Data Transfer Ceremony, where quantitative data of 318 Indigenous women living with HIV were transferred to Indigenous academic and community leaders. Relationship building, working together with a common vision, the Ceremony, and the subsequent activities were summarized as a journey of two boats. The Truth and Reconciliation Commission of Canada's Calls to Action and Indigenous ethical principles were central to the process. The article ends with team members’ reflections and the importance of shifting power to Indigenous Peoples in regard to data collection, their stories, and the resulting policies.

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Published

2020-11-25

Issue

Vol. 11 No. 4 (2020)

Section

Research

License

Copyright (c) 2020 Doris Peltier, Carrie Martin, Renée Masching, Mike Standup, Claudette Cardinal, Valerie Nicholson, Mina Kazemi, Angela Kaida, Laura Warren, Denise Jaworsky, Laverne Gervais, Alexandra de Pokomandy, Sharon Bruce, Saara Greene, Marissa Becker, Jasmine Cotnam, Kecia Larkin, Kerrigan Beaver, Carrie Bourassa, Mona Loutfy

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