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Making National Participatory Institutions Work: Bureaucrats, Activists, and AIDS Policy in Brazil

Published online by Cambridge University Press:  14 March 2019

Jessica A. J. Rich
Jessica A. J. Rich*
Affiliation:
Jessica A. J. Rich is an assistant professor of political science at Marquette University.
*
jessica.rich@marquette.edu
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Abstract

What are the conditions under which participatory institutions increase the voice of marginalized groups in policymaking? Existing studies of local participatory institutions highlight the role of leftist politicians and a strong civil society in determining outcomes, yet they fail to explain significant variation among participatory institutions at the national level. Examining the case of Brazil’s AIDS policy sector, this article argues that to fully understand the dynamics of national participatory governance, we must consider the role of bureaucrats. As studies of state-society synergy have shown, bureaucrats may seek outside political support from civil society when other actors inside the state prevent them from advancing their policy preferences. National bureaucrats may create new participatory institutions, and even help civil society delegates coordinate their engagement in such institutions, as strategies to strengthen their policy alliances with civil society.

Keywords

Brazilbureaucracycivil societyHIV/AIDSparticipatory governancestate capacity
Type
Research Article
Information
Latin American Politics and Society , Volume 61 , Special Issue 2: State Transformation and Participatory Politics in Latin America , May 2019 , pp. 45 - 67
Copyright
© University of Miami 2019 

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References

Author Interviews

Amaral, William. 2008. President, Forum of AIDS NGOs of the State of Rio de Janeiro; Director, Rio de Janeiro branch of RNP+ (National Network of People Living with HIV/AIDS). August 6.Google Scholar
Barbosa, Eduardo. 2008. Adjunct Director, Brazil’s National AIDS Program; former director, Civil Society Unit. November 18.Google Scholar
Benzaken, Adele. 2017. Director, National Department of IST/AIDS/Hepatitis. August 2.Google Scholar
Da Costa, Antonio Ernandes Marques. 2011, Coordinator, AIDS NGO Forum of the state of Pará. Via Skype. April 29.Google Scholar
Duda, Rubens. 2010. Federal AIDS bureaucrat. March 18.Google Scholar
Givisiez, Juliana. 2017. Bureaucrat in the National Department of IST/AIDS/Hepatitis. August 2.Google Scholar
Grangeiro, Alexandre. 2008, 2009. Coordinator, national AIDS program, 2003–4; Adjunct Coordinator 2001—3. December 16, 2008; follow-up interview May 5, 2009.Google Scholar
Leão, Marcia. 2011. Activist from the State of Rio Grande do Sul. April 5.Google Scholar
Moura Filho, Jair Brandão de. 2008. Staff member, GESTOS, an AIDS NGO in the state of Pernambuco. November 22.Google Scholar
Oliveira, José Marcos de. 2008. AIDS Movement delegate to the National Health Council. November 22.Google Scholar
Pereira, Claudio. 2014. President, Grupo de Incentivo à Vida, São Paulo. May 8.Google Scholar
Ribeiro, Fábio. 2011. Member, NGO forum of the city of Salvador da Bahia, representing the organization GLICH (Grupo Liberdade Igualdade Cidadania Homosexual). Via Facebook. April 29.Google Scholar
Terto, Veriano Jr. 2017. Vice President, Brazilian Inter-Disciplinary AIDS Association. August 8.Google Scholar

References

Abers, Rebecca Neara. 2000. Inventing Local Democracy: Grassroots Politics in Brazil. Boulder: Lynne Rienner.Google Scholar
Abers, Rebecca, and Tatagiba, Luciana. 2015. Institutional Activism: Mobilizing for Women’s Health from Inside the Brazilian Bureaucracy. In Social Movement Dynamics: New Perspectives on Theory and Research from Latin America, ed. Rossi, Federico and von Bülow, Marisa. Surrey: Ashgate. Chap. 4.Google Scholar
Abers, Rebecca, and Keck, Margaret. 2013. Practical Authority: Agency and Institutional Change in Brazilian Water Politics. Oxford: Oxford University Press.CrossRefGoogle Scholar
Abers, Rebecca, and von Bülow, Marisa. 2011. Movimentos sociais na teoria e na prática: como estudar o ativismo através da fronteira entre estado e sociedade? Sociologias 13, 28: 52–84.CrossRefGoogle Scholar
Agência AIDS. 2012. ONGs/Aids divulgam protesto contra desmantelamento do controle social no governo Dilma. March 22. http://agenciaaids.com.br/noticia/ongs-aids-divul-gam-protesto-contra-desmantelamento-do-controle-social-no-governo-dilmaGoogle Scholar
Agência, Lusa. 2010. Brasil: falta de antirretrovirais gera protestos em sete estados brasileiros. April 28. https://www.lusa.ptGoogle Scholar
Amengual, Matthew. 2016. Politicized Enforcement in Argentina: Labor and Environmental Regulation. Cambridge: Cambridge University Press.CrossRefGoogle Scholar
Anonymous. n.d. CAMS Histórico. Unpublished mss.Google Scholar
Avritzer, Leonardo. 2002. Democracy and the Public Space in Latin America. Princeton: Princeton University Press.Google Scholar
Avritzer, Leonardo, and Clóvis Henrique Leite de Souza, eds. 2013. Conferências nacionais: atores, dinâmicas participativas e efetividade. Brasília: Instituto de Pesquisa Econômica Aplicada (IPEA).Google Scholar
Brandão, Igor, and Vilaça, Luiz. n.d. Ativismo burocrático na construção de Belo Monte e na inclusão socioprodutiva de catadores de materiais recicláveis. Unpublished mss.Google Scholar
Carpenter, Daniel. 2001. The Forging of Bureaucratic Autonomy: Reputations, Networks, and Policy Innovation in Executive Agencies, 1862–1928. Princeton: Princeton University Press.Google Scholar
Chávez, Daniel, and Goldfrank, Benjamin. eds. 2004. The Left in the City: Participatory Local Governments in Latin America. London: Latin American Bureau.Google Scholar
Coelho, Vera Schattan P. 2004. Brazil’s Health Councils: The Challenge of Building Participatory Political Institutions. IDS Bulletin 35, 2: 33–39.CrossRefGoogle Scholar
Conselho Nacional de Saúde. 2017. Composição da comissão intersetorial de atenção a saúde das pessoas com patologias—CIASPP. August 31. http://www.conselho.saude.gov.br/Web_comissoes/composicao/CIASPP.pdf. Accessed September 22, 2017.Google Scholar
Conselho Nacional de Saúde. n.d. Estrutura Organizational. http://www.conselho.saude.gov.br/apresentacao/estrutura_organizacional.htm. Accessed September 22, 2017.Google Scholar
Donaghy, Maureen M. 2011. Do Participatory Governance Institutions Matter? Municipal Councils and Social Housing Programs in Brazil. Comparative Politics 44, 1: 83–102.CrossRefGoogle Scholar
Encontro Nacional de ONGs (ENONG). 2007. Proposta final. Goiânia: ENONG AIDS.Google Scholar
Encontro Nacional de ONGs (ENONG). 2009. Documento norteador. Rio de Janeiro.Google Scholar
Estado de São Paulo. 2010. Falta de remédios contra aids causa protestos. April 28. https://saude.estadao.com.br/noticias/geral,falta-de-remedios-contra-aids-causa-protestos, 544091Google Scholar
Evans, Peter. 1995. Embedded Autonomy: States and Industrial Transformation. Princeton: Princeton University Press.Google Scholar
Evans, Peter. 1996. Government Action, Social Capital, and Development: Reviewing the Evidence on Synergy. World Development 24, 6: 1119–32.CrossRefGoogle Scholar
Evans, Peter, Huber, Evelyne, and Stephens, John D.. 2017. The Political Foundations of State Effectiveness. In States in the Developing World, ed. Kohli, Atul, Centeno, Miguel A., Yashar, Deborah J., and Mistree, Dinsha. Cambridge: Cambridge University Press. 380–408.CrossRefGoogle Scholar
Fox, Jonathan. 1993. The Politics of Food in Mexico: State Power and Social Mobilization. Ithaca: Cornell University Press.Google Scholar
Galvão, Jane. 2000. AIDS no Brasil: a agenda de construção de uma epidemia. 1st ed. Rio de Janeiro, : Associação Brasileira Interdisciplinar de AIDS/Editora 34.Google Scholar
Gazeta do Povo. 2010. Falta de remédio para HIV causa protestos. April 29. https://www.gazetadopovo.com.brGoogle Scholar
Heller, Patrick. 2001. Moving the State: The Politics of Democratic Decentralization in Kerala, South Africa, and Porto Alegre. Politics and Society 29, 1: 131–63.CrossRefGoogle Scholar
Hochstetler, Kathryn, and Keck, Margaret E.. 2007. Greening Brazil: Environmental Activism in State and Society. Durham: Duke University Press.CrossRefGoogle Scholar
Hoffmann, Fernando, and Bentes, F. R. N. M.. 2008. Accountability for Social and Economic Rights in Brazil. In Courting Social Justice: Judicial Enforcement of Social and Economic Rights in the Developing World, ed. Gauri, Varun and Brinks, Daniel M.. Cambridge: Cambridge University Press. 100–145.CrossRefGoogle Scholar
Houtzager, Peter P., Lavalle, Adrián Gurza, and Acharya, Arnab. 2003. Who Participates? Civil Society and the New Democratic Politics in São Paulo, Brazil. IDS Working Paper 210. Brighton: Institute of Development Studies.Google Scholar
Mayka, Lindsay. 2019. Building Participatory Institutions in Latin America: Reform Coalitions and Institutional Change. New York: Cambridge University Press.CrossRefGoogle Scholar
Mayka, Lindsay, Rich, Jessica, and Montero, Alfred P.. 2019. Introduction: The Politics of Participation in Latin America: New Actors and Institutions. Latin American Politics and Society 61, 2.Google Scholar
Page, Joshua. 2011. The Toughest Beat: Politics, Punishment, and the Prison Officers’ Union in California. New York: Oxford University Press.CrossRefGoogle Scholar
Parker, Richard. 2003. Building the Foundations for the Response to HIV/AIDS in Brazil: The Development of HIV/AIDS Policy, 1982–1996. Divulgação em Saúde para Debate 27: 143–83.Google Scholar
Parker, Richard, and Terto, Veriano Jr. 2001. Solidariedade: a ABIA, na virada do milenio. Rio de Janeiro: Associação Brasileira Interdisciplinar de AIDS.Google Scholar
Paschel, Tianna. 2016. Becoming Black Political Subjects: Movements and Ethno-Racial Rights in Colombia and Brazil. Princeton: Princeton University Press.Google Scholar
Pogrebinschi, Thamy. 2012. Participation as Representation: Democratic Policymaking in Brazil. In New Institutions for Participatory Democracy in Latin America: Voice and Consequence, ed. Cameron, Maxwell A., Hershberg, Eric, and Sharpe, Kenneth E.. New York: Palgrave Macmillan. 53–74.CrossRefGoogle Scholar
Pogrebinschi, Thamy, and Samuels, David. 2014. The Impact of Participatory Democracy: Evidence from Brazil’s National Public Policy Conferences. Comparative Politics 46, 3: 313–32.CrossRefGoogle Scholar
Rich, Jessica A. J. 2013. Grassroots Bureaucracy: Intergovernmental Relations and Popular Mobilization in Brazil’s AIDS Policy Sector. Latin American Politics and Society 55, 2: 1–25.CrossRefGoogle Scholar
Rich, Jessica A. J., and Gómez, Eduardo J.. 2012. Centralizing Decentralized Governance in Brazil. Publius: The Journal of Federalism 42, 4: 636–61.CrossRefGoogle Scholar
Schneider, Ben Ross. 2004. Business Politics and the State in Twentieth-Century Latin America. Cambridge: Cambridge University Press.CrossRefGoogle Scholar
Spink, Mary Jane Paris. 2003. A Comissão Nacional de AIDS: a presença do passado na construção do futuro. Programa Nacional de Dst/AIDS. Brasília: Ministério da Saúde.Google Scholar
Teixeira, Ana Claudia Chaves, de Souza, Clóvis Henrique Leite, and Lima, Paula Pompeu Fiuza. 2012. Arquitetura da participação no Brasil: uma leitura das representações políticas em espaços participativos nacionais. Texto para Discussão. Brasília: Instituto de Pesquisa Econômica Aplicada (IPEA).Google Scholar
Teixeira, Paulo. 1997. Políticas públicas em AIDS. In Políticas, instituicões e AIDS: enjrentando a epidemia no Brasil, ed. Parker, Richard. Rio de Janiero: ABIA.Google Scholar
Tendler, Judith. 1998. Good Government in the Tropics. Baltimore: Johns Hopkins University Press.Google Scholar
Viana, Rafael. 2017. Programa Minha Casa Minha Vida—Entidades: um olhar para a ação dos atores em torno das controvérsias. Master’s thesis, political science, University of Brasília.Google Scholar
Wampler, Brian. 2007. Participatory Budgeting in Brazil: Contestation, Cooperation, and Accountability. University Park: Pennsylvania State University Press.Google Scholar
Wampler, Brian, and Avritzer, Leonardo. 2004. Participatory Publics: Civil Society and New Institutions in Democratic Brazil. Comparative Politics 36, 3: 291–312.Google Scholar