Skip to main content

Advertisement

Log in

Diabetes burnout among emerging adults with type 1 diabetes: a mixed methods investigation

  • Published:
Journal of Behavioral Medicine Aims and scope Submit manuscript

Abstract

Feeling overwhelmed, exhausted, and frustrated by the daily demands of diabetes management has been referred to as diabetes burnout. The goal of the study was to develop a measure of diabetes burnout and to link this measure to psychological health and diabetes outcomes. Emerging adults with type 1 diabetes (n = 88, average age 27) completed an online questionnaire and an HbA1c assessment; a subset was interviewed by phone to obtain a more in-depth understanding of burnout. Exploratory factor analysis revealed three burnout domains: exhaustion, detachment, and powerlessness. Burnout was related to higher psychological distress, higher diabetes distress, and poorer diabetes outcomes. Burnout independently predicted higher HbA1c, independent of diabetes distress. Qualitative interviews revealed that participants defined burnout in terms of exhaustion and powerlessness and resolved burnout by acceptance and utilization of social resources. Prevention and intervention efforts might target resilience as a way to mitigate burnout.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Institutional subscriptions

Similar content being viewed by others

References

  • Abdoli, S., Hessler, D. M., Vora, A., Smither, B., & Stuckey, H. (2019a). Experiences of diabetes burnout: A qualitative study among people with type 1 diabetes. American Journal of Nursing, 119(12), 22–31.

    Article  Google Scholar 

  • Abdoli, S., Jones, D. H., Vora, A., & Stuckey, H. (2019b). Improving diabetes care: Should we reconceptualize diabetes burnout? Diabetes Educator, 45(2), 214–224. https://doi.org/10.1177/0145721719829066

    Article  Google Scholar 

  • Abdoli, S., Hessler, D. M., Vora, A., Smither, B., & Stuckey, H. (2020a). Descriptions of diabetes burnout from individuals with type 1 diabetes: An analysis of YouTube videos. Diabetic Medicine, 37(8), 1344–1351. https://doi.org/10.1111/dme.14047

    Article  CAS  PubMed  Google Scholar 

  • Abdoli, S., Miller-Bains, K., Burr, E. M., Smither, B., Vora, A., & Hessler, D. M. (2020b). Burnout, distress, and depressive symptoms in adults with type 1 diabetes. Journal of Diabetes and Its Complications, 34(7), 107608. https://doi.org/10.1016/j.jdiacomp.2020.107608

    Article  PubMed  Google Scholar 

  • Arnett, J. J. (2000). Emerging adulthood: A theory of development from the late teens through the twenties. American Psychologist, 55(5), 469–480. https://doi.org/10.1037/0003-066X.55.5.469

    Article  CAS  Google Scholar 

  • Bryden, K. S., Peveler, R. C., Stein, A., Neil, A., Mayou, R. A., & Dunger, D. B. (2001). Clinical and psychological course of diabetes from adolescence to young adulthood - A longitudinal cohort study. Diabetes Care, 24(9), 1536–1540. https://doi.org/10.2337/diacare.24.9.1536

    Article  CAS  PubMed  Google Scholar 

  • Celano, C. M., Beale, E. E., Moore, S. V., Wexler, D. J., & Huffman, J. C. (2013). Positive psychological characteristics in diabetes: A review. Current Diabetes Reports, 13(6), 917–929. https://doi.org/10.1007/s11892-013-0430-8

    Article  PubMed  Google Scholar 

  • Centers for disease control and prevention. (2019). Diabetes: Type 1. https://www.cdc.gov/diabetes/basics/type1.html

  • Collins, W. A., & Steinberg, L. (2007). Adolescent development in interpersonal context. In N. Eisenberg, W. Damon, & R. M. Lerner (Eds.), Handbook of child psychology (3rd ed., pp. 1003–1067). New Jersey: Wiley.

    Google Scholar 

  • Costello, A. B., & Osborne, J. W. (2005). Best practices in exploratory factor analysis: Four recommendations for getting the most from your analysis. Practical Assessment, Research and Evaluation, 10, 7.

    Google Scholar 

  • de Winter, J. C. F., Dodou, D., & Wieringa, P. A. (2009). Exploratory factor analysis with small sample sizes. Multivariate Behavioral Research, 44(2), 147–181. https://doi.org/10.1080/00273170902794206

    Article  PubMed  Google Scholar 

  • Diener, E., Emmons, R. A., Larsen, R. J., & Griffin, S. (1985). The satisfaction with life scale. Journal of Personality Assessment, 49(1), 71–75.

    Article  CAS  Google Scholar 

  • Fisher, L., Polonsky, W. H., Hessler, D. M., Masharani, U., Blumer, I., Peters, A. L., et al. (2015). Understanding the sources of diabetes distress in adults with type 1 diabetes. Journal of Diabetes and Its Complications, 29(4), 572–577. https://doi.org/10.1177/2325160315570961

    Article  PubMed  PubMed Central  Google Scholar 

  • Fuligni, A. J., Eccles, J. S., Barber, B. L., & Clements, P. (2001). Early adolescent peer orientation and adjustment during high school. Developmental Psychology, 37(1), 28–36. https://doi.org/10.1037/0012-1649.37.1.28

    Article  CAS  PubMed  Google Scholar 

  • Greening, L., Stoppelbein, L., Konishi, C., Jordan, S. S., & Moll, G. (2007). Child routines and youths’ adherence to treatment for type 1 diabetes. Journal of Pediatric Psychology, 32, 437–447.

    Article  Google Scholar 

  • Helgeson, V. S., Reynolds, K. A., Siminerio, L., Escobar, O., & Becker, D. (2008). Parent and adolescent distribution of responsibility for diabetes self-care: Links to health outcomes. Journal of Pediatric Psychology, 33(5), 497–508.

    Article  Google Scholar 

  • Helgeson, V. S., Reynolds, K. A., Siminerio, L., Becker, D., & Escobar, O. (2014). Cognitive adaptation theory as a predictor of adjustment to emerging adulthood for youth with and without type 1 diabetes. Journal of Psychosomatic Research, 77, 484–491.

    Article  Google Scholar 

  • Hoover, J. W. (1983). Patient burnout, and other reasons for noncompliance. The Diabetes Educator, 9(3), 41–43. https://doi.org/10.1177/014572178300900308

    Article  CAS  PubMed  Google Scholar 

  • Hunter, C. M. (2016). Understanding diabetes and the role of psychology in its prevention and treatment. American Psychologist, 71(7), 515–525. https://doi.org/10.1037/a0040344

    Article  Google Scholar 

  • Kessler, R. C., Mickelson, K. D., Walters, E. E., Zhao, S., & Hamilton, L. (2004). Age and depression in the MIDUS survey. In O. G. Brim, C. D. Ryff & R. C. Kessler (Eds.), How healthy are we? A national study of well-being at midlife (pp. 227–251). Chicago, IL: The University of Chicago Press.

  • La Greca, A. M., Swales, T., Klemp, S., & Madigan, S. (1988). Self-care behaviors among adolescents with diabetes. Ninth Annual Sessions of the Society of Behavioral Medicine.

  • Larson, R. W., & Verma, S. (1999). How children and adolescents spend time across the world: Work, play, and developmental opportunities. Psychological Bulletin, 125(6), 701–736. https://doi.org/10.1037/0033-2909.125.6.701

    Article  CAS  PubMed  Google Scholar 

  • Lindström, C., Åman, J., & Norberg, A. L. (2011). Parental burnout in relation to sociodemographic, psychosocial and personality factors as well as disease duration and glycaemic control in children with type 1 diabetes mellitus. Acta Paediatrica, International Journal of Paediatrics, 100(7), 1011–1017. https://doi.org/10.1111/j.1651-2227.2011.02198.x.

    Article  Google Scholar 

  • Lindström, C., Åman, J., Norberg, A. L., Forssberg, M., & Anderzén-Carlsson, A. (2017). “Mission Impossible”; the mothering of a child with type 1 diabetes—from the perspective of mothers experiencing burnout. Journal of Pediatric Nursing, 36, 149–156. https://doi.org/10.1016/j.pedn.2017.06.002.

    Article  PubMed  Google Scholar 

  • Lyons, S. K., Becker, D. J., & Helgeson, V. S. (2014). Transfer from pediatric to adult health care: Effects on diabetes outcomes. Pediatric Diabetes, 15(1), 10–17. https://doi.org/10.1111/pedi.12106

    Article  PubMed  Google Scholar 

  • Maslach, C., & Jackson, S. E. (1981). The measurement of experienced burnout. Journal of Occupational Behaviour, 2, 99–113.

    Article  Google Scholar 

  • Maslach, C., Jackson, S. E., & Leiter, M. P. (1996). Maslach Burnout inventory manual (3rd ed.). California: Consulting Psychologists Press.

    Google Scholar 

  • Oris, L., Luyckx, K., Rassart, J., Goubert, L., Goossens, E., Apers, S., et al. (2018). Illness identity in adults with a chronic illness. Journal of Clinical Psychology in Medical Settings, 25(4), 429–440. https://doi.org/10.1007/s10880-018-9552-0

    Article  PubMed  Google Scholar 

  • Polonsky, W. H. (1999). Diabetes burnout: What you can do when you can’t take it anymore. Arlington, VA: American Diabetes Association.

  • Polonsky, W. H., Fisher, L., Earles, J., Dudl, R. J., Lees, J., Mullan, J., & Jackson, R. A. (2005). Assessing psychosocial distress in diabetes. Diabetes Care, 28(3), 626–631.

    Article  Google Scholar 

  • Radloff, L. S. (1977). The CES-D scale: A self-report depression scale for research in the general population. Applied Psychological Measurement, 1(3), 385–401. https://doi.org/10.1177/014662167700100306

    Article  Google Scholar 

  • Schmitt, A., Reimer, A., Kulzer, B., Icks, A., Paust, R., Roelver, K. M., et al. (2018). Measurement of psychological adjustment to diabetes with the diabetes acceptance scale. Journal of Diabetes and Its Complications, 32(4), 384–392. https://doi.org/10.1016/j.jdiacomp.2018.01.005

    Article  PubMed  Google Scholar 

  • Seligman, M. E. P. (1972). Learned helplessness. Annual Review of Medicine, 23, 407–412.

    Article  CAS  Google Scholar 

  • Streiner, D. L. (1994). Figuring out factors: The use and misuse of factor analysis. Canadian Journal of Psychiatry, 39(3), 135–140. https://doi.org/10.1177/070674379403900303

    Article  CAS  PubMed  Google Scholar 

  • Talbot, F., Nouwen, A., Gingras, J., Gosselin, M., & Audet, J. (1997). The assessment of diabetes-related cognitive and social factors: The multidimensional diabetes questionnaire. Journal of Behavioral Medicine, 20(3), 291–311.

    Article  CAS  Google Scholar 

  • Welch, G. W., Jacobson, A. M., & Polonsky, W. H. (1997). The problem areas in diabetes scale: An evaluation of its clinical utility. Diabetes Care, 20(5), 760–766. https://doi.org/10.2337/diacare.20.5.760

    Article  CAS  PubMed  Google Scholar 

Download references

Funding

This research was supported by National Institutes of Health R01 DK060586.

Author information

Authors and Affiliations

Authors

Contributions

The author is grateful to Michele Joseph for interviewing the participants and to Abigail Vaughn who facilitated data collection and analysis, as well as the participants who persisted with this study. Contact information: Vicki S. Helgeson, Psychology Department, Carnegie Mellon University, Pittsburgh, PA 15,213, vh2e@andrew.cmu.edu.

Corresponding author

Correspondence to Vicki S. Helgeson.

Ethics declarations

Conflict of interest

The author declares that she has no conflict of interest.

Additional information

Publisher's Note

Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.

Rights and permissions

Reprints and permissions

About this article

Check for updates. Verify currency and authenticity via CrossMark

Cite this article

Helgeson, V.S. Diabetes burnout among emerging adults with type 1 diabetes: a mixed methods investigation. J Behav Med 44, 368–378 (2021). https://doi.org/10.1007/s10865-020-00198-3

Download citation

  • Received:

  • Accepted:

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1007/s10865-020-00198-3

Keywords

Navigation