Abstract
This case study discusses the design, development, and formative evaluation of Epilepsy Journey, an individually tailored, web-based intervention designed to address the unique executive functioning (EF) needs of adolescents with epilepsy. This intervention was designed through a three-phase iterative, patient-centered participatory action research process. First, a front-end analysis was completed to identify the unique needs of adolescents with epilepsy and initial design ideas via focus groups. Second, a preliminary design of the intervention was developed from focus group results. Finally, we iteratively incorporated revisions and refinements based on patient-centered feedback collected during usability sessions. Findings based on usage analytics, user reports, and coded qualitative themes from usability sessions suggest that our iterative, patient-centered approach to design, development, and evaluation resulted in a visually appealing interactive and brief intervention that is both engaging and individually tailored to the needs of adolescents with epilepsy.
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Glaser, N.J., Schmidt, M., Wade, S.L. et al. The Formative Design of Epilepsy Journey: a Web-Based Executive Functioning Intervention for Adolescents with Epilepsy. J Form Des Learn 1, 126–135 (2017). https://doi.org/10.1007/s41686-017-0011-3
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DOI: https://doi.org/10.1007/s41686-017-0011-3