ABSTRACT Introduction: Compared to their non-disabled peers, individuals with mild intellectual disability (MID) are at higher risk of becoming a victim of sexual abuse and more vulnerable to its disruptive effects. This review provides an overview of content and effectiveness of prevention and intervention programs targeting sexual abuse in individuals with MID. Methods: PRISMA guidelines were followed

ABSTRACT Background: Lithium is well described in managing certain mental illnesses including in people with intellectual disabilities (ID). It requires regular monitoring particularly of serum levels and relevant biochemistry. However, existing monitoring protocols do not provide ID-specific guidance leading to increased risk of poor-quality care. This study aims to construct a protocol to aid monitoring

ABSTRACT Introduction: Children with developmental delays (DD) and Autism Spectrum Disorder (ASD) are at a high risk for emotional and behavioral concerns. Research examining co-occurring anxiety in those with ASD during early childhood is scarce. The current study examined rates, symptom manifestation, and parenting risk correlates of anxiety among young children with ASD and those with a non-spectrum

ABSTRACT Introduction: Parenting children with intellectual and developmental disabilities can be stressful; however, families with religious beliefs may have positive ways of viewing their family. This study explored the associations between religious and spiritual involvement (RSI), family characteristics, parent mental health, and child adaptive and problem behaviors among 180 primary caregivers

ABSTRACT Introduction: COVID-19 has adversely impacted the health and wellbeing of people with intellectual and developmental disabilities (IDD). While there is emerging research examining how to support the mental health of this population during the pandemic, the perspectives and experiences of people with IDD have been largely absent.Methods: Nine virtual interviews were conducted with adults with

ABSTRACT Introduction: Challenging behaviors are common in individuals with developmental disabilities and pose significant challenges to their well-being and that of their families and communities. Method: We explored the occurrence and predictors of self-injurious behavior and aggressive/destructive behavior in 372 Canadian youths (aged 4–20 years) with a moderate to severe intellectual disability

ABSTRACT Introduction : Despite the high prevalence of mental health issues for young people with intellectual disability (ID), young people with ID can struggle to receive the mental health support they need. The aim of this study was to examine a new community-based, clinical mental health service for young people (12 −25 years) with co-occurring ID and mental illness, and to explore the outcomes

ABSTRACT Introduction: Constructive coping strategies play an important role during childcare processes. We examined the determinants of coping strategies used by parents raising children with intellectual disabilities or other developmental disorders and by parents with typically developing children. Methods: The cross-sectional study was carried out in Cracow. The participants in the survey were

ABSTRACT Background: Oppositional Defiant Disorder (ODD) appears more prevalent among children with intellectual disabilities (ID) as compared to children with typical development. However, it remains unclear what drives this difference. Methods: Data from 70 youth with typical development (TD) and 20 youth with ID were drawn from (The Collaborative Family Study). The relationships between child temperament

ABSTRACT Introduction: People with intellectual disability (ID) face barriers to accessing mental healthcare. Individuals who have had significant experience in intellectual disability mental health (IDMH) can provide insights into strategies to overcome these barriers. Methods: This historical investigation applied an interpretive descriptive approach using semi-structured interviews with fourteen

ABSTRACT Introduction: Intellectual disability (ID) and co-morbid mental health problems are more common in developing countries such as Bangladesh. However, little is known about how Bangladeshi health practitioners diagnose mental health disorders in people with an ID. Studies in developed countries have explored the impact of the diagnostic overshadowing bias (DOB): the tendency for health practitioners

ABSTRACT Introduction: There is significant symptom overlap between fetal alcohol spectrum disorder (FASD), which results from prenatal alcohol exposure (PAE), and autism spectrum disorder (ASD). There is also limited research regarding the comorbidity of these disorders. Method: Thirty-nine individuals with ASD and PAE (ASD+PAE) aged 3 to 30 years were matched for age, sex, and IQ to 78 individuals

ABSTRACT Introduction: Individuals with Down syndrome (DS) and IDD have lower psychiatric disorders rates than other individuals with IDD, and more information is needed about possible unique mental health needs of this group. Method: De-identified intake data for individuals with IDD, 101 with DS (mean age 27) and 4,366 without DS (mean age 25) served in START, a tertiary care mental health crisis

ABSTRACT Background: Families of children with developmental delays (DD) prior to the COVID-19 pandemic experienced inequalities in accessing health and social care services. Measures put in place to combat the spread of the coronavirus have potentially exacerbated existing inequalities and have led to additional pressures for these families. Methods: We carried out a cross-sectional online survey

ABSTRACT Background: Teenage youth with co-morbid intellectual disability (ID) and autism spectrum disorder (ASD) could be at higher risk for behavioral and social difficulties than youth with ID only. Methods: Youth aged 13 years were diagnosed with ID (n = 37), ID/ASD (n = 26), or typical development (TD, n = 98). Mothers and teachers completed measures of youth behavior problems, mental health,

ABSTRACT Introduction: Individuals with Down syndrome (DS) and IDD have lower psychiatric disorders rates than other individuals with IDD, and more information is needed about possible unique mental health needs of this group. Method: De-identified intake data for individuals with IDD, 101 with DS (mean age 27) and 4,366 without DS (mean age 25) served in START, a tertiary care mental health crisis

ABSTRACT Introduction: Intellectual disability (ID) and co-morbid mental health problems are more common in developing countries such as Bangladesh. However, little is known about how Bangladeshi health practitioners diagnose mental health disorders in people with an ID. Studies in developed countries have explored the impact of the diagnostic overshadowing bias (DOB): the tendency for health practitioners

ABSTRACT Introduction: This systematic literature review aims to (a) identify how the parenting stress was used in the empirical studies as an independent, outcome, moderator and mediator variable, (b) identify the predictors of parenting stress in parents of children with ASD, (c) identify how parenting stress relates with mental health, and (d) make suggestions for future research. Methods: A systematic

ABSTRACT Introduction Having a diagnosis of Down syndrome (DS) is associated with intellectual disability (ID), pervasive developmental disorders and Alzheimer’s dementia (AD). The association between these conditions has not been well evaluated. This paper looks to examine the current evidence pertaining to the relationship between dementia in people with DS and severity of ID and the presence of

ABSTRACT Introduction Children with developmental delays (DD), particularly autism spectrum disorders (ASD), are at high risk for increased levels of behavior problems and developing internalizing problems. While previous literature has highlighted the impact of parental stress on the development of behavioral problems broadly in children with DD, research on the relation between parenting stress and

ABSTRACT Introduction The goal of this study was to examine socialization in adults with intellectual disability in relation to gender, level of intellectual disability, mental illness, and setting type. Methods The sample consisted of 120 participants (60 males and 60 females), aged between 20 and 56 years, divided into two groups: 1. participants with intellectual disability without the diagnosis

ABSTRACT Introduction: This study presents demographic and clinical profiles of adults with intellectual and developmental disabilities seen at a psychiatric emergency department (ED). Predictors of admission were also identified. Methods: A retrospective chart review conducted from Oct 2016 to Jan 2017. Results: A total of 73 patients representing 105 visits were identified with suicidality or self-harm

(2020). Hospitals Must Do More to Protect the Emotional Well-Being of Intellectually Disabled Patients with COVID-19. Journal of Mental Health Research in Intellectual Disabilities: Vol. 13, No. 4, pp. 396-397.

(2020). Hospitals Must Do More to Protect the Emotional Well-Being of Intellectually Disabled Patients with COVID-19. Journal of Mental Health Research in Intellectual Disabilities. Ahead of Print.

(2020). The Intersectionality of Ethnicity/race and Intellectual and Developmental Disabilities: Impact on Health Profiles, Service Access and Mortality. Journal of Mental Health Research in Intellectual Disabilities: Vol. 13, No. 3, pp. 171-173.

Introduction People with learning disabilities in the United Kingdom are being incarcerated in hospital settings due to lack of suitable community care and support. Factors influencing discharge from institutional/hospital care to enable successful community living have not been explored systematically. Method A systematic review using the PRISMA guidance identified studies via five electronic database

ABSTRACT Introduction Individuals with autism spectrum disorder (ASD) and intellectual disability (ID) seem to be at increased risk for post-traumatic stress disorder (PTSD), but knowledge is sparse regarding its identification in this population. Previous research indicates that certain symptoms of PTSD may be more easily recognized, and that identifying reexperiencing and avoidance is particularly

Introduction The primary aim of this retrospective study was to assess differential associations between sleep disturbances with externalizing/internalizing problems, ADHD profiles (inattention, hyperactivity/impulsivity), and social impairment among children with ADHD, autism spectrum disorder (ASD), and comorbid diagnoses (ASD+ADHD). Methods Caregivers of patients with ADHD (N = 28), ASD (N = 29)

ABSTRACT Introduction Personality traits may predict the use of substances in individuals with mild intellectual disabilities (MID) or borderline intellectual functioning (BIF). The Dutch version of the Substance Use Risk Profile Scale (SURPS), adapted for this population, was tested on its psychometric properties. Method Individuals with MID or BIF (IQ 50–85; N = 91) were recruited via disability

ABSTRACT Introduction Children and young adults with Down syndrome can demonstrate increased behavior problems compared to their typically developing peers through childhood and adolescence. This study aims to: (1) identify common patterns of behaviors in children and young adults with Down syndrome and (2) assess potential medical comorbidities that could increase the risk for behavioral challenges

(2020). Oxford Textbook of the Psychiatry of Intellectual Disability. Journal of Mental Health Research in Intellectual Disabilities: Vol. 13, No. 3, pp. 281-282.

(2020). In the Time of the Pandemic: Safeguarding People with Developmental Disabilities against the Impact of Coronavirus. Journal of Mental Health Research in Intellectual Disabilities: Vol. 13, No. 2, pp. 63-65.

Background: There is no study to date that has examined the association between history of abuse and adaptive functioning deficits in youth with co-occurring and psychotic disorders or mood disorders. Method: This study used a retrospective chart review of 98 youth under the age of 18 (Mean age = 16.06 years) with co-occurring intellectual impairment (Mean IQ = 63.9) and psychotic disorders, mood disorders

Introduction: Persons with mild intellectual disability or borderline intellectual functioning (MID-BIF, IQ 50–85) are at high risk for the development of posttraumatic stress disorder (PTSD). A diagnostic instrument to establish a valid and reliable DSM-5 PTSD diagnosis in adults with MID-BIF was lacking. Aim of the current study was to determine the reliability and validity of the Adapted ADIS-C

Introduction: Conduct problems are commonly reported among individuals with autism spectrum disorders (ASD) and children with other special health care needs (CSHCN). Environmental research indicates that exposure to natural environments can lead to decreased conduct problems; opposite effects (i.e., increased problems) are associated with built “gray” environments (e.g., roadways). Methods: This exploratory

Introduction: We examined the development of anxiety in youth with or without intellectual disabilities (ID). We also examined the effects of child delay status, temperament, ethnicity, and negative parenting on anxiety symptom trajectory. Method: Participants were 177 families in (blinded). We employed latent growth curve modeling to examine the trajectory of anxiety symptoms (ages 3–13 years) and

Introduction Youth with intellectual disabilities (ID) demonstrate higher rates of disruptive behavior disorders (DBDs) than youth with typical development (TD). DBDs such as oppositional defiant disorder (ODD) predict higher rates of delinquency during adolescence. Yet, few studies have examined risk-taking and delinquency among youth with ID. Methods We used a self-report measure to determine whether

Introduction: Features of intellectual disability (ID) and/or autism spectrum disorder (ASD) may hinder responsiveness to interventions typically used during psychiatric hospitalization to manage severely disruptive behavior, and could increase the likelihood of experiencing restraint and/or seclusion (R/S). This study investigated the occurrence of R/S in psychiatrically hospitalized children rated

Introduction: People with intellectual disability (ID) experience barriers in accessing mental health care. Recommendations have been made to implement specialist intellectual disability mental health (IDMH) services in Australia. However, there is limited evidence to inform service development. Method: Family members and support persons of people with ID (n = 42) completed an on-line survey about

Introduction: Intellectual disability (ID) is characterized by limitations in cognitive and adaptive functioning. The aim of this study is to examine sociodemographic characteristics, perinatal and childhood risk factors, and prevalence of psychiatric and biomedical comorbidities in children with ID. Methods: 260 patients with ID were included in the study (mean age: 8.42 ± 3.59, 61% male, 75% mild

Introduction: Current measures of restrictive and repetitive behavior (RRB) in people with autism focus on severity and intensity and, to some degree, the global interference of the behavior. In this study we developed the Social Impact of Repetitive Behavior Scale (SIRBS) to capture several different contexts in which repetitive behavior is likely to occur and interfere. Methods: SIRBS items were

Introduction: Individuals with Autism Spectrum Disorder display a pattern of social communication deficits and restricted and repetitive behaviors that leave them particularly vulnerable to developing anxiety. The presence of a co-occurring Intellectual Disability further complicates the situation, compromising traditional diagnostic techniques and processes. The dual diagnosis of ASD and ID appears

Introduction: While transitioning to adulthood presents challenges for youth with developmental disabilities (DD), opportunities to develop adult social roles and communication skills may foster more optimal outcomes. One such opportunity is developing conflict resolution skills within parent-adolescent relationships. Methods: We examined how reported conflict and observed conflict resolution behaviors

Introduction: Diet and dietary interventions have drawn considerable attention in the literature as etiopathogenic factors and therapeutic approaches to Autism Spectrum Disorders (ASD), respectively. The objective of this study was to determine the influence of a gluten-free, casein-free (GFCF) diet on the alterations of behavior in children and adolescents diagnosed with ASD. We also aim to explore

Introduction: The study was conducted to determine the factors affecting the depression, family burden and depression status of families of children with Down syndrome. Methods: This cross-sectional research was conducted with the mothers of 71 children with Down syndrome attending six special education and rehabilitation centers in Istanbul, Turkey that provide special education for children with

Introduction: The Intellectual and Developmental Disability Mental Health (IDD-MH) Research Partnership was created to learn about the experiences and needs of young adults with IDD-MH while accessing and using mental health services. Our national partnership consists of six young adults, five professionals, researchers at Boston University, and representatives from Self Advocates Becoming Empowered

Introduction: As opposed to studies focusing on staffs’ attributions of challenging behavior (CB), relatively few studies have looked at how people with intellectual disabilities (ID) attribute such behaviors themselves, and a systematic overview is currently lacking. The aim of this review was to synthesize the evidence from qualitative studies on the attributions people with ID have concerning their

Introduction: Post-traumatic stress disorder (PTSD) may be under-recognized in people with intellectual disabilities (PWID) and reviews on appropriate screening tools and prevalence are lacking. This review aims to identify PTSD screening tools for PWID and estimate the prevalence of PTSD within this population. Method: Medline, PubMed, Embase, PsycINFO, Cochrane, Global Health, and Web of Science

Introduction: Although the Aberrant Behavior Checklist (ABC) is one of the most widely used behavioral rating scales among people with developmental disabilities, very few studies have examined the factor structure of the non-English versions.Methods: The construct validity of the Norwegian ABC was examined in a clinical sample of children and adolescents with neurological and neurodevelopmental disorders

(2019). The challenged addict: Addiction recovery with concurring developmental disorders. Journal of Mental Health Research in Intellectual Disabilities: Vol. 12, No. 1-2, pp. 95-96.

Introduction: This article describes the development of an Aggression and Restriction Observation Checklist (AROC) for use in residential and in-patient services for adults with intellectual disabilities (ID). The AROC was developed in collaboration between researchers and frontline staff. It assesses self-, person-, and object-directed aggressive behaviours and the staff’s use of restrictive measures

People with an Intellectual Disability (ID) are around 4 times more likely to suffer with a mental health disorder than IQ-typical people, however previous studies have shown they may be less likely to be diagnosed. One suggested cause of this is the diagnostic overshadowing bias: the tendency for practitioners to attribute unusual behaviour, thoughts or feelings to a person’s ID and not a separate

Introduction: Studies regarding the use of support services for persons with a dual diagnosis of intellectual disability and psychopathology are scarce; even fewer have focused on children and young adults. The aim of the present study, conducted in Israel, was to compare the use of support services and their perceived effectiveness by families of children and young adults with intellectual disability

Introduction: autism spectrum disorder (ASD) and intellectual disability (ID) seem to influence the risk of and vulnerability to exposure to trauma and adverse events. While assessment of a psychiatric disorder in ASD and ID generally is challenging, identification of post-traumatic stress disorder (PTSD) seems particularly so, and knowledge does not seem easily accessible. Methods: This article provides

Introduction: The purpose of this study was to gain additional insight on patterns of behavior of three individuals dually diagnosed with intellectual disability (ID) and bipolar disorder as they cycled between elevated and depressed mood states. Methods: Data were collected from weekly, one-hour observations across a period of several months. The total duration of time spent engaged in target responses

(2019). In Memoriam for Stephen R. Schroeder. Journal of Mental Health Research in Intellectual Disabilities: Vol. 12, No. 1-2, pp. 94-94.

Introduction: Mothers of intellectually disabled children face several psychological problems. Qualitative studies use a process that can reveal truthful perceptions and help mothers express their emotions about their unique and personal experiences. Method: This study used a qualitative research method design with a hermeneutic approach to examine the life experiences of mothers of children with intellectual

Individuals with intellectual disability (ID) experience high rates of psychiatric disorders, and coinciding high rates of emergency service use. The current study seeks to explore strategies to improve outcomes by reporting a one-year prospective investigation among 41 individuals (Mean age = 32 years, SD = 12) with ID and mental health needs who received specialized supports from the I-START program

A nationwide survey of children diagnosed with autism spectrum disorders (ASD) was conducted with the aim of exploring outcomes in adolescence and adulthood. The purpose of this article is to evaluate the representativeness of the study population and to describe the study population. In total, 1,734 parents and 933 individuals with ASD returned the questionnaire, which included information from individuals

The prevalence of refractive error and ocular disorders among infants and young children with severe behavioral problems and developmental disorders is not well defined, particularly in developing countries. We performed a retrospective review of ophthalmic examinations performed during a National Institutes of Health–funded cohort study of very young children in Peru with behavioral problems and at