ABSTRACT Background Parents with intellectual disability, like all other parents, are embedded in networks of capability-enhancing and/or capability-inhibiting relationships. This study investigated links between how parents with intellectual disability experienced their upbringing, continuity and discontinuity in familial relationships, and their assessments of their own parenting. Method Structured

ABSTRACT Background Body experience is an important facet of psychosocial functioning and health. However, to date no test exists to measure body experience in adults with mild intellectual disability and borderline intellectual functioning (MID-BIF). We therefore adapted the Body Experience Questionnaire (BEQ) to this group, resulting in the BEQ-mb, and evaluated its usability, comprehensibility,

ABSTRACT Background The prevalence of Substance Use Disorder (SUD) in people with Mild Intellectual Disability and Borderline Intellectual Functioning (MID-BIF) is high and evidence-based treatment programs are scarce. The present study describes the development of a personalised SUD treatment for people with MID-BIF. Method The personalised SUD treatment is developed according to the steps of the

ABSTRACT Background The feasibility and acceptability was explored of the newly-constructed Attachment Strengths and Needs Interview for parents of children with severe or profound intellectual disabilities. Method A partially mixed methods approach (with focus on the quantitative data) was used to clarify parents’ and professionals’ viewpoints regarding the acceptability of the interview through websurvey-ratings

ABSTRACT Background The life expectancy of people with profound intellectual and multiple disabilities (PIMD) is increasing and parents express concerns about being possibly outlived by their child with PIMD. However, little is known about the nature of these concerns. Method We interviewed 27 parents of persons with PIMD and analysed the data thematically, to explore parents’ concerns about being

ABSTRACT Background: Attitudes of classmates has been considered as one of the major problems in inclusive education, negatively influencing the participation of students with disability in school contexts. The goal of this study was to examine Italian typically developing children's attitudes towards their peers with disabilities. Method: In a sample of 560 elementary school students aged 6 - 11 years

(2021). Editor’s note. Journal of Intellectual & Developmental Disability: Vol. 46, No. 2, pp. 101-101.

ABSTRACT Background Psychomotor therapy (PMT) is often applied in Dutch clinical practice to address aggressive behaviour in individuals with mild intellectual disabilities or borderline intellectual functioning. However, the literature on clients’ experiences is lacking. Methods An interpretative phenomenological analysis was used to analyse the semi-structured interviews of seven participants (19–60

ABSTRACT Background Since the life expectancy of people with profound intellectual and multiple disabilities (PIMD) is increasing, siblings may take over care/support roles from their parents. Method To explore how parents and siblings of persons with PIMD view siblings’ role regarding future care/support for their family member, we interviewed eight parents and 13 siblings of seven persons with PIMD

ABSTRACT Background One would assume that infection outbreaks such as the COVID-19 pandemic have a deleterious effect upon the physical, mental, and/or social functioning of people with intellectual disabilities (ID). Methods A systematic search of four databases produced 18 articles. General information pertaining to the topics under consideration, information related to infectious diseases and ID

ABSTRACT Background This study investigated transition, or school leaving, as experienced by young adults living in Aotearoa New Zealand who had significant intellectual and developmental disabilities. Method To investigate these typically unheard perspectives, qualitative methods were adapted to individual communication preferences. Personal and contextual intersections were critically analysed using

(2021). Performance, purpose, and creation of encounter between people with and without intellectual disabilities. Journal of Intellectual & Developmental Disability: Vol. 46, No. 1, pp. 1-5.

ABSTRACT Background Planning the transition to adulthood of youth with severe to profound intellectual disability (ID) requires professionals from different institutions to work together. However, there are few studies in the literature that focus on professionals involved in this transition. Method This study documented factors impacting the transition to adulthood of youth with severe to profound

ABSTRACT Background Swallowing difficulties are common and complex in children with physical, behavioural, and cognitive needs. This study (i) describes mealtime management and (ii) identifies barriers and facilitators to implementation of a guideline for school-aged children with feeding difficulties in one specialist school. Method Three data sets were collected: (i) 51 school records, (ii) 48 meal

ABSTRACT Background We examined the association between intellectual disabilities (ID) and pneumonia severity at admission. Methods We extracted patients admitted to hospital for pneumonia from July 2010 to March 2018 using the Diagnosis Procedure Combination database. We measured pneumonia severity using the A-DROP system. After 1:4 cohort matching between patients with and without ID, we conducted

ABSTRACT Background While qualitative research on intellectual disability is on the rise, researchers have frequently reported that their methods bring methodological and ethical challenges. The authors advance shadowing as an alternative method to respond to these concerns. Method The authors draw on their experiences with shadowing on the basis of two separate studies respectively, involving 28 and

ABSTRACT Background It is mandatory for staff in Swedish community services for people with intellectual disabilities to report incidents of error or malpractice. Aim The aim is to study if incident reports contribute to developing quality in services for people with intellectual disabilities who present with challenging behaviours. Method 159 reports on incidents from group homes and daily activities

ABSTRACT Background People with fetal alcohol spectrum disorder (FASD) and women who drink alcohol while pregnant can experience stigma, possibly exacerbated by stereotyped media portrayals. Method To understand experiences of FASD stakeholders and reactions to news coverage, we conducted twelve focus groups across three categories: (1) people with FASD; (2) caregivers; and (3) professionals. Themes

ABSTRACT Background This study synthesises current literature concerning the barriers to the National Disability Insurance Scheme (NDIS) faced by people with intellectual disability and/or complex support needs who are involved with the criminal justice system, or at risk of (re)involvement. Method Through targeted searches of key databases, 41 publications were identified from the scholarly and grey

ABSTRACT Background To explain that students with intellectual disabilities are not fully included in mainstream education, the present paper investigates public attitudes towards inclusive education and notably examines how these vary according to students' type of disability (i.e., an intellectual, a communicational, a sensory, a motor, or a specific learning one). Method Data were extracted from

ABSTRACT Background This study synthesises current literature concerning the barriers to the National Disability Insurance Scheme (NDIS) faced by people with intellectual disability and/or complex support needs who are involved with the criminal justice system, or at risk of (re)involvement. Method Through targeted searches of key databases, 41 publications were identified from the scholarly and grey

ABSTRACT Background Providing medical and dental care for adults with developmental disabilities requires specialised care that includes caregiver’s perceptions of processes of care as integral to informing care delivery. Method We examined the reach and efficacy of a medical-dental clinic serving adults with developmental disabilities as part of a program evaluation in the community setting. Using

ABSTRACT Background The increased life expectancy of people with Down syndrome puts pressure on parents, who are usually the main caregivers but who find caring more difficult as they get older. The quality of the support provided by brothers and sisters depends on the intra-family relationships they build when growing up. Methods 121 adult siblings of people with Down syndrome completed a questionnaire

ABSTRACT Background: Responses to digital cognitive training interventions vary greatly among children with intellectual and developmental disorders (IDD). Investigating possible predictors of improvements following training is vital in ascertaining which individuals benefit from these interventions. Methods: Seventy-three children (4–11 years) with IDD completed attention training or a placebo program

ABSTRACT Background: The present study examined the psychometric properties of the Anger Bodily Sensations Interview – intellectual disabilities (ABSI-id), an adapted instrument to measure anger-related interoceptive awareness (IA) in individuals with mild intellectual disabilities or borderline intellectual functioning (MID-BIF). Method: The ABSI-id was individually administered to 208 clients (51%

ABSTRACT Background: This paper presents the findings from a qualitative research project that explored what ten people with intellectual disabilities who receive care and support in a residential care facility deem valuable for living a good life and what the opportunity to manage resources for care and support themselves means to them. Method: With the use of photovoice, the 10 participants documented

ABSTRACT Background In the debate on the social inclusion of people with intellectual disabilities, we find various proposals for dealing with sameness and difference. A more inclusive understanding of difference is needed to ensure that the perspectives of people with intellectual disabilities are taken into account. Method This study involved in-depth interviews with 25 individuals with intellectual

ABSTRACT Background With the introduction of the National Disability Insurance Scheme (NDIS), creation and implementation of participants’ plans are becoming a research focus. As many families facilitate the implementation of plans, it is important to understand the enablers and barriers to this process. Method This study investigated the experiences of 20 family groups with adult participants with

ABSTRACT Background Though the concept of encounter promises to move the field of social inclusion beyond the dichotomy of presence and participation, new work in political theory pushes encounter in a different direction, making freedom – not inclusion – the central value at stake. Methods Interpretative video analysis was conducted on an online learning program “Supporting Inclusion” developed to

ABSTRACT Background In the debate on the social inclusion of people with intellectual disabilities, we find various proposals for dealing with sameness and difference. A more inclusive understanding of difference is needed to ensure that the perspectives of people with intellectual disabilities are taken into account. Method This study involved in-depth interviews with 25 individuals with intellectual

ABSTRACT Background Though the concept of encounter promises to move the field of social inclusion beyond the dichotomy of presence and participation, new work in political theory pushes encounter in a different direction, making freedom – not inclusion – the central value at stake. Methods Interpretative video analysis was conducted on an online learning program “Supporting Inclusion” developed to

(2020). 2019 JIDD Awards Announcement. Journal of Intellectual & Developmental Disability: Vol. 45, No. 4, pp. (i)-(i).

(2020). Dedifferentiation in context. Journal of Intellectual & Developmental Disability: Vol. 45, No. 4, pp. 305-308.

ABSTRACT Background: Dedifferentiation refers to the trend of positioning people with intellectual disabilities together with other disabled individuals for political purposes, to act as a counter to differentiated approaches. This article explores the influence of dedifferentiation in professional support settings through the lived experiences of people with intellectual disabilities and their staff

(2020). 2020 Reviewers. Journal of Intellectual & Developmental Disability: Vol. 45, No. 4, pp. 398-398.

ABSTRACT Background There is a need to systematically compare and contrast mortality predictors and disparities in people with intellectual disabilities (ID) for global prevention strategy development. Method Bibliographic databases and grey literature were searched using systematic review methodology and the machine learning tool “Abstrackr.” Results Fifty-four relevant articles and reports published

ABSTRACT Background The Family Network Method – Intellectual Disability (FNM-ID) was used to compare perspectives of people with mild intellectual disability and their support workers on family networks of people with intellectual disability. Method 138 participants with mild intellectual disability and support workers were interviewed, using the FNM-ID. Paired t-tests were used to examine differences

ABSTRACT Background Early diagnosis of Fetal Alcohol Spectrum Disorder (FASD) is known to improve outcomes in children. It is less clear if diagnosis in adulthood also conveys benefits. This study investigated long-term outcomes for individuals diagnosed with FASD after 18 years of age. Method Twenty adults aged 18–45 years at FASD diagnosis were interviewed. Pre-diagnosis information was compared

ABSTRACT Background Unpredictability, the risk of harm and possibility of rewards, are integral elements of encounter. Risk literature offers insight on the complex ways in which risk perceptions and attunements shape behaviours and interactions in encounter between people with and without intellectual disability. Method The paper draws on risk literature, encounter literature, and examples from the

ABSTRACT Background The present study investigated decision-making in patients with Prader-Willi syndrome (PWS) using the Soochow Gambling Task (SGT). The objective was to assess whether adults with PWS have impaired hot executive functions and whether the deficit is specific to PWS or linked to intellectual disabilities. Method The SGT performance of 26 adults with PWS was compared to that of 26 healthy

ABSTRACT Purpose: The purpose of this study was to examine if integrative dance classes have the potential to improve the postural stability in individuals with intellectual disability. Methods: A quasi-experimental, pretest-posttest research design was used to assess changes in postural stability of 16 individuals with intellectual disability. Postural stability was evaluated in bilateral stance with

ABSTRACT Background: The study reported here investigated the views of staff who worked with adults with intellectual disability regarding the likely future of such adults. Method: Staff were provided with a short vignette portraying an adult with intellectual disability and asked to describe that individual’s future in five years and then to indicate the likelihood of the individual’s participation

ABSTRACT Background: Often, people with and without intellectual disabilities do not mingle. Research has mostly focused on how to foster “convivial encounters” for social inclusion, but further thinking is needed on situations in which potential encounters do not take place. Method: Discussion of philosophical and urban sociological literature on social interaction in public. Results: In non-encounters

ABSTRACT Background: The co-production concept holds out the promise of forging new relationships between professionals and service users with intellectual disabilities. However, little empirical research explores the embodied practices of these projects occasion. We identify two key tensions intrinsic to such projects; the tension between expert/professional knowledge and lay/experiential knowledge

ABSTRACT Background: “Convivial encounter” provides a new lens for understanding social inclusion of people with intellectual disabilities, characterised by shared activity and friendly interactions with strangers without intellectual disabilities. Places, props and support practices facilitate incidental convivial encounters. This study explored processes for deliberately creating opportunities for

ABSTRACT Background: Social vulnerability refers to the ways in which an individual is at risk of being victimised. The Test of Interpersonal Competences and Personal Vulnerability [TICPV] is an Australian assessment tool designed for adults with intellectual disabilities (ID) [Wilson et al. (1996). Vulnerability to criminal exploitation: Influence of interpersonal competence differences among people

ABSTRACT Background: This research aims to study the role of people with intellectual disability in taking decisions regarding the support provided under the supported living model. Method: Interviews were conducted with 13 people with intellectual disability, and six support professionals with experience working in organisations offering personalised support. These covered the person’s pathway, the

ABSTRACT Background: This article aims to present the results of a study on the facilitators and obstacles to community participation in inclusive settings for people with intellectual disabilities (ID) in Québec City (Canada), as perceived by adults with ID and key individuals involved in their daily lives. Method: Semi-structured interviews were conducted, followed by an inductive thematic analysis

ABSTRACT Background: People with Intellectual Disability (ID) in Sweden should be enabled to live like others. This life like others is realised in group homes that have little in common with the typical home. Method: A reading of Appiah’s As if is used to discuss how people with ID are supported in Sweden. Current national data are presented within the framework of idealisation, the use of (useful)

ABSTRACT Background: Research about the psychometric properties of the Behavioural Appraisal Scales (BAS) in people with profound intellectual and multiple disabilities (PIMD) is limited. This study evaluates invariance in factor structure, item bias and convergent validity of the BAS. Methods: Data on the BAS from two studies (n = 25; n = 52) were analysed using the oblique multiple group method.

ABSTRACT Background: Emotion regulation is a challenge for many, in particular children with intellectual disabilities. To support understanding and the development of interventions in this area it is essential to identify valid and reliable measures. Method: This systematic review aimed to identify measures that assess all five emotion regulation domains as described by the process model of emotion

ABSTRACT Background: Professionals play an important role in supporting the social relations of persons with a disability. This study looks at professional practices supporting or strengthening social relations of persons in independent supported living, by integrating the perspectives of adults with a disability, network members and professionals. Method: Fifty-one semi-structured interviews were

ABSTRACT Background: Canada was the first country to develop legal mechanisms that allow for supported decision making, and little research has explored how decision making is supported in this context. This research aimed to understand how seven people with intellectual disabilities, living in two Canadian provinces, were supported with their decision making. Method: The research used constructivist

(2020). COVID-19 and people with intellectual disabilities. Journal of Intellectual & Developmental Disability: Vol. 45, No. 3, pp. 203-203.

(2020). First call for papers for JIDD issue 1, 2022: European approaches to intellectual disability. Journal of Intellectual & Developmental Disability: Vol. 45, No. 3, pp. 303-303.

ABSTRACT Background: Rubinstein-Taybi syndrome (RSTS) is a multiple congenital anomaly syndrome characterised by several typical somatic characteristics and by developmental disabilities with various degrees of severity. Focusing on children with RSTS, the aim of this study was to describe their psychomotor, cognitive, and socio-emotional developmental profiles. Method: Twenty-three children with RSTS

Background: The Nisonger Child Behavior Rating Form (NCBRF) allows for the assessment of frequency and severity of challenging behaviours of individuals with ID with one combined rating. However, frequency and severity rating of challenging behaviours may be in disagreement. Therefore, the efficacy of frequency and severity independent ratings for each NCBRF item was investigated. Method: Professional

ABSTRACT Background: Dedifferentiated policy treats adults with intellectual disabilities as part of the larger group of people with disabilities. The implications of the dedifferentiated National Disability Insurance Scheme (NDIS) for adults with intellectual disabilities are explored. Methods: Analysis of peer reviewed and grey literature between 2014 and 2020 about design of the NDIS and outcomes

ABSTRACT Background Choking is a serious and under-recognised condition for adults with intellectual disability (ID), with health, psychological and potentially fatal consequences. This study aims to determine the prevalence and risk factors for choking in a population-based sample of older adults with ID. Method 597 adults with ID (mean age: 60 years old; SD = 8) were selected as part of The Intellectual

ABSTRACT Background: Parents making a will most commonly distribute assets evenly to adult children. How parents of an adult child with an intellectual disability use wills to plan for future care and support has had limited policy, practice and research attention. Method: This research reports on the perceptions of 20 parents regarding the impact of the needs of their child with disability on estate