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Health-related quality of life and its determinants among cancer patients: evidence from 12,148 patients of Indian database Health Qual. Life Outcomes (IF 3.6) Pub Date : 2024-03-13 Jyoti Dixit, Nidhi Gupta, Amal Kataki, Partha Roy, Nikita Mehra, Lalit Kumar, Ashish Singh, Pankaj Malhotra, Dharna Gupta, Aarti Goyal, Kavitha Rajsekar, Manjunath Nookala Krishnamurthy, Sudeep Gupta, Shankar Prinja
Cancer survivors experience a decrement in health-related quality of life (HRQoL) resulting from the disease as well as adverse effects of therapy. We evaluated the HRQoL of cancer patients, stratified by primary cancer site, stage, treatment response and associated adverse events, along with its determinants. Data were collected from 12,148 patients, sampled from seven purposively chosen leading cancer
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Correction: Translation and cross-cultural adaptation of an Arabic version of PROMIS® of dyspnea activity motivation, requirement item pool and sleep-related impairments item bank Health Qual. Life Outcomes (IF 3.6) Pub Date : 2024-03-12 Monira I. Aldhahi, Hadeel R. Bakhsh, Bodor H. Bin Sheeha, Rehab Alhasani
Correction: Health Qual Life Outcomes 22, 11 (2024) https://doi.org/10.1186/s12955-023-02223-w The authors of the original article [1] wish to clarify with respect to Corresponding Authorship that Monira I. Aldhahi's role was limited to that of paying and proofing author during production, whereas Rehab Alhasani's role is that of primary Corresponding Author nominated to handle all queries post-publication
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A time trade-off study to determine health-state utilities of transplant recipients with refractory cytomegalovirus infection with or without resistance Health Qual. Life Outcomes (IF 3.6) Pub Date : 2024-03-06 Waqas Ahmed, Louise Longworth, Yemi Oluboyede, Peter Cain, Stacey L. Amorosi, Sarah Hill, Ishan Hirji
Health-state utility values (HSUVs) for post-transplant refractory cytomegalovirus (CMV) infection (with or without resistance [R/R]) were determined using a time trade-off (TTO) survey completed by 1,020 members of the UK general public. Existing literature and qualitative interviews with clinicians experienced in treating R/R CMV were used to develop initial draft vignettes of health states. The
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Associations of multimorbidity with body pain, sleep duration, and depression among middle-aged and older adults in China Health Qual. Life Outcomes (IF 3.6) Pub Date : 2024-02-27 Xin Ye, Xinfeng Wang
Multimorbidity, body pain, sleep disturbance, and depression are major clinical and public health challenges. This paper aimed to examine the associations of multimorbidity with body pain, sleep duration, and depression; and whether the associations varied by socioeconomic status. Data was derived from four waves of the nationally representative China Health and Retirement Longitudinal Study (CHARLS)
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Health inequity assessment in Brazil: is EQ-5D-3L sensible enough to detect differences among distinct socioeconomic groups? Health Qual. Life Outcomes (IF 3.6) Pub Date : 2024-02-27 Bernardo Rangel Tura, Milene Rangel da Costa, Sylvia Lordello, Danillo Barros, Yuri Souza, Marisa da Silva Santos
Multidimensional health-related quality of life (HRQOL) instruments, such as the EQ-5D, are increasingly used to assess inequalities in health. However, it is necessary to explore the ability of these instruments to capture differences between population groups, especially in low/middle-income countries. This study aimed to investigate whether the EQ-5D-3L instrument can detect differences in HRQOL
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Correction: Prediction of the SF-6D utility score from lung cancer FACT-L: a mapping study in China Health Qual. Life Outcomes (IF 3.6) Pub Date : 2024-02-27 Qing Yang, Long Lin Jiang, Yin Feng Li, Deyu Huang
Health and Quality of Life Outcomes (2023) 21:122 https://doi.org/10.1186/s12955-023-02209-8 The original article contains minor text errors in the Modelling methods and performance sub-section of the Methods sections. The following sentences should each state ‘FACT-L’ in place of each instance of ‘FACT H&N’: Model 1: FACT-H&N total score. Model 2: FACT-H&N total score + the square term of the FACT-H&N
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Development and quality assessment of the psychometric properties of the Self-Efficacy in Lifestyle Counselling scale (SELC 20 + 20) using Rasch analysis Health Qual. Life Outcomes (IF 3.6) Pub Date : 2024-02-23 Sara Alenius, Albert Westergren, Petra Nilsson Lindström, Marie Nilsson, Marie Rask, Lina Behm
Globally as well as in Sweden, diseases that are caused by unhealthy lifestyle habits are the most common causes of death and disability. Even though there are guidelines that oblige all health-care professionals to counsel patients about lifestyle, studies have shown that it is not prioritized within healthcare. One reason for this among nurses has been shown to be lack of confidence in knowledge
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Psychometric evaluation of the respiratory syncytial virus infection, intensity and impact questionnaire (RSV-iiiQ) in adults Health Qual. Life Outcomes (IF 3.6) Pub Date : 2024-02-20 Valerie Williams, Carla DeMuro Romano, Lyn Finelli, Shanshan Qin, Todd L. Saretsky, Jia Ma, Sandy Lewis, Matthew Phillips, Richard H. Osborne, Josephine M. Norquist
Despite a number of respiratory syncytial virus (RSV) vaccine candidates being tested in clinical trials, disease-specific, self-reported instruments assessing symptom severity of RSV infection from the perspective of adult patients are still needed. The RSV Infection, Intensity and Impact Questionnaire (RSV-iiiQ) was adapted from the Influenza Intensity and Impact Questionnaire (FluiiQ™). This study
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Quality of life assessment instruments in children and adolescents with neuromuscular diseases: a systematic scoping review Health Qual. Life Outcomes (IF 3.6) Pub Date : 2024-02-16 Karoliny Lisandra Teixeira Cruz, Isadora Cristina Sousa Santos, Cyntia Rogean de Jesus Alves de Baptista, Ana Claudia Mattiello-Sverzut
(1) To identify instruments used to assess quality of life (QoL) in children and adolescents with neuromuscular diseases; (2) To identify the psychometric properties contained in these instruments. This is a scoping review in which the electronic databases Embase, Scielo, Scopus, Pubmed and Lilacs were used as well as grey literature. The following terms were used in the search for articles published
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Ignored and undervalued in public health: a systematic review of health state utility values associated with syphilis infection Health Qual. Life Outcomes (IF 3.6) Pub Date : 2024-02-13 Patrick Miao, Fern Terris-Prestholt, Christopher K. Fairley, Joseph D. Tucker, Virginia Wiseman, Philippe Mayaud, Ying Zhang, Jane Rowley, Sami Gottlieb, Eline L. Korenromp, Caroline G. Watts, Jason J. Ong
Syphilis is a sexually transmitted infection causing significant global morbidity and mortality. To inform policymaking and economic evaluation studies for syphilis, we summarised utility and disability weights for health states associated with syphilis. We conducted a systematic review, searching six databases for economic evaluations and primary valuation studies related to syphilis from January
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Comparison of four value sets derived using different TTO and DCE approaches: application to the new region-specific PBM, AP-7D Health Qual. Life Outcomes (IF 3.6) Pub Date : 2024-02-10 Takeru Shiroiwa, Tatsunori Murata, Yasuhiro Morii, Eri Hoshino, Takashi Fukuda
AP-7D is a newly developed preference-based measure (PBM) in East and Southeast Asia. However, no value set has been established yet. Comparison of the characteristics of value sets obtained by different methods is necessary to consider the most appropriate methodology for valuation survey of AP-7D. We surveyed the general population’s preference of AP-7D health states by four valuation methods (a)
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Exploratory factor and confirmatory analyses of the polycystic ovary syndrome health-related quality of life questionnaire (PCOSQ-50) Health Qual. Life Outcomes (IF 3.6) Pub Date : 2024-02-03 Pamela J. Wright, Abbas S. Tavakoli, Robin M. Dawson
A condition-specific instrument is necessary to measure the health-related quality of life among those with polycystic ovary syndrome (PCOS), the most common chronic endocrinopathy among women. The first instrument was developed in 1988, followed by several revisions. However, further recommendations from all versions include additional application and measurement among different cultural populations
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The impact of chelation compliance in health outcome and health related quality of life in thalassaemia patients: a systematic review Health Qual. Life Outcomes (IF 3.6) Pub Date : 2024-02-02 Wan Jin Lee, Nurul Ain Mohd Tahir, Geok Ying Chun, Shu Chuen Li
Understanding consequences of poor chelation compliance is crucial given the enormous burden of post-transfusional iron overload complications. We systematically reviewed iron-chelation therapy (ICT) compliance, and the relationship between compliance with health outcome and health-related quality of life (HRQoL) in thalassaemia patients. Several reviewers performed systematic search strategy of literature
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Impact of driving cessation on health-related quality of life trajectories Health Qual. Life Outcomes (IF 3.6) Pub Date : 2024-02-01 Thelma J. Mielenz, Haomiao Jia, Carolyn DiGuiseppi, Lisa J. Molnar, David Strogatz, Linda L. Hill, Howard F. Andrews, David W. Eby, Vanya C. Jones, Guohua Li
Trajectories of health-related quality of life (HRQoL) after driving cessation (DC) are thought to decline steeply, but for some, HRQoL may improve after DC. Our objective is to examine trajectories of HRQoL for individuals before and after DC. We hypothesize that for urban drivers, volunteers and those who access alternative transportation participants’ health may remain unchanged or improve. This
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Health-related quality of life in mild-to-moderate COVID-19 in the UK: a cross-sectional study from pre- to post-infection Health Qual. Life Outcomes (IF 3.6) Pub Date : 2024-01-30 Ioana-Alexandra Soare, Wajeeha Ansari, Jennifer L. Nguyen, Diana Mendes, Waqas Ahmed, Joanna Atkinson, Amie Scott, Jessica E. Atwell, Louise Longworth, Frauke Becker
The aim of this study was to estimate the impact of mild-to-moderate COVID-19 on health-related quality of life (HRQoL) over time among individuals in the United Kingdom, adding to the evidence base that had focussed on severe COVID-19. A bespoke online survey was administered to individuals who self-reported a positive COVID-19 test. An amended version of a validated generic HRQoL instrument (EQ-5D-5L)
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Translation and cross-cultural adaptation of an Arabic version of PROMIS® of dyspnea activity motivation, requirement item pool and sleep-related impairments item bank Health Qual. Life Outcomes (IF 3.6) Pub Date : 2024-01-26 Monira I. Aldhahi, Hadeel R. Bakhsh, Bodor H. Bin Sheeha, Rehab Alhasani
Patient-Reported Outcomes Measurement Information System (PROMIS®) Dyspnea Activity Motivation & Requirement item pool and sleep related impairments (SRI) item bank are designed in assessing the impact of dyspnea and sleep and guiding patient management. However, to effectively utilize this tool in Arabic-speaking populations, it is essential to perform a thorough translation and cultural adaptation
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Validation of the psychosocial consequences of screening in lung cancer questionnaire in the international lung screen trial Australian cohort Health Qual. Life Outcomes (IF 3.6) Pub Date : 2024-01-25 Asha Bonney, John Brodersen, Volkert Siersma, Katharine See, Henry M. Marshall, Daniel Steinfort, Louis Irving, Linda Lin, Jiashi Li, Siyuan Pang, Paul Fogarty, Fraser Brims, Annette McWilliams, Emily Stone, Stephen Lam, Kwun M. Fong, Renee Manser
Evaluation of psychosocial consequences of lung cancer screening with LDCT in high-risk populations has generally been performed using generic psychometric instruments. Such generic instruments have low coverage and low power to detect screening impacts. This study aims to validate an established lung cancer screening-specific questionnaire, Consequences Of Screening Lung Cancer (COS-LC), in Australian-English
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How quality of life is measured in studies of nutritional intervention: a systematic review Health Qual. Life Outcomes (IF 3.6) Pub Date : 2024-01-24 Raquel Clapés Pemau, Patricia González-Palacios, Kirk W. Kerr
Nutrition care can positively affect multiple aspects of patient’s health; outcomes are commonly evaluated on the basis of their impact on a patient’s (i) illness-specific conditions and (ii) health-related quality of life (HRQoL). Our systematic review examined how HRQoL was measured in studies of nutritional interventions. To help future researchers select appropriate Quality of Life Questionnaires
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Perceptions regarding the concept and definition of patient-reported outcomes among healthcare stakeholders in Japan with relation to quality of life: a cross-sectional study Health Qual. Life Outcomes (IF 3.6) Pub Date : 2024-01-19 Takako Kaneyasu, Shinya Saito, Kikuko Miyazaki, Yoshimi Suzukamo, Mariko Naito, Takashi Kawaguchi, Takako Eguchi Nakajima, Takuhiro Yamaguchi, Kojiro Shimozuma
Patient-reported outcomes (PROs) are frequently used in a variety of settings, including clinical trials and clinical practice. The definition of PRO and quality of life (QOL) and their relationship have been concluded through discussions among experts that has been the premise of PRO guidelines are not clearly stated in the guidelines. Therefore, the definition of PRO, especially in relation to QOL
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Mapping Short Warwick and Edinburgh Mental Wellbeing Scale (SWEMWBS) to Recovering Quality of Life (ReQoL) to estimate health utilities Health Qual. Life Outcomes (IF 3.6) Pub Date : 2024-01-15 Anju Devianee Keetharuth, Laura A. Gray, Ellen McGrane, Hannah Worboys, Giovany Orozco-Leal
The Short Warwick and Edinburgh Mental Wellbeing Scale (SWEMWBS) is a widely used non-preference-based measure of mental health in the UK. The primary aim of this paper is to construct an algorithm to translate the SWEMWBS scores to utilities using the Recovering Quality of Life Utility Index (ReQoL-UI) measure. Service users experiencing mental health difficulties were recruited in two separate cross-sectional
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The use of 12-item General Health Questionnaire (GHQ-12) in Ukrainian refugees: translation and validation study of the Ukrainian version Health Qual. Life Outcomes (IF 3.6) Pub Date : 2024-01-13 Roberto Benoni, Anna Sartorello, Mariangela Mazzi, Loretta Berti, Marina Sorina, Elena Paiola, Giovanna Varischi, Stefano Tardivo, Michela Rimondini, Francesca Moretti
Following the Russian-Ukrainian conflict, the well-being of millions of Ukrainians has been jeopardised. This study aims to translate and test the psychometric features of the Ukrainian version of the General Health Questionnaire 12 (GHQ-12). The study included Ukrainian refugees housed in Verona (Italy) between November/2022 and February/2023. The Ukrainian translation was obtained through a ‘forward-backward’
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Evaluating conceptual model measurement and psychometric properties of Oral health-related quality of life instruments available for older adults: a systematic review Health Qual. Life Outcomes (IF 3.6) Pub Date : 2024-01-13 Naira Figueiredo Deana, Yolanda Pardo, Montse Ferrer, Gerardo Espinoza-Espinoza, Olatz Garin, Patricia Muñoz-Millán, Claudia Atala-Acevedo, Àngels Pont, Margarita Cancino, Carlos Zaror
Older adults present a variety of oral diseases and conditions, in addition to co-morbidities and limited access to dental care, which significantly impact their oral health-related quality of life (OHRQoL). There are many instruments published to measure OHRQoL. However, it is challenging for clinicians and researchers to choose the best instrument for a given purpose. To identify OHRQoL instruments
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Exploring older people’s understanding of the QOL-ACC, a new preference-based quality-of-life measure, for quality assessment and economic evaluation in aged care: the impact of cognitive impairment and dementia Health Qual. Life Outcomes (IF 3.6) Pub Date : 2024-01-07 Kiri Lay, Matthew Crocker, Lidia Engel, Julie Ratcliffe, Rachel Milte, Claire Hutchinson
Quality-of-life is an essential outcome for quality assessment and economic evaluation in health and social care. The-Quality-of-Life – Aged Care Consumers (QOL-ACC) is a new preference-based quality-of-life measure, psychometrically validated with older people in aged care. More evidence is needed to inform the self-report reliability of the QOL-ACC in older people with varying levels of cognitive
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Quality of life among people with eye cancer: a systematic review from 2012 to 2022 Health Qual. Life Outcomes (IF 3.6) Pub Date : 2024-01-07 Yonghui Huang, Yunfei Guo
Eye cancer is a serious eye disease that threatens patients’ lives. In the past decade, there have been more and more studies on eye cancer. From the recently published eye cancer literature review, it can be seen that the two most popular research hotspots are retinoblastoma (RB) and uveal melanoma (UM) [1, 2]. Although several studies have assessed QOL in different types of eye cancer patients, a
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Health-related quality of life in primary care patients: a comparison between EQ-5D-5L utility score and EQ-visual analogue scale Health Qual. Life Outcomes (IF 3.6) Pub Date : 2024-01-03 Richard Huan Xu, Ruiqi Sun, Lidan Tian, Annie Wai-ling Cheung, Eliza Laiyi Wong
The EQ-VAS is an important component of the EQ-5D questionnaire. However, there is limited evidence comparing its performance to the EQ-5D utility score, which restricts its use in the population. This study aimed to EQ-5D-5L utility score and EQ-visual analogue scale (EQ-VAS) in primary care patients in Hong Kong (HK). Secondary data analysis was performed on the data collected from a cross-sectional
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Health-related quality of life and experience measures, to assess patients’ experiences of peripheral intravenous catheters: a secondary data analysis Health Qual. Life Outcomes (IF 3.6) Pub Date : 2024-01-02 Emily N. Larsen, Nicole Marsh, Claire M. Rickard, Gabor Mihala, Rachel M. Walker, Joshua Byrnes
Peripheral intravenous catheters (PIVCs) are essential for successful administration of intravenous treatments. However, insertion failure and PIVC complications are common and negatively impact patients’ health-outcomes and experiences. We aimed to assess whether generic (not condition-specific) quality of life and experience measures were suitable for assessing outcomes and experiences of patients
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Psychometric evaluation of the Spanish version of the Pediatric Quality of Life Eosinophilic Esophagitis Questionnaire (Peds QL-EoE Module ™) Health Qual. Life Outcomes (IF 3.6) Pub Date : 2023-12-13 Ruth Garcia – Martinez de Bartolomé, Josefa Barrio-Torres, MLuz Cilleruelo- Pascual, Juan José Rodríguez-Soler, Ángel Gil-de Miguel, Tomás Sebastián-Viana
The Paediatric Eosinophilic Oesophagitis Module (PedsQL-EoE) was developed in English as a valid and reliable questionnaire to assess health-related quality of life (HRQoL) in children with EoE. The aim of this study was to evaluate the validity and reliability of the PedsQL-EoE that was previously adapted to Spanish by our group. This cross-sectional multicentre study was conducted in 36 paediatric
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QALYs and rare diseases: exploring the responsiveness of SF-6D, EQ-5D-5L and AQoL-8D following genomic testing for childhood and adult-onset rare genetic conditions in Australia Health Qual. Life Outcomes (IF 3.6) Pub Date : 2023-12-12 Tianxin Pan, You Wu, James Buchanan, Ilias Goranitis
Genomic testing transforms the diagnosis and management of rare conditions. However, uncertainty exists on how to best measure genomic outcomes for informing healthcare priorities. Using the HTA-preferred method should be the starting point to improve the evidence-base. This study explores the responsiveness of SF-6D, EQ-5D-5L and AQoL-8D following genomic testing across childhood and adult-onset genetic
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Cross-cultural adaptation and validation of the Chinese version of the Malocclusion Impact Scale for Early Childhood (MIS-EC/C) Health Qual. Life Outcomes (IF 3.6) Pub Date : 2023-12-10 Qiao Chen
The Malocclusion Impact Scale for Early Childhood (MIS-EC) is a newly developed questionnaire used to measure the parental perceptions of the impact of malocclusion on oral health-related quality of life (OHRQoL) of preschool children aged 3–5 years. This study describes the cross-cultural adaptation and validation of the MIS-EC questionnaire into Chinese version (MIS-EC/C). The MIS-EC/C was developed
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Psychosocial factors, dentist-patient relationships, and oral health-related quality of life: a structural equation modelling Health Qual. Life Outcomes (IF 3.6) Pub Date : 2023-12-04 Youngha Song, Liana Luzzi, David Brennan
Psychosocial factors and dentist-patient relationships (DPR) have been suggested to be associated with oral health outcomes. This study aimed to test a conceptual model which hypothesised relationships among psychosocial factors, DPR variables, and oral health-related quality of life (OHRQoL) in the ‘distal-to-proximal’ framework. A total of 12,245 adults aged 18 years or over living in South Australia
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Determining the optimal cut-off scores for the Chinese version of the Memorial Anxiety Scale for Prostate Cancer (MAX-PC) Health Qual. Life Outcomes (IF 3.6) Pub Date : 2023-12-01 Qingmei Huang, Ping Jiang, Yuanqi Ding, Yaning Zheng, Li Zheng, Jie Luo, Yun Dai, Fulei Wu, Wei Wang
Anxiety is a common emotion experienced by patients with prostate cancer (PCa), and can be exacerbated by testing the prostate-specific antigen (PSA) index. The Memorial Anxiety Scale for Prostate Cancer (MAX-PC) was developed to assess the cancer-specific anxiety of these patients, but lack of appropriate thresholds for this scale limits its use. This study aimed to utilize ROC curve analysis to identify
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Development and validation of the systemic lupus erythematous scale amongst the system of quality of life instruments for chronic diseases QLICD-SLE (V2.0) Health Qual. Life Outcomes (IF 3.6) Pub Date : 2023-11-29 Yuxi Liu, Jiaqi Zhang, Honghong Xue, Mingyang Chen, Tong Xie, Chonghua Wan
The present study is aimed to develop and validate a quality of life scale for systemic lupus erythematosus (SLE) patients with Chinese cultural background, QLICD-SLE (V2.0). The QLICD-SLE (V2.0) was developed using a systematic approach that involved focus groups, nominal discussions, and pilot testing. A total of 428 SLE patients participated in the scale's assessment. Validity was examined through
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Cross-cultural adaptation, validation and psychometric evaluation of the International Hip Outcome Tool 12 (iHOT12) to Hebrew Health Qual. Life Outcomes (IF 3.6) Pub Date : 2023-11-21 Yael Steinfeld-Mass, Noa Ben-Ami, Itamar Botser, David Morgenstern, Aharon S. Finestone
The “International Hip Outcome Tool 12” (iHOT12) is a self-administered patient-reported outcome tool for measuring health-related quality of life and physical functioning in young and active patients with hip pathology. Since the iHOT12 has become widely used, we sought to translate and validate it for Hebrew-speaking populations. The aims of this study were: (1) To translate and culturally adapt
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Psychometric evaluation of the PROMIS SD-SF-8b instrument in individuals experiencing vasomotor symptoms due to menopause Health Qual. Life Outcomes (IF 3.6) Pub Date : 2023-11-21 Neil M. Schultz, Antonia Morga, Emad Siddiqui, Stephanie E. Rhoten
Women with vasomotor symptoms (VMS) due to menopause frequently experience poor sleep quality. The Patient-Reported Outcomes Measurement Information System Sleep Disturbance – Short Form 8b (PROMIS SD-SF-8b) has been developed to assess sleep disturbance. The study objective was to use data from the fezolinetant SKYLIGHT 1 and 2 studies in individuals with VMS to assess the psychometric properties
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The use of EQ-5D-5L as a patient-reported outcome measure in evaluating community rehabilitation services in Alberta, Canada Health Qual. Life Outcomes (IF 3.6) Pub Date : 2023-11-17 Hilary Short, Fatima Al Sayah, Katie Churchill, Eileen Keogh, Lisa Warner, Arto Ohinmaa, Jeffrey A. Johnson
The purpose of this study was to describe the characteristics and health-related quality of life (HRQL) of patients accessing community rehabilitation services in Alberta, Canada, using routinely collected EQ-5D-5L data, and explore factors associated with the impact of these services. A retrospective, longitudinal, observational design was used. Patients completed the EQ-5D-5L and demographic questions
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Development and psychometric evaluation of item banks for memory and attention – supplements to the EORTC CAT Core instrument Health Qual. Life Outcomes (IF 3.6) Pub Date : 2023-11-15 AA Rogge, MA Petersen, NK Aaronson, T Conroy, L Dirven, F Fischer, EJJ Habets, JC Reijneveld, M Rose, C Sleurs, M Taphoorn, KA Tomaszewski, H Vachon, T Young, M Groenvold
Cancer patients may experience a decrease in cognitive functioning before, during and after cancer treatment. So far, the Quality of Life Group of the European Organisation for Research and Treatment of Cancer (EORTC QLG) developed an item bank to assess self-reported memory and attention within a single, cognitive functioning scale (CF) using computerized adaptive testing (EORTC CAT Core CF item bank)
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Measurement properties of the EQ-5D-5L and PROPr in patients with spinal muscular atrophy Health Qual. Life Outcomes (IF 3.6) Pub Date : 2023-11-15 Richard Huan Xu, Bin Ma, Huanping Xin, Huanyu Zhang, Yan Zeng, Nan Luo, Dong Dong
Spinal muscular atrophy (SMA) is a rare monogenic neuromuscular disorder caused by loss of function mutations. Measuring health-related quality of life to support economic evaluations in this population is encouraged. However, empirical evidence on the performance of preference-based measures (PBMs) in individuals with SMA is limited. This study aimed to assess the psychometric properties of the EQ-5D-5L
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Prediction of the SF-6D utility score from Lung cancer FACT-L: a mapping study in China Health Qual. Life Outcomes (IF 3.6) Pub Date : 2023-11-14 Qing Yang, Long Lin Jiang, Yin Feng Li, Deyu Huang
To develop a mapping algorithm for generating the Short Form Six-Dimension (SF-6D) utility score based on the Functional Assessment of Cancer Therapy-Lung (FACT-L) of lung cancer patients. Data were collected from 625 lung cancer patients in mainland China. The Spearman rank correlation coefficient and principal component analysis were used to evaluate the conceptual overlap between the FACT-L and
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Measurement invariance and adapted preferences: evidence for the ICECAP-A and WeRFree instruments Health Qual. Life Outcomes (IF 3.6) Pub Date : 2023-11-10 Jasper Ubels, Michael Schlander
Self-report instruments are used to evaluate the effect of interventions. However, individuals adapt to adversity. This could result in individuals reporting higher levels of well-being than one would expect. It is possible to test for the influence of adapted preferences on instrument responses using measurement invariance testing. This study conducts such a test with the Wellbeing Related option-Freedom
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A cross-sectional study of the relationship between injuries and quality of life, psychological distress, sleeping problems, and global subjective health in adults from three Norwegian counties Health Qual. Life Outcomes (IF 3.6) Pub Date : 2023-11-03 Leif Edvard Aarø, Eyvind Ohm, Jens Christoffer Skogen, Thomas Nilsen, Marit Knapstad, Øystein Vedaa, Ragnhild Bang Nes, Benjamin Clarsen, Knut-Inge Klepp
Studies examining associations between injuries and outcomes like quality of life and psychological distress are important to understand a broader range of possible consequences of injuries for population health. The aim of this study was to examine associations between self-reported injury and quality of life, psychological distress, sleeping problems, and global subjective health. The sample was
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Association between healthy lifestyle factors and health-related quality of life among Chinese adolescents: the moderating role of gender Health Qual. Life Outcomes (IF 3.6) Pub Date : 2023-10-31 Hongyu Xiang, Xiuqiong Feng, Li Lin, Shengyu Luo, Xinxia Liu, Dezhong Chen, Kang Qin, Xun Guo, Weiqing Chen, Vivian Yawei Guo
To examine the associations of the independent and combined healthy lifestyle factors with health-related quality of life (HRQOL) in adolescents, and to test the moderating role of gender. This cross-sectional study included 5125 adolescents aged between 11 and 20 years. They provided self-reported data on six healthy lifestyle factors, including never smoking, never drinking, good sleep quality, sufficient
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Comparison of the measurement properties of the EQ-5D-5L and SF-6Dv2 among overweight and obesity populations in China Health Qual. Life Outcomes (IF 3.6) Pub Date : 2023-10-31 Shitong Xie, Meixuan Li, Dingyao Wang, Tianqi Hong, Weihua Guo, Jing Wu
To evaluate and compare the measurement properties of the EQ-5D-5L and SF-6Dv2 among Chinese overweight and obesity populations. A representative sample of Chinese overweight and obesity populations was recruited stratified by age, gender, body mass index (BMI), and area of residence. Social-demographic characteristics and self-reported EQ-5D-5L and SF-6Dv2 responses were collected through the online
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Comparisons of EQ-5D-Y and PedsQL in pediatric patients with mild-to-moderate chronic kidney disease in longitudinal analyses Health Qual. Life Outcomes (IF 3.6) Pub Date : 2023-10-27 Chien-Ning Hsu, You-Lin Tain, Pei-Chen Lu, Hsiang-Wen Lin
To characterize longitudinal changes and correlations between the measures of EQ-5D-Y and generic PedsQL and their associations with clinical changes in children and adolescents with mild-to-moderate chronic kidney disease (CKD). Participants were recruited from January 2017 to September 2021 in a medical center in Taiwan. Both instruments were administered in their initial visits and every 6-month
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Profiles of quality of life among patients using emergency departments for mental health reasons Health Qual. Life Outcomes (IF 3.6) Pub Date : 2023-10-26 Marie-Josée Fleury, Zhirong Cao, Guy Grenier, Francine Ferland
This study identified profiles associated with quality of life (QoL) and sociodemographic and clinical characteristics of patients using emergency departments (ED) for mental health reasons and associated these profiles with patient service use. Recruited in four Quebec (Canada) ED networks, 299 patients with mental disorders (MD) were surveyed from March 1st, 2021, to May 13th, 2022. Data from medical
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Socioeconomic status and health-related quality of life after stroke: a systematic review and meta-analysis Health Qual. Life Outcomes (IF 3.6) Pub Date : 2023-10-25 Yichao A. Sun, Serah Kalpakavadi, Sarah Prior, Amanda G. Thrift, Suzanne Waddingham, Hoang Phan, Seana L. Gall
Socioeconomic status (SES) is associated with stroke occurrence and survival following stroke but its association with health-related quality of life (HRQoL) following stroke remains uncertain. We performed a systematic review and meta-analysis to examine the association between SES and HRQoL after stroke. PubMed, SCOPUS, EMBASE, and Web of Science were searched to identify relevant cohort and case–control
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Impact of walk advice alone or in combination with supervised or home-based structured exercise on patient-reported physical function and generic and disease-specific health related quality of life in patients with intermittent claudication, a secondary analysis in a randomized clinical trial Health Qual. Life Outcomes (IF 3.6) Pub Date : 2023-10-23 Anna Sandberg, Maria Bäck, Åsa Cider, Lennart Jivegård, Birgitta Sigvant, Joakim Nordanstig
Supervised exercise is an integral part of the recommended first-line treatment for patients with intermittent claudication (IC). By reflecting the patients’ perspectives, patient-reported outcome measurements provide additional knowledge to the biomedical endpoints and are important outcomes to include when evaluating exercise interventions in patients with IC. We aimed to evaluate the one-year impact
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Cross-walk of the Chronic Liver Disease Questionnaire for Nonalcoholic Steatohepatitis (CLDQ-NASH) and the EuroQol EQ-5D-5L in patients with NASH Health Qual. Life Outcomes (IF 3.6) Pub Date : 2023-10-14 Jesse Fishman, Victoria Higgins, James Piercy, James Pike
Nonalcoholic steatohepatitis (NASH) is a chronic progression of nonalcoholic fatty liver disease, which can negatively impact the health-related quality of life (HRQoL) of affected individuals. HRQoL in NASH has been assessed using the disease-specific Chronic Liver Disease Questionnaire for NASH (CLDQ-NASH) and the generic EuroQol EQ-5D-5L. As the performance of these instruments relative to each
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Impact of interventions on the quality of life of cancer patients: a systematic review and meta-analysis of longitudinal research Health Qual. Life Outcomes (IF 3.6) Pub Date : 2023-10-11 Long Bao Nguyen, Linh Gia Vu, Thanh Thien Le, Xuan Thanh Nguyen, Nam Gia Dao, Duy Cao Nguyen, Trang Huyen Thi Dang, Thuc Minh Thi Vu, Laurent Boyer, Guillaume Fond, Pascal Auquier, Carl A. Latkin, Melvyn W.B. Zhang, Roger C.M. Ho, Cyrus S.H. Ho
The impact of cancer interventions has been conducted in several research due to the significant burden of this non-communicable disease. The interventions that played an important role in the improvement of the patient’s quality of life (QoL) and health-related quality of life (HRQL) can be classified into two main groups: pharmaceutical and non-pharmacological methods. However, studies so far often
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Inclusion body myositis—health-related quality of life and care situation during phases of the “patience journey” in Germany: results from a qualitative study Health Qual. Life Outcomes (IF 3.6) Pub Date : 2023-10-10 Katja C. Senn, Simone Thiele, Laura Gumbert, Sabine Krause, Maggie C. Walter, Klaus H. Nagels
To understand the health-related quality of life (HRQoL) in inclusion body myositis (IBM) from a holistic perspective on the background of a complex care situation. The focus was on how the patient journey may be structured over the course of this rare disease. An exploratory qualitative study was performed via in-depth semi-structured interviews. Seven patients (males n = 5) with 2011 European Neuromuscular
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Translation and validation of the multiple sclerosis walking scale 12 for the German population – the MSWS-12/D Health Qual. Life Outcomes (IF 3.6) Pub Date : 2023-10-09 Anna Chorschew, Firat Kesgin, Judith Bellmann-Strobl, Peter Flachenecker, Insa Schiffmann, Friederike Rosenthal, Patrick Althoff, Daniel Drebinger, Radina Arsenova, Ludwig Rasche, Eva-Maria Dorsch, Christoph Heesen, Friedemann Paul, Jan-Patrick Stellmann, Tanja Schmitz-Hübsch
Gait impairment is a relevant problem in persons with multiple sclerosis (pwMS). The Multiple Sclerosis Walking Scale 12 (MSWS-12) is a valid Patient Reported Outcome Measure (PROM) to evaluate walking ability in pwMS. The aim of this study was to provide a linguistically valid translation of MSWS-12 into German language (MSWS-12/D) and to evaluate its psychometric properties. The MSWS-12 was translated
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Correction: Psychometric assessment of scales for measuring loneliness and social isolation: an analysis of the household, income and labour dynamics in Australia (HILDA) survey Health Qual. Life Outcomes (IF 3.6) Pub Date : 2023-09-29 Karine E. Manera, Ben J. Smith, Katherine B. Owen, Philayrath Phongsavan, Michelle H. Lim
Health and Quality of Life Outcomes (2022) 20:40 https://doi.org/10.1186/s12955-022-01946-6 The original article [1] contains two errors in the following two sentences in the Results section, specifically for the phrases ‘greater than 4’: ‘The threshold for classification of loneliness was determined to be a median item score of less than 4, and for social isolation a median item score of greater than
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Item response theory-based psychometric analysis of the Short Warwick-Edinburgh Mental Well-Being Scale (SWEMWBS) among adolescents in the UK Health Qual. Life Outcomes (IF 3.6) Pub Date : 2023-09-29 Radka Hanzlová, Peter Lynn
Middle and late adolescence is the period in a person's life that is most vulnerable to mental health problems. To enable an evidence base that can support policies to prevent such problems, it is crucial to have good quality, reliable, and accurate measurement tools for mental well-being. One of them is the Short Warwick-Edinburgh Mental Well-Being Scale (SWEMWBS). This study aimed to test the psychometric
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Scale agreement, ceiling and floor effects, construct validity, and relative efficiency of the PROPr and EQ-5D-3L in low back pain patients Health Qual. Life Outcomes (IF 3.6) Pub Date : 2023-09-27 Christoph Paul Klapproth, Felix Fischer, Matthias Rose
The PROMIS Preference score (PROPr) is a new health state utility (HSU) score that aims to comprehensively incorporate the biopsychosocial model of health and apply favorable psychometric properties from the descriptive PROMIS system to HSU measurements. However, minimal evidence concerning comparisons to the EQ-5D-3L and the PROPr’s capability to differentiate clinical severity are available. Therefore
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Evaluation of a peer intervention project in the hospital setting to improve the health-related quality of life of recently diagnosed people with HIV infection Health Qual. Life Outcomes (IF 3.6) Pub Date : 2023-09-13 M. J. Fuster-RuizdeApodaca, D. Pérez-Garín, V. Baceiredo, A. Laguía, J. García Carrillo, R. García, D. García
This study aims to assess the impact of a peer intervention programme in the hospital setting to improve the health-related quality of life (HRQoL) of people recently diagnosed with HIV infection. A quasi-experimental single-group study with pre- and post-measurements was conducted. The peer intervention programme consisted of four sessions that took place at the following times: (1) the day of diagnosis
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A comparison of brief versus explicit descriptors for verbal rating scales: interrupted time series design Health Qual. Life Outcomes (IF 3.6) Pub Date : 2023-09-13 Andrew J. Vickers, Melissa Assel, Michael Hannon, Priyanka Desai, Sigrid V. Carlsson, Taylor McCready, Jennifer Cracchiolo, Brett Simon
Verbal rating scales (VRS) are widely used in patient-reported outcome (PRO) measures. At our institution, patients complete an online instrument using VRSs with a five-point brief response scale to assess symptoms as part of routine follow-up after ambulatory cancer surgery. We received feedback from patients that the brief VRS descriptors such as “mild” or “somewhat” were vague. We added explicit
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A bifactor model supports unidimensionality of the International Knee Documentation Committee Subjective Knee Form in young active patients with anterior cruciate ligament tears: a retrospective analysis of a randomized controlled trial Health Qual. Life Outcomes (IF 3.6) Pub Date : 2023-09-12 Hana Marmura, Paul F. Tremblay, Alan M. J. Getgood, Dianne M. Bryant
The International Knee Documentation Committee Subjective Knee Form (IKDC) is the most highly recommended patient reported outcome measure for assessing patients with anterior cruciate ligament (ACL) injuries and those undergoing ACL reconstruction (ACLR) surgery. The IKDC was developed as a unidimensional instrument for a variety of knee conditions. Structural validity, which determines how an instrument
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Assessment of retrospective collection of EQ-5D-5L in a US COVID-19 population Health Qual. Life Outcomes (IF 3.6) Pub Date : 2023-09-08 Xiaowu Sun, Manuela Di Fusco, Laura Puzniak, Henriette Coetzer, Joann M. Zamparo, Ying P. Tabak, Joseph C. Cappelleri
It is imperative to evaluate health related quality of life (HRQoL) pre-COVID-19, but there is currently no evidence of the retrospective application of the EuroQol 5-Dimension, 5 level version (EQ-5D-5L) for COVID-19 studies. Symptomatic patients with SARS-CoV-2 at CVS Health US test sites were recruited between 01/31/2022-04/30/2022. Consented participants completed the EQ-5D-5L questionnaire twice:
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Impact of oral conditions on oral health-related quality of life among Indians- a systematic review and Meta-analysis Health Qual. Life Outcomes (IF 3.6) Pub Date : 2023-08-31 Anju James, Chandrashekar Janakiram, R. V. Meghana, Vijay S. Kumar , Anitha R. Sagarkar, Yuvraj B. Y.
This review assessed the impact of oral conditions on Oral Health Related Quality of Life among Indians. Databases, including PubMed and Scopus, CINAHL, Web of Science, PsycInfo were systematically searched for English Language studies conducted among Indians up to July 2022. Two independent reviewers assessed studies selected for retrieval for methodological quality using standardised quality assessment
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Modified-Malay Eating Behavior and Pattern Questionnaire (Malay-EBPQ): translation and validation among Malaysian women Health Qual. Life Outcomes (IF 3.6) Pub Date : 2023-08-29 Premaa Supramaniam, Siti Hajar Ismail, Aisyah Ali, E- Li Leong, Prema Muninathan, Tassha Hilda Adnan, Sarala Paramesvaran
Eating behavior primarily depends on eating patterns which are largely influenced by interactions between physiology, environment, psychology, culture and socio-economic status. This study was designed to translate and validate the Eating Behavior Pattern Questionnaire (EBPQ) among Malaysian women. A cross-sectional study involving translation and validation of the English version of EBPQ. The original
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Health-related quality of life in Chinese individuals with type 2 diabetes mellitus: a multicenter cross-sectional study Health Qual. Life Outcomes (IF 3.6) Pub Date : 2023-08-26 Zihuan Zeng, Xingli Wang, Yanhan Chen, Hengyu Zhou, Wenfen Zhu, Xiu Xiong, Jiao Tang, Qinghua Zhao
Type 2 diabetes mellitus (T2DM) is a chronic and life-threatening disease. Health-related quality of life (HRQoL) is vital for individuals with T2DM. However, little is known about the impact of psychological stability factors on HRQoL among individuals with T2DM in mainland China. This multicenter cross-sectional study was conducted in five tertiary grade-A hospitals in Chongqing, China, from January