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“Diabetes is really simple on paper, but really complicated when you actually have it”: Understanding the daily stressors of adolescents living with Type 1 diabetes J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2024-02-07 Kaitlyn Rechenberg, Carley Geiss, Rebecca Koerner, Nicole Ríos, Usha Menon
This study aims to explore the daily stressors experienced by adolescents with Type 1 diabetes (T1D) and the perceived impact of those stressors on their self-management and psychological well-being.
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Supporting data driven translational patient-centered care using network analysis to visualize symptom distress in children with serious illness J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2024-01-22 Shannon Ford, Jacqueline Vaughn, Arvind Subramaniam, Abhinav Gundala, Elizabeth Hensley, Nirmish Shah
There are an increasing number of techniques and tools to improve the capacity for children to relay their perceptions of their symptom experience while undergoing blood and marrow transplant (BMT). Network analysis (NA) is a tool that can illustrate associations between symptoms and the distress they cause. We aimed to develop a biopsychosocial assessment clinical analytic tool to examine symptom
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Newborn and infant vision screening in primary care: A clinical review J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2024-01-16 Clare O. Stocks, Rebecca A. Carson
Newborn and infant vision screening is an essential component of the health promotion visit, where the provider screens for ocular risk factors and abnormalities that may cause future impairment or vision loss. Providers may underestimate the importance of screening or find neonatal vision assessments difficult due to poor patient cooperation or time-consuming exams, but the reversibility of vision
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Comparing novel virtual reality and nursing standard care on burn wound care pain in adolescents: A randomized controlled trial J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2023-12-14 Debra A. Jeffs, Beverly J. Spray, Lauren Baxley, Eric Braden, Amber Files, Elizabeth Marrero, Tiffany Teague, Esther Teo, Miranda Yelvington
This study compared the effectiveness of age-appropriate, high technology, interactive virtual reality (VR) distraction with standard care (SC) provided by the nurse on adolescents' acute procedural pain intensity perception during burn wound care treatment in the ambulatory clinic setting.
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Metabolic syndrome risk among adolescents in the Deep South and the relationships with behavioral health, food insecurity, and physical activity J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2023-12-14 Angela A. Duck, Masoumeh Karimi, LaDaryl L. Watkins, Joseph W. Tacy, Christy L. Savell, Katherine C. Hall
A combination of physical and psychosocial risk factors put adolescents at risk for poor cardiometabolic health and chronic disease burden, often recognized as metabolic syndrome. The purposes of this study were to (1) identify the prevalence of metabolic syndrome risk among adolescents, utilizing the metabolic syndrome severity index, and (2) determine the relationship between metabolic syndrome risk
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A quest for an integrated management system of children following a drowning incident: A review of the literature J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2023-12-04 Seugnette Rossouw, Carin Maree, Jos M. Latour
Management of children following a drowning incident is based on specific interventions which are used in the prehospital environment, the emergency department (ED) and the Paediatric Intensive Care Unit (PICU). This paper presents a review of the literature to map and describe the management and interventions used by healthcare professionals when managing a child following a drowning incident. Of
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Placement of peripherally inserted central catheter through upper versus lower limb vein in neonates: A meta-analysis of randomized controlled trials J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2023-11-21 Xuetang Zhao, Yingfei Liu, Xiaoyan Li, Li Wei, Lanzheng Bian, Mingqi Peng
Peripherally inserted central catheter (PICC) is an important treatment for the drug and nutrition administration in neonates. We aimed to evaluate the effects and safety of PICC placement through upper versus lower limb vein in neonates, to provide insights into the clinical PICC nursing care.
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The effect of auditory stimuli on the pain and physiological parameters of children on mechanical ventilation during aspiration procedure: A randomized controlled trial J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2023-09-14 Kübra Demir, Dilek Konuk Şener
The study was conducted to determine the effect of mother's voice and music sound on pain and physiological parameters during aspiration procedure in children with mechanical ventilation support in the pediatric intensive care unit.
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Health care transition planning for adolescents and emerging adults with intellectual disabilities and developmental disabilities: Distinctions and challenges J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2023-06-28 Cecily L. Betz
The purpose of this article is to provide the reader with insight and enhanced understanding of the health care transition planning process for adolescents and emerging adults with intellectual disabilities and developmental disabilities. There are distinctly different programmatic considerations that need to be addressed in advancing their transfer of care to adult providers and promoting their transition
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Certified Child Life Specialist role in implementation of individualized coping plans for children receiving botulinum toxin injections J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2023-06-24 Brittany Mikuluk, Parishma Guttoo, Avery Anderson, Micah Skeens
The purpose of this paper is to describe the implementation of evidence-based, individualized coping plans and to compare the rates of child anxiety, child cooperation, and parent anxiety before and after implementation of these coping plans for children receiving recurring BoNT-A injections emphasizing the role of Certified Child Life Specialists (CCLSs) within the interdisciplinary team approach
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Incidence and factors associated with delirium in critically ill patients under 5 years old J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2023-06-23 Ángela M. Henao-Castaño, Claudia Lorena Motta-Robayo, Ingrid Tatiana Rojas-Ruiz
To determine the incidence and factors related to the presence of Delirium in children under 5 years of age hospitalized in the pediatric intensive care unit (PICU).
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Transition of care in adolescents with chronic disease: A concept analysis J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2023-06-22 Abby Seydel
The aim of this concept analysis was to define the concept of transitional care as it applied to adolescents with chronic health conditions as they transfer from pediatric to adult care.
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Validity of simplified self-report methods versus standard use method for pain assessment in preschool-aged children J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2023-06-05 Petra Kasparova, Jane Greaves
Children experience painful invasive procedures very intensely. The aim of health professionals is to help children minimize this traumatic experience. The Simplified Faces Pain Scale (S-FPS) and Simplified Concrete Ordinal Pain Scale (S-COS) tools offer children the possibility of self-assessing their pain. This can then be the basis for tailoring pain relief to the child's individual need. The aim
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Psychometric properties of the European Portuguese version of the Pediatric Quality of Life Inventory™ family impact module J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2023-04-08 Lígia Lima, Sara Lemos, Maria Do Céu Barbieri-Figueiredo, Teresa Martins, Luísa Andrade
This study aims to assess the psychometric properties of the European Portuguese version of the Pediatric Quality of Life Inventory™ Family Impact Module in parents of children/adolescents with chronic health conditions.
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An interdisciplinary telemedicine innovation to enhance pediatric diabetes care in rural communities: A proposed practice initiative J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2023-02-23 Dana E. Stallings, Jean R. Duetsch, Tina S. Gustin, Victoria M. Goode
The COVID-19 pandemic highlighted disparities in healthcare access and outcomes, particularly among individuals with chronic conditions. A positive outcome of the pandemic was an increased use of telehealth and the creation of innovative models of care. In many organizations, nurses became the leaders for these new models. Before this change, pediatric medicine had far fewer telehealth models than
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Adolescents with chronic conditions: Engagement with children's mental health systems during the Covid-19 pandemic J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2023-02-23 Suzanne E. Courtwright, Jacqueline Jones, Amy Barton, Kerry Peterson, Karen Eigen, Jessica Feuerstein, Anil Pawa, Akhil Pawa, Jennifer Northridge, Harpreet Pall
The Covid-19 pandemic contributed to adverse adolescent mental health outcomes globally. Adolescents with chronic conditions have four times the odds of self-harm than peers. Little evidence exists to guide pediatric nurses on how to engage this vulnerable population with mental health support as the pandemic continues. In adults with chronic conditions, positive health assets (health access literacy
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Validation of the withdrawal assessment tool-1 (WAT-1) in pediatric cardiovascular patients on an inpatient unit J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2023-02-20 Sarah McAlister, Jean A. Connor, Shannon Engstrand, Mary C. McLellan
Sedation and analgesia are administered to critically ill patients, which may result in physical dependence and subsequent iatrogenic withdrawal. The Withdrawal Assessment Tool-1 (WAT-1) was developed and validated as an objective measurement of pediatric iatrogenic withdrawal in intensive care units (ICUs), with a WAT-1 score ≥ 3 indicative of withdrawal. This study's objectives were to test interrater
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Exploring the linkage between family financial struggle and children's bullying victimization: Implications for nursing and psychotherapeutic practices J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2022-12-30 Jun Sung Hong, Jungtae Choi, Lisa A. O'Donnell, Dorothy L. Espelage, Maha Albdour, Chi-Fang Wu
A few studies have found that children whose families are economically disadvantaged and financially struggling are at an elevated risk of victimization by their peers. However, extant research is largely descriptive. To address this gap, this study empirically tested the proposed pathways from family financial struggle to children's bullying victimization, including the role of barriers to healthcare
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Sleep changes in Taiwanese first graders before and after school closure during the COVID-19 pandemic J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2022-12-07 Han-Yi Tsai, Wei-Wen Wu, Chia-Chun Tang, Shao-Yu Tsai
The objective of this study was (1) to examine sleep changes in first graders before and after school closure and (2) to examine the association between parental work rearrangement and children's sleep change during the coronavirus disease 2019 (COVID-19) pandemic.
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Application of nursing presence to family-centered care: Supporting nursing practice in pediatric oncology J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2022-12-04 Solomon K. Mcharo, Shelley Spurr, Jill Bally, Shelley Peacock, Lorraine Holtslander, Keith Walker
In pediatric care settings, family-centered care (FCC) is an integral way to ensure family involvement in their child's care and has been known to improve health outcomes and families' psychosocial well-being. Similarly, nursing presence is deemed beneficial in the formation of authentic nurse–patient relationships and is known to facilitate healing and improve satisfaction for the patient and their
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Culture, religion, language and the assessment and management of children's pain by expatriate nurses in Saudi Arabia: A qualitative study J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2022-11-23 Khalaf Alotaibi, Isabel Higgins, Sally Chan
Unrelieved pain among hospitalized children is a common problem that affects all aspects of children's health and their quality of life. Cultural and language differences between nurses and patients have been shown to impact the quality and safety of nursing care and management for children with pain. The aim of this study was to identify the cultural factors, barriers, and facilitators impacting the
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The efficacy of interventions provided by nurses to improve glycemic control of children with type 1 diabetes: A systematic review J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2022-11-13 Elif Bakir, Tufan Aslı Sezer
Nurses have a very important role in diabetes education of children and adolescents, however, no systematic review has been performed that evaluates the effectiveness of the independent interventions of the nurses. This systematic review aims to identify and assess randomized controlled trials (RCT) that included interventions implemented by nurses to improve glycemic control for children and adolescents
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Children's and adolescent's narratives about pain and negative experiences in diabetes treatment J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2022-10-31 Johanna Göthesson, Linnéa Håkansson, Anna Lindholm Olinder, Lena Hanberger, Evalotte Mörelius, Stefan Nilsson, Maria Forsner
Pain and fear associated with needle procedures have been found to be more common among children and adolescents treated for type 1 diabetes (T1D) than among others in their age group. Furthermore, high glycated haemoglobin (HbA1c) values are associated with needle-related fear.
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Intercountry adoption of children with complex health conditions and disabilities: A systematic review J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2022-10-25 Audrey Roach, Eileen Sherburne, Julia Snethen
The rate of children with complex health conditions or disabilities who are intercountry adopted (ICA) is increasing. These children have unique physical, developmental, and psychological needs that must be addressed as they integrate into adoptive families. The purpose of this systematic review is to identify considerations nurses must recognize when caring for children with complex health conditions
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Type 1 diabetes management responsibilities between adolescents with T1D and their parents: An integrative review J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2022-09-18 Pamela Farthing, Jill Bally, Donna C. Rennie, Marie Dietrich Leurer, Lorraine Holtslander, Munier A. Nour
Diabetes self-management for adolescents with type 1 diabetes (T1D) is a complex and multifaceted process that requires careful consideration of a supportive or shared approach to care. The purpose of this review was to synthesize the qualitative and quantitative evidence regarding the nature of adolescent−parent interactions and relationships in the context of T1D management. Of particular interest
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Evaluation of a nausea assessment tool in the pediatric oncology population J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2022-08-20 Christopher T. Donaghey, Cynthia Bowers, Juliann Kiefer
Nausea is a symptom that is often experienced but misunderstood. Its impact is amplified in pediatric oncology patients. Nausea assessments in pediatric oncology are few and not yet widely used. The Baxter Retching Faces (BARF) scale holds promise and is used in some pediatric oncology units. The purpose of this evidence-based practice project was to evaluate the impact of the BARF scale on nursing
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Quality of life of parents of children with Autism Spectrum Disorder: An integrative literature review J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2022-08-20 Dawn Turnage, Norma Conner
This paper presents an integrated literature review of the quality of life (QOL) in parents of individuals with Autism Spectrum Disorder (ASD). The rate of ASD is increasing. Parents of children with ASD have higher levels of stress and burden, which may lead to lower QOL.
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Evidence-based review of chlorhexidine gluconate and iodine in the preoperative skin preparation of young infants J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2022-08-06 Molly Gilmore, Alexandra Cole, Michele DeGrazia
The preoperative preparation of young infants' skin requires special considerations. Commonly used solutions for preparing the skin preoperatively include chlorhexidine (CHG) and iodine. The Centers for Disease Control and Prevention (CDC) has recommendations for preparing skin for surgery and other invasive procedures for adults, but they do not have recommendations for young infants' skin. The purpose
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Nurse consultant to day/child care centers J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2022-07-23 Celeste M. Schultz, Robin A. Johnson
Approximately 23.2 million children in the United States attend day care; however, many of these children often lack access to health care. Given the potential for advanced practice nurses to address this gap in health care, the authors sought to gain a better understanding of healthcare consulting provided by nurses to day/child care centers. The purpose of this scoping review is to examine the extent
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Effects of kangaroo care on pain relief in premature infants during painful procedures: A meta-analysis J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2022-07-20 Fang Wang, Qing Zhang, Zhi Hong Ni, Hai Tao Lv
This study aimed to evaluate effects of kangaroo care on pain relief in premature infants during painful procedures.
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A cluster analysis to explore the burden of primary caregivers of children with cancer in Oman J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2022-06-21 Moon Fai Chan, Amal Mohammed Al-Dhawyani, Karima Al Hinai, Mohammed Al-Azri
Few studies have sought to evaluate the risk burden of primary caregivers, particularly in Oman. This study aimed to explore whether different risk patterns of caregiver burden exist among the primary caregivers of Omani children with leukemia.
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Caring for nontraditional families: Kinship, foster, and adoptive J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2022-06-14 Karen J. Foli, Brigit VanGraafeiland, Julia A. Snethen, Cindy Smith Greenberg
Information about nontraditional (kinship, foster, and adoptive) families is typically scattered or overlooked both in nursing education and nursing practice settings. Using a nursing-centric, population-focused lens, the current state of nontraditional families in the United States is briefly described. An overview of the challenges and psychological dynamics involved when a nonbiological parent assumes
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Care coordination for children with medical complexity and caregiver empowerment in the process: A literature review J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2022-06-07 Julie Van Orne
Advances in health care have led to an increase in infants and children being discharged home with increasingly complex conditions. Children with medical complexity require care from many physicians and specialties to thrive in their home environment. While some care coordination programs are in place, these programs are often dependent upon the child living within the geographic area of a major healthcare
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Translation and linguistic validation of the DISABKIDS chronic generic module into simplified Chinese (DCGM-37) for use among children with cancer J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2022-04-12 Hasan Alelayan, Lizhu Liang, Rui Ye, Nasser Aldosari, Xiaoyan Liao
To develop a simplified Chinese version of the DISABKIDS chronic generic module-37 (DCGM-37), and to test the translated measures in children with cancer by employing a cognitive interviewing technique.
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Translation and linguistic validation of the DISABKIDS chronic generic module into simplified Chinese (DCGM-37) for use among children with cancer. J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2022-04-12 Hasan Alelayan,Lizhu Liang,Rui Ye,Nasser Aldosari,Xiaoyan Liao
PURPOSE To develop a simplified Chinese version of the DISABKIDS chronic generic module-37 (DCGM-37), and to test the translated measures in children with cancer by employing a cognitive interviewing technique. DESIGN AND METHODS The English version of DCGM-37 was translated forward and backward into simplified Chinese by bilingual translators, following the guidelines from its copyright holders, which
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Health care transition planning: A potpourri of perspectives from nurses J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2022-04-06 Cecily L. Betz, Jennifer E. Mannino, Jennifer A. Disabato, Victoria Marner
Nurses have important roles as members of the healthcare transition (HCT) planning interdisciplinary team. Nursing's scope of practice and framework of care brings a distinctive and complementary approach to this expanding field in pediatric care. It is therefore relevant to better understand the extent to which pediatric nurses are involved with the provision of HCT services and model development
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Acceptability of an interstage home monitoring mobile application for caregivers of children with single ventricle physiology: Toward technology-integrated family management J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2022-04-01 Lisa Blair, Jeffrey Vergales, Leslie Peregoy, Hallie Seegal, Jessica Keim-Malpass
Infants with single ventricle physiology experience numerous vulnerable transitions, and the interstage period for shunt-dependent children represents the time of highest risk for morbidity and mortality. Data exchange, physiological monitoring, and communication between clinicians and caregivers through interstage home monitoring are critical. The purpose of this study is to report on the acceptability
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Acceptability of an interstage home monitoring mobile application for caregivers of children with single ventricle physiology: Toward technology-integrated family management. J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2022-04-01 Lisa Blair,Jeffrey Vergales,Leslie Peregoy,Hallie Seegal,Jessica Keim-Malpass
PURPOSE Infants with single ventricle physiology experience numerous vulnerable transitions, and the interstage period for shunt-dependent children represents the time of highest risk for morbidity and mortality. Data exchange, physiological monitoring, and communication between clinicians and caregivers through interstage home monitoring are critical. The purpose of this study is to report on the
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“Like Any Other Camp”: Experiences and lessons learned from an integrated day camp for children with heart disease J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2022-03-20 Angelica Blais, Patricia E. Longmuir, Raquel Messy, Roland Messy, Lillian Lai
Summer camps for children living with heart disease can have a profound impact on well-being. However, specialized camps often require extensive resources (i.e., 24-h medical staff supervision) and may be located in far remote settings. Integrating children with heart disease into mainstream day camps may address these barriers. The purpose of this study is to describe the experience of attending an
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"Like Any Other Camp": Experiences and lessons learned from an integrated day camp for children with heart disease. J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2022-03-20 Angelica Blais,Patricia E Longmuir,Raquel Messy,Roland Messy,Lillian Lai
PURPOSE Summer camps for children living with heart disease can have a profound impact on well-being. However, specialized camps often require extensive resources (i.e., 24-h medical staff supervision) and may be located in far remote settings. Integrating children with heart disease into mainstream day camps may address these barriers. The purpose of this study is to describe the experience of attending
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“When the surgery was over, I felt like the worst part had passed”: experiences of parents of children with craniosynostosis J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2022-03-09 Anna S. Zerpe, Daniel Nowinski, Mia Ramklint, Caisa Öster
Parents of children scheduled for surgery often experience emotional distress and anxiety. This study aimed to explore parents' experiences of hospital care after their child's craniosynostosis surgery and their perception of support during the year after discharge.
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"When the surgery was over, I felt like the worst part had passed": experiences of parents of children with craniosynostosis. J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2022-03-09 Anna S Zerpe,Daniel Nowinski,Mia Ramklint,Caisa Öster
PURPOSE Parents of children scheduled for surgery often experience emotional distress and anxiety. This study aimed to explore parents' experiences of hospital care after their child's craniosynostosis surgery and their perception of support during the year after discharge. DESIGN AND METHODS A purposive sample of 19 parents of 12 children with nonsyndromic craniosynostosis, who had undergone surgery
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Predictors of parent's knowledge of hospital-based pediatric falls J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2022-02-05 Suzanne Sheppard-Law, Frances Brogan, Frances Usherwood, Paul Hunstead, Danielle-Ritz Shala
This study aimed to validate and to determine the individual characteristics and demographic factors associated with parents’ knowledge of hospital-based pediatric falls and to identify parent populations more likely to report low levels of falls-related knowledge.
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The effect of a shaken baby syndrome prevention program on Turkish mothers' awareness and knowledge: A randomized controlled study J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2022-02-03 Ayla Kaya, Derya Çelik, Emine Efe
This study aimed to develop an evidence-based education program to increase mothers' awareness and knowledge of shaken baby syndrome (SBS) and evaluate program effectiveness.
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Experience of childhood cancer: A narrative inquiry J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2022-01-10 Megalai Thavakugathasalingam, Jasna K. Schwind
To more fully understand the possible impact of childhood cancer on a young person's life through their own story.
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Caregivers' perspectives on the contextual influences within family management for ethnically diverse children with ADHD J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2021-12-27 Cynthia P. Paidipati, Janet A. Deatrick, Ricardo B. Eiraldi, Connie M. Ulrich, Jamil M. Lane, Bridgette M. Brawner
Attention deficit hyperactivity disorder (ADHD) is a common neurodevelopmental disorder affecting over 9% of children in the United States. Family caregivers are often responsible for the management of their child's ADHD. Contextual influences, such as healthcare providers, systems, and resources, are factors contributing to the ease or difficulty of family management. The purpose of this article is
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Impact of emergency management in a simulated home environment for caregivers of children who are tracheostomy dependent J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2021-12-19 Malorie Brooks, Linda Jacobs, Mary Cazzell
Children who are tracheostomy dependent require comprehensive caregiver preparation for safe hospital-to-home transition. Although a structured discharge education program successfully trained caregivers to provide routine daily tracheostomy care, emergency response training was limited, lacking realistic experiences. Initiation of simulated emergency training for caregivers indicated performance confusion
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Dispersion of daily physical activity behaviors in school-age children: A novel approach to measure patterns of physical activity J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2021-12-08 Melissa M. Klamm, Angela A. Duck, Michael A. Welsch, Yonghua Yan, Elisa R. Torres, Breanna Wade, Mary W. Stewart, Jill Clayton, Lei Zhang
The objectives of this paper are (1) to examine patterns of physical activity (PA) and sedentary behavior; (2) to describe development of a method to quantify movement dispersion; and (3) to determine the relationship between variables of movement (i.e., volume, intensity, and dispersion), volume of sedentary behavior, and estimated cardiorespiratory capacity in school-aged children.
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Design and pilot testing of therapeutic clothing for hospitalized children J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2021-12-08 Beth Hawkins, Courtney Ventresco, Meghan Cummings, Kimberly McCaffrey, Andrew J. Willwerth, Elizabeth D. Blume, Christina VanderPluym
The purpose of this paper is to describe the design and pilot program of a parent designed clothing option for hospitalized infants and children and to better understand the importance and effects of hospital clothing on families. Little research has been done on how clothing a hospitalized child impacts the child's quality of life and their parent's perception of care. Research has been limited to
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The impact of illness intrusiveness and overparenting on depressive symptoms in parents of youth with inflammatory bowel disease J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2021-11-22 Marissa N. Baudino, Caroline M. Roberts, Clayton S. Edwards, Kaitlyn L. Gamwell, Jeanne Tung, Noel J. Jacobs, John E. Grunow, John M. Chaney
Inflammatory bowel disease (IBD) management creates significant caregiver demands that can interfere with parents' ability to engage in a number of role functions (i.e., illness intrusiveness) well into their child's adolescence, potentially resulting in excessive or misdirected parenting (i.e., overparenting). Disruptions and limited access to routine and valued activities (e.g., family, work, and
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Sleep disturbance and psychological distress among hospitalized children in India: Parental perceptions on pediatric inpatient experiences J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2021-10-21 Ramya Sampath, Ruma Nayak, Shanthi Gladston, Kala Ebenezer, Shawna S. Mudd, Jessica Peck, Michael J. Brenner, Vinciya Pandian
Investigate parental perceptions of children's sleep disturbance and psychological distress associated with an inpatient stay in a low-resource hospital setting.
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Utilizing high-fidelity simulation to improve newly licensed pediatric intensive care unit nurses' experiences with end-of-life care J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2021-10-02 Maureen M. Hillier, Michele DeGrazia, Sandra Mott, Matthew Taylor, Mary J. Manning, Mary O'Brien, Sara R. Schenkel, Alexandra Cole, Patricia A. Hickey
New pediatric intensive care unit (PICU) nurses face distinct challenges in transitioning from the protected world of academia to postlicensure clinical practice; one of their greatest challenges is how to support children and their caregivers at the end-of-life (EOL). The purpose of this quality improvement project was to create, implement, and assess the efficacy of a high-fidelity EOL simulation
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French translation and preliminary psychometric validation of a skin-to-skin contact instrument for nurses (SSC-F) J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2021-09-27 Marilyn Aita, Gwenaëlle De Clifford Faugère, Geneviève Laporte, Sébastien Colson, Nancy Feeley
To translate and conduct the preliminary psychometric validation of a skin-to-skin contact instrument in French (SSC-F) with a sample of nurses from Quebec and France working in neonatal intensive care units.
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“You Can't Fix Your Brain”: Exploring concussion experiences of children and parents J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2021-09-02 Alyson Campbell, Vickie Plourde, Lisa Hartling, Shannon D. Scott
To explore the experiences, information needs and preferences of children who have had a concussion and their parents who have cared for them.
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Factors in children with a history of neonatal abstinence syndrome at 10 years of age: Evidence from the maternal lifestyle study J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2021-09-01 Jennifer Shearer Miller, Joel G. Anderson
Few studies have addressed the impact of prior prenatal substance exposure and current household environment on neurodevelopmental health in children with a history of neonatal abstinence syndrome (NAS). This study aimed to describe the prenatal exposures, household environment, and neurodevelopmental health at 10 years of age among children with a history of NAS.
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As nurses, are we meeting the unique needs of the intact client? J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2021-08-25 Nadine Wodwaski, Kristen Munyan
Current routine circumcision rates declined indicating a procedure reduction and because of this, nurses will encounter more intact male patients. Best practices are needed to provide appropriate, safe nursing care. The research aim was to understand what American nurses presently know about intact care and if any knowledge deficits exist.
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Feasibility and use of a transition process planning and communication tool among multiple subspecialties within a pediatric health system J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2021-08-11 Siddika S. Mulchan, Katherine A. Hinderer, Jennifer Walsh, Ashley McCool, Jamie Becker
An emerging need to improve health care transition planning has developed worldwide as more youth with special health care needs are surviving to adulthood. Nurses have been instrumental in facilitating transition planning and supporting youth throughout this process. While various transition tools have been developed, health professionals' utilization and perception of these tools have yet to be explored
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Lessons learned in the development of a nurse-led family centered approach to developing a holistic comprehensive clinic and integrative holistic care plan for children with cerebral palsy J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2021-08-09 Lamara Love, Amy Newmeyer, Nancy Ryan-Wenger, Garey Noritz, Micah A. Skeens
Children with cerebral palsy (CP) typically receive care from multiple specialty providers including Developmental Pediatrics, Orthopedics, Physical Medicine, Occupational Therapy, Physical Therapy, Speech Therapy, Clinical Social Work, Clinical Nutrition, Nursing and Orthotists, which often require many individual visits to the hospital annually. The potential for conflicting plans of care is increased
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The health literacy disparity in adolescents with sickle cell disease J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2021-07-29 Elizabeth Perry Caldwell, Erin Killingsworth
There are over 100,000 individuals with sickle cell disease (SCD) in the United States, most of whom are Black, poor, and publically insured. In combination with a chronic illness, these demographics lead to significant barriers to healthcare for patients with SCD, leaving them exceptionally vulnerable within the healthcare system. This unique vulnerability is especially notable when transitioning
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Effects of therapeutic clowning on pain and anxiety during venous blood sampling in Turkey: Randomised controlled trial J. Spec. Pediatr. Nurs. (IF 1.3) Pub Date : 2021-07-03 Fatma Kurudirek, Duygu Arikan, Arzu Sarialioğlu
The research aim was to investigate the effects of therapeutic clowning on pain and fear during the process of venous blood sampling in children.