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The Impact of the COVID-19 Pandemic on the Quality of Life of Children With Cancer. J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2023-11-27 Micah A Skeens,Jessica E Ralph,Anna L Olsavsky,Kimberly Buff,Nilay Shah,Terrah Foster Akard,Cynthia A Gerhardt
Background/objectives: Little is known about the COVID-19 pandemic and its impact on the quality of life (QoL) of children with cancer who may be more vulnerable to the pandemic's effects. We examined associations between COVID-19 exposure and impact on parent-proxy reported QoL in children with cancer, and potential moderation based on the child's cancer status (i.e., time since diagnosis, on/off
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Illness Perceptions, Fear of Cancer Recurrence, and Mental Health in Teenage and Young Adult Cancer Survivors. J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2023-11-13 Michael Horwood,Maria Elizabeth Loades,Urska Kosir,Cara Davis
Background: The Common-Sense Model of illness self-regulation underpins illness-specific cognitions (including both illness perceptions and a fear of cancer recurrence; FCR). There is evidence in adults of associations between FCR, illness perceptions, and mental health in adult cancer survivors. However, there is limited empirical research examining these constructs within the developmentally distinct
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An Expert Evaluation of Oncology Website Resources for Use in Pediatric Oncology Clinical Nursing Education in Low-Resource Settings. J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2023-11-05 Aprille C Banayat,Julia Challinor,Elizabeth Sniderman
Background: Online healthcare information is often used by pediatric oncology nurse educators in low- and middle-income countries (LMICs) for teaching clinical nurses as part of their initial orientation or continuing education. Access to peer-reviewed nursing journals via paid subscriptions or sub-specialty nursing textbooks in these settings is rare. This project identified and evaluated websites
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Implementation of Supportive Care Program to Decrease CLABSI in a Middle East Pediatric Hematology and Oncology Inpatient Unit. J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2023-11-03 Kurt Thompson,Mahdi Shaheen
Background: Central venous catheters (CVCs) support the administration of chemotherapy and other medications, blood products, fluids, and nutrient infusions, and reduce the need for peripheral blood sampling in children with cancer. CVC use is also associated with the risk of central-line-associated bloodstream infection (CLABSI). Despite the implementation of CLABSI care bundles, CLABSI prevention
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Efficacy, Safety, and Pain Level of Subcutaneous Catheter Use for Administration of Granulocyte Colony-Stimulating Factor (G-CSF) in Children With Cancer: A Randomized Pilot Study. J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2023-11-03 Verónica de la Maza,Valeska Fuentes,Elisa Cabrolier,María Soledad Fernández,Sara Saéz,Claudia Concha,Carolina Nicklas,Magdalena Castro,Juan Pablo Torres
Background: The aim of this study was to explore the efficacy, safety, and pain level of granulocyte colony-stimulating factor (G-CSF) administration via a subcutaneous catheter compared with direct injection in children with cancer. Method: This was a pilot randomized controlled trial of standard G-CSF administration versus subcutaneous catheter administration. Children 2-15 years of age who were
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Development and Implementation of Educational Material by Nurses for Parents/Caregivers of Children With Cancer: A Peruvian National Study. J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2023-10-31 Rosmery Hilario,Melitta Cosme,Isela Barzola,Giovanna Bejarano,Annaly Benavente,Gina Sabrera,Edinho Celis,Flor Mirabal,María Del Pilar Huerta,Zulma Carpio,Yuly Quispe,Elizabeth Elera,Kathy Ascue,Maritza Jesús,Ivonne Grados,Nora Allauca,Milagros Escobedo,Sara Muñoz,Lourdes Ruda,María Del Carmen Velandres,María Fernanda Olarte-Sierra,Essy Maradiegue,Claudia Pascual,Liliana Vasquez
Background: Education for parents and caregivers of children with cancer is one of the fundamental roles of nurses to avoid complications, provide quality care, promote adherence to treatment and maintain basic standards of care. This study aimed to design educational material for parents and caregivers of children with cancer in Peru on general information about childhood cancer and its care. Method:
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Current Status of Pediatric Oncology Clinics and Nursing Practices in Turkey. J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2023-10-31 Nurseven Karaman,Pinar Yilmaz
Background: Cancer is a significant health problem in Turkey with pediatric cancer being the fourth leading cause of death among children. Pediatric oncology has been acknowledged as a pediatric subspecialty since 1983, and 3,000 new cases of childhood cancer are expected every year. Method: We describe our country's geography, the number and distribution of pediatric oncology centers, the profile
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Activism, Coping, and Hopefulness Among Parents of Children With Cancer. J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2023-10-26 Alexandra Neenan,Michelle Byrd,Flora Hoodin,Angela D Staples
Background: Coping styles employed by parents of children with cancer have significant implications for parents' and children's well-being. To supplement the minimal literature in this area, activism (participation in activities that serve to benefit children with cancer as a group) was investigated as a potential coping strategy. Method: Parents (N = 67) of children with cancer completed an online
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Care Needs of Parents of Children With Cancer in a Low-Middle-Income Country. J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2023-10-26 Aprille Campos Banayat,Peter James B Abad,Sheila R Bonito,Lydia T Manahan,Arnold B Peralta
Background: Mapping out actual supportive care needs assists nurses in providing holistic individualized care. This study aimed to explore the care needs of parents of children with cancer in the Philippines. Method: Guided by the Supportive Care Needs Framework (SCNF), this study used an embedded mixed-method design with the quantitative revised Cancer Patient Needs Questionnaire and qualitative semistructured
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Predictors of Depressive Symptoms Among Parents of Children With Cancer in Ethiopia. J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2023-10-26 Esubalew Mezgebu,Animut Addis,Julia Challinor,Leul Deribe,Dorcas Malahlela
Background: The severity of the psychological impact on parents of children with cancer, often depressive symptoms due to mild-to-severe stress, is well documented. The causes are primarily related to their child's cancer diagnosis and treatment, side effects, lack of social support, missing information about their child's disease, and understanding of how to care for their child during treatment.
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An Integrative Review of Grandparents' Experiences in Childhood Cancer. J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2023-10-19 Jennifer L Wilson
Background: While it is generally accepted that childhood cancer has a profound impact on the family unit, there has been little focus on the experiences of grandparents who are affected by the diagnosis. Grandparents play an integral role throughout the child's illness trajectory as they are called upon to provide support physically, spiritually, emotionally, and at times financially. This integrative
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Spirituality in Adolescents and Young Adults With Cancer: An Evolutionary Concept Analysis. J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2023-10-19 Oladele O Oyedele,Celeste Phillips,Sheri L Robb
Background: Despite an increased focus on the importance of spirituality to human health, including adolescent health outcomes there remains an absence of evidence-based programs to address the spiritual needs of patients and families. A critical barrier is the absence of a clear conceptual understanding and operational definitions of spirituality for adolescents/young adults (AYAs) with cancer. The
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Gaps in Parental Understanding of Sleep Disturbances During Maintenance Therapy for Pediatric Acute Lymphoblastic Leukemia. J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2023-07-16 Eric S Zhou,Ariana F Valenzuela,Rebecca Robbins,Jessica M Page,Kira Bona
Background: Acute lymphoblastic leukemia (ALL) is the most common cancer in childhood, with survival rates approaching 90%. Sleep disturbance is common among ALL patients, often developing during the initial stages of chemotherapy treatment. While there have been significant efforts to understand and intervene in this issue during survivorship, there is far less research on children who are actively
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Standardization of Pediatric Hematopoietic Stem Cell Transplant Patient Discharge to Reduce Readmission Rates. J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2023-07-04 Meghan West,Ashley Varnes,Michelle Hudspeth
Background: The time period after a pediatric hematopoietic stem cell transplant (P-HSCT) is tenuous as the patient is severely immunocompromised and awaiting immune reconstitution. Managing activities of daily living and medication administration after discharge from the hospital requires 24-hour care placing a heavy burden on caregivers and patients. Patients who do not adhere to the posttransplant
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Virtual Reality for Pediatric Oncology Port-A-Cath Access: A Pilot Effectiveness Study. J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2023-06-29 Louisa Rygh,Sonal Johal,Hana Johnson,Cynthia W Karlson
Introduction: Port-a-cath procedures are among the most distressing aspects of pediatric cancer treatment. The current study aimed to examine the usability of virtual reality (VR) interventions for children undergoing chemotherapy port-access procedures. Methods: Families (N = 20) of children with cancer, 4-17 years old (M = 8.70 years, SD = 3.71), were recruited. Patients and parents rated patients'
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Spiritual Well-Being and Related Factors in Children With Cancer. J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2023-06-12 Erika Juškauskienė,Olga Riklikienė,John Fisher
Introduction: There are specific gaps that call for empirical research in the experiences of spiritual well-being among children 12 years old and younger with cancer. Understanding these relationships can help to develop holistic and family centered care in pediatric oncology wards. This study assessed the spiritual well-being of children with cancer in association with their general well-being, happiness
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Experiences of Parenting a Child Receiving Dexamethasone During Maintenance Chemotherapy for Acute Lymphoblastic Leukemia. J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2023-05-17 Annabel L David,Anne-Sophie Darlington,Helen C Griffiths
Background: The purpose of this research was to understand the experience of parenting a child receiving dexamethasone during maintenance chemotherapy for acute lymphoblastic leukemia (ALL). Previous research has shown that dexamethasone's high level of toxicity causes many physical, behavioral, and emotional side effects, which reduce the quality of life during ALL treatment. Less is known about the
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A Retrospective Review of Revaccination Patterns in Pediatric Hematopoietic Stem Cell Transplantation Recipients J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2023-04-17 Anne Wohlschlaeger, Ellen Levy, Raabia N. Khan, Jennifer Heimall, Brian T. Fisher, Talene A. Metjian, Caitlin W. Elgarten, Jason L. Freedman
Background: After a hematopoietic stem cell transplantation (HSCT), patients are left with little to no immunity to prevent infections. Importantly, this includes immunity gained from previous expo...
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Health Literacy in Parents of Children Newly Diagnosed With Cancer and Comprehension of Key Concepts Related to Their Child's Care J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2023-04-17 K. Elizabeth Keith, Aman Wadhwa, Jocelyn York, Pariya L. Fazeli, Smita Bhatia, Wendy Landier
Background: There is a paucity of literature regarding health literacy in pediatric oncology. We sought to understand the relationship between health literacy and comprehension of key new diagnosis...
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Art Unfolds Words: Expressing Hope Through Creative Art Among Adolescents and Young Adults Who Have Advanced Cancer J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2023-04-16 C. Robert Bennett, Jennifer L. Raybin, Leara Glinzak, Heather Coats, Kristine Gauthier, Karen Sousa, Verna L. Hendricks-Ferguson
Hope's role in the care of adolescents and young adults (AYAs) who have advanced cancer (AC) is not well understood. This study aimed to conceptualize the essence of hope among AYAs who have AC bas...
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Symptoms, Physical Activity, and Biomarkers in Children at the End of Leukemia Maintenance Therapy J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2023-04-12 Mary C. Hooke, Derek L. Salisbury, Michelle A. Mathiason, Alicia S. Kunin-Batson, Audrey Blommer, Jessica Hutter, Pauline Mitby, Ida Moore, Susan Whitman, Olga Taylor, Michael E. Scheurer, Marilyn J. Hockenberry
Background: Symptoms in children with acute lymphocytic leukemia (ALL) change over the trajectory of treatment but little is known about their symptoms as treatment ends. Physical activity may help...
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Nurses’ Perceptions of the Impact of a National Educational Program in Pediatric Oncology Nursing: A Cross-Sectional Evaluation J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2023-04-09 Margareta af Sandeberg, Maria Olsson, Torben Ek, Karin Enskär, Margaretha Stenmarker, Pernilla Pergert
Background: Specific knowledge is required in pediatric oncology, and specialization of nurses has been identified as a priority. In Sweden, a national program in pediatric oncology nursing has bee...
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Relationships Between Parental Anxiety and Child Quality of Life in Advanced Childhood Cancer J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2023-04-09 Brittany A. Cowfer, Mary S. Dietrich, Terrah Foster Akard, Mary Jo Gilmer
Background: Family factors, such as household income and parental psychosocial distress, have been associated with quality of life in children with cancer. However, relationships between parent anx...
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Why Psychosocial Care Matters: Parent Preparedness and Understanding Predict Psychosocial Function When Children Return to School After Cancer J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2023-04-09 Clifton P. Thornton, Claire Semerjian, Lisa B. Carey, Kimberly Milla, Kathy Ruble, Juliana Paré-Blagoev, Lisa A Jacobson
Introduction: Psychosocial impacts of cancer are well-recognized for pediatric patients but few studies examine challenges specific to schooling after diagnosis and caregiver-related factors that m...
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One Hundred Times Better, at Home in Our Own Beds: Implementation of Home Intravenous Hydration After Chemotherapy in Children With Cancer J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2023-04-05 Rebekah Orford, Penelope Slater, Brooke Spencer, Teghan Giarola, Wayne Nicholls, Rick Walker, Steven Foresto, Natalie Bradford
Background: Home-based cancer care offers new ways of delivering supportive therapies, including post-chemotherapy hydration, traditionally delivered in hospital settings. Understanding how program...
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Developing a Tool for Measuring Parent Knowledge and Barriers to Supportive School Integration After Diagnosis of Childhood Cancer J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2023-03-14 Elaina Parrillo, Nancy Perrin, Kathy Ruble, E. Juliana Paré-Blagoev, Lisa A. Jacobson
Background: Children treated for cancer are at risk for long-term neurocognitive late effects that can impact school attainment, employment, and quality of life. Obtaining formal education support ...
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Pediatric Chemotherapy Infusions in Outpatient Examination Rooms: A Novel Patient Care Approach J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2023-02-12 Tami K. Omdahl, Janelle L. Stenzel, Marsha L. Pike, Patricia M. Conlon, Tracy A. Barry, Tanya M. Brown, Kari L. Cambern, Kadi M. Davis, Kelly A. Fjerstad, Kevin K. Graner, Alexis K. Kuhn, Alison P. Larson, Amir B. Orandi, Emily L. Smith, Scott A. Soefje, Alan M. Janssen
Background: Many health care organizations offer pediatric infusions in outpatient infusion centers or, as in our organization, in a hospital-based outpatient Pediatric Infusion Therapy Center (PIT...
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Effects of a Pretend Play Intervention on Health-Related Quality of Life in Children With Cancer: A Swedish–German Study J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2023-02-02 Stefanie Witt, Julia Quitmann, Anna T. Höglund, Sandra Russ, Anne Kaman, Gabriele Escherich, Sara Frygner-Holm
Background: Cancer diagnosis can lead to massive physical, emotional, and social burdens on children and their families. Although children have the right to be informed and participate in their car...
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Effects of Person-Centered Information for Parents of Children With Cancer (the PIFBO Study): A Randomized Controlled Trial J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2023-02-02 Anders Ringnér, Maria Björk, Cecilia Olsson
Background: Conveying information to parents is a core part of pediatric oncology nursing; however, most published interventions do not tailor information to individual parental needs. Objective: T...
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Allowing Relationships to Unfold: Consult Reason and Topics Discussed in Initial and Subsequent Palliative Care Visits Among Children Who Died From Relapsed/Refractory Cancer J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2023-02-01 Maggie C. Root, Jane Koo, Griffin Collins, Neela L. Penumarthy, Michelle Hermiston, Jori F. Bogetz
Background: Children with relapsed/refractory cancer have a myriad of palliative care needs. While pediatric oncology clinicians meet many of these needs, studies suggest that these children often ...
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Pediatric Nurses’ Person-Centered Approach to Nausea Management in Children With Cancer J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2023-01-30 Maria Nogéus, Stefan Nilsson, Maria Björk
Background: Nausea is a problematic side effect of childhood cancer treatment. However, it is not clear what interventions and assessments pediatric oncology nurses make when caring for a child wit...
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Pediatric Nurses' Person-Centered Approach to Nausea Management in Children With Cancer. J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2023-01-30 Maria Nogéus,Stefan Nilsson,Maria Björk
Background: Nausea is a problematic side effect of childhood cancer treatment. However, it is not clear what interventions and assessments pediatric oncology nurses make when caring for a child with nausea. A person-centered approach can illuminate nausea management in pediatric care. The aim was to investigate how pediatric nurses retrieve the patient's narrative, establish partnership, and document
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Concept Analysis of Family-Centered Care in Childhood Cancer: An Evolutionary Approach J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2023-01-24 Jennifer L. Wilson
The purpose of this article is to further develop the concept of family-centered care (FCC) in childhood cancer using Rodgers’ evolutionary method of concept analysis. A search of the existing lite...
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Implementation of a Structured Process for Clinically Indicated Testing for Clostridioides difficile Infections in Pediatric Oncology and Stem Cell Transplant J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2023-01-23 Molly Kusma, Jeanne Little, Larry Kociolek
Background: Clostridioides difficile (C. difficile) is the primary cause of healthcare-associated infectious diarrhea. Pediatric patients with oncology and stem cell transplant (SCT) diagnoses are ...
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Nurses’ Experiences Caring for Children With Neuroblastoma Receiving 131I-Metaiodobenzylguanidine Therapy: A Qualitative Descriptive Study J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2023-01-23 Kelly Lankin, Cynthia M. LaFond, Alyssa Yost
Background: Neuroblastoma, the most common extra-cranial solid tumor found in children, carries a high mortality rate due to challenges with metastatic disease at diagnoses and relapse. 131I-Metaio...
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A Structured Discharge Education Intervention for Parents of Newly Diagnosed Pediatric Oncology Patients J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2023-01-18 Wendy Landier, Jocelyn M. York, Aman Wadhwa, Kandice Adams, Harrison M. Henneberg, Avi Madan-Swain, Beth Benton, Valencia Slater, Sue Zupanec, Jeneane Miller, Kathryn Tomlinson, Joshua S. Richman, Smita Bhatia
Background: Parents of children newly diagnosed with cancer require specialized knowledge and skills in order to safely care for their children at home. The Children's Oncology Group (COG) develope...
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Ambiguous Expectations of Parent Caregiving for the Child and Adolescent With Cancer at the Hospital and at Home—An Ethnographic Study J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2023-01-10 Louise Ingerslev Roug, Mary Jarden, Ayo Wahlberg, Lisa Lyngsie Hjalgrim, Helena Hansson
Background: Over the past three decades, complex care and treatment have increasingly become the responsibility of parents as home-based care providers, yet little is known about parents’ caregivin...
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Ambiguous Expectations of Parent Caregiving for the Child and Adolescent With Cancer at the Hospital and at Home-An Ethnographic Study. J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2023-01-10 Louise Ingerslev Roug,Mary Jarden,Ayo Wahlberg,Lisa Lyngsie Hjalgrim,Helena Hansson
Background: Over the past three decades, complex care and treatment have increasingly become the responsibility of parents as home-based care providers, yet little is known about parents' caregiving experiences when considering the variety of care tasks. It is imperative to gain insight into the challenges parents face when managing treatment and care of their child with cancer to ensure optimal parental
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Pediatric Oncology Nurse-Led Research and Evidence-Based Practice: Global Exemplars to Reduce Disparity. J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2023-01-01 Lauri A Linder,Julia Challinor
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Changes in Central Line–Associated Bloodstream Infection (CLABSI) Rates Following Implementation of Levofloxacin Prophylaxis for Children and Adolescents With High-Risk Leukemia J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2022-11-10 Lauri A. Linder, Cheryl Gerdy, Yeonjung Jo, Crystal Stark, Andrew Wilson
Background: Despite initiatives to reduce central line–associated bloodstream infection (CLABSI), children and adolescents with hematologic malignancies, as well as those with relapsed disease, rem...
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Facilitating and Implementing a Process for the Delivery of Pediatric Oncology New Diagnosis Education Among Nursing Staff Through the Electronic Medical Record J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2022-10-26 Christina K. Collazo, Nancy Tena, Elizabeth A. Duffy
Background: An estimated 11,060 children between the ages of 1 and 14 years and 4,900 adolescents between the ages of 15 and 19 years are diagnosed with cancer in the United States. Parents with ch...
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Expanding APHON’s Pediatric Chemotherapy/Biotherapy Provider and Instructor Program to Spanish-Speaking Countries: Pilot Series Development and Evaluation J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2022-10-26 Courtney E. Sullivan, Lorena Segovia Weber, Paola Viveros Lamas, Dorian Navarro Diaz, Zhaohua Lu, Xiwen Zhao, San Juanita Salinas-Avila, Richard J. Ramos, Kristin M. Belderson, Julia Challinor
Background: To address the need for standardized, comprehensive chemotherapy/biotherapy education in Latin American and Caribbean (LAC) countries, the Association of Pediatric Hematology/Oncology N...
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Facilitating and Implementing a Process for the Delivery of Pediatric Oncology New Diagnosis Education Among Nursing Staff Through the Electronic Medical Record. J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2022-10-26 Christina K Collazo,Nancy Tena,Elizabeth A Duffy
Background: An estimated 11,060 children between the ages of 1 and 14 years and 4,900 adolescents between the ages of 15 and 19 years are diagnosed with cancer in the United States. Parents with children newly diagnosed with cancer must acquire new knowledge related to the diagnosis, treatment plan, psychosocial care, and home management therapies to safely provide care following discharge. Expert
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Bringing Together a Transdisciplinary Team to Create and Advance a Shared Vision for Research and Support for Siblings of Youth With Cancer J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2022-10-17 Christina M. Amaro, Melissa A. Alderfer, Cynthia A. Gerhardt, Sarah E. Wawrzynski, Melanie Goldish, Kristin A. Long
Background: Siblings of youth with cancer are at risk for psychosocial difficulties and report unmet needs. Supporting siblings is a psychosocial standard of care; however, many barriers prevent th...
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Oral Mercaptopurine Adherence in Pediatric Acute Lymphoblastic Leukemia: A Survey Study From the Dana-Farber Cancer Institute Acute Lymphoblastic Leukemia Consortium J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2022-10-12 Justine M. Kahn, Kristen Stevenson, Melissa Beauchemin, Victoria B. Koch, Peter D. Cole, Jennifer J. G. Welch, Elizabeth Gage-Bouchard, Cecile Karsenty, Lewis B. Silverman, Kara M. Kelly, Kira Bona
Background: Oral chemotherapy nonadherence is a challenge in clinical oncology. During therapy for acute lymphoblastic leukemia (ALL), poor adherence to 6-mercaptopurine (6MP) increases relapse ris...
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Recommendations for Providing Medication Adherence Support After Pediatric Hematopoietic Stem Cell Transplant: Caregivers’ Lived Experience J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2022-10-12 Marie L. Chardon, Kimberly L. Klages, Naomi E. Joffe, Ahna L. H. Pai
Background. Medication adherence is challenging after pediatric hematopoietic stem cell transplant (HCT), particularly after hospital discharge. Post-HCT medication adherence is important to manage...
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Developing a Research Program on Fatigue in Children and Adolescents Diagnosed with Cancer J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2022-08-30 Pamela S. Hinds, Marilyn Hockenberry-Eaton
Fatigue may be a universal experience for children and adolescents who are being treated for a malignancy. Sadly, it may also be the most unrecognized and thus unaddressed symptom experienced by th...
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Evaluating a Model of Fatigue in Children with Cancer J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2022-08-30 Victoria Mock
This evaluation of a program of research on fatigue in children with cancer is a critique of the model developed as an outcome of the research. Emphasis is placed on the research methods as well as...
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Clinical Applications of Research on Fatigue in Children with Cancer J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2022-08-30 Andrea M. White
Fatigue is a prevalent problem in the pediatric oncology population but is probably underrecognized and undertreated. The research on fatigue in children with cancer presented in this issue offers ...
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An Integrative Review: The Evolution of Provider Knowledge, Attitudes, Perceptions and Perceived Barriers to Caring for Patients with Sickle Cell Disease 1970–Now J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2022-07-19 Jessie Reich, Mary Ann Cantrell, Suzanne C. Smeltzer
Approximately 100,000 Americans have sickle cell disease (SCD). In the USA, the majority of patients with SCD are of African descent. Due to persistent racial and ethnic disparities in healthcare i...
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Factors Influencing Pediatric Hematology/Oncology Nurse Retention: A Scoping Review J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2022-07-11 Madeleine R. Macintyre, Brandon W. J. Brown, Jessica A. Schults
Background: Nursing staff retention is an ongoing concern within pediatric hematology/oncology settings globally. Work-related stressors cause emotional burden, psychological distress, and burnout ...
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Ifosfamide-Induced Neurotoxicity in Children with Solid Tumors: A Seven Year Retrospective Analysis of Incidence and Risk Factors J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2022-06-27 Kristen L. Dalton
Background: Patients with cancer treated with the pro-drug ifosfamide may experience drug-induced neurotoxicity. Ifosfamide-induced neurotoxicity (IIN) is well described in the adult literature, bu...
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Ifosfamide-Induced Neurotoxicity in Children with Solid Tumors: A Seven Year Retrospective Analysis of Incidence and Risk Factors. J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2022-06-27 Kristen L Dalton
Background: Patients with cancer treated with the pro-drug ifosfamide may experience drug-induced neurotoxicity. Ifosfamide-induced neurotoxicity (IIN) is well described in the adult literature, but there is limited knowledge about this toxicity in pediatrics, especially in children with solid tumors. Methods: In this retrospective descriptive study, the author reviewed 7 years of clinical data regarding
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Decreasing Skin Breakdown Around Central Lines in Patients Receiving Thiotepa Prior to Bone Marrow Transplantation J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2022-06-21 Jami L. Melhorn, Marnie Burkett
Skin breakdown occurring around central line dressings increases the risk for infection and bacteremia in all patients. The risk is magnified when experienced in pediatric patients receiving marrow...
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Health-Related Quality of Life in Adolescent and Young Adult Retinoblastoma Survivors J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2022-06-08 Paula J. Belson, Jo-Ann Eastwood, Mary-Lynn Brecht, Jonathan W. Kim, Ron D. Hays, Nancy A. Pike
Background: Retinoblastoma (RB) is a malignant intraocular tumor diagnosed in early childhood that requires extensive medical and surgical treatment at a young age. Health-related quality of life (...
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Health-Related Quality of Life in Adolescent and Young Adult Retinoblastoma Survivors. J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2022-06-08 Paula J Belson,Jo-Ann Eastwood,Mary-Lynn Brecht,Jonathan W Kim,Ron D Hays,Nancy A Pike
Background: Retinoblastoma (RB) is a malignant intraocular tumor diagnosed in early childhood that requires extensive medical and surgical treatment at a young age. Health-related quality of life (HRQOL) is thought to be diminished due to visual impairment, facial deformities, and fear of recurrence or secondary cancer. However, few studies have identified variables associated with HRQOL among those
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A Prospective Evaluation of Fatigue in Pediatric Brain Tumor Patients Treated With Radiation Therapy J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2022-06-05 Kellen Gandy, Tiffany Chambers, Kimberly P. Raghubar, Mehmet Fatih Okcu, Murali Chintagumpala, Olga Taylor, Anita Mahajan, Lisa S. Kahalley, Wenyaw Chan, David R. Grosshans, Austin L. Brown, Martin Douglas Ris
Background: Fatigue is a well-established consequence of cranial radiotherapy in survivors of pediatric brain tumor, but less is known about acute fatigue during radiotherapy treatment. This study aimed to longitudinally evaluate fatigue in newly diagnosed pediatric patients with brain tumors during treatment. Methods: Primary caregivers of pediatric patients with brain tumors completed the proxy-reported
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Pilot Randomized Trial of a Three Times Weekly Heparin Flushing Intervention in Children, Adolescents, and Young Adults With Cancer With Tunneled Central Venous Catheters J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2022-05-25 Kathleen Adlard, Carol Brown, Samantha Hayward, Jennifer Barrows, Lori MacLean
Background: Children and adolescents with cancer often undergo aggressive treatment and receive supportive care requiring a long-term tunneled central venous catheter (TCVC). Regular flushing promotes TCVC patency when not in use (i.e., noninfusing). However, TCVC flushing guidelines and the current practice of daily flushing are not based on high-quality evidence. Few studies have compared the effect
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The Effects of Acupressure in the Prevention of Nausea and Vomiting Related to Chemotherapy in Children: A Randomized Double-Blinded Placebo-Controlled Study J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2022-05-25 Duygu Altuntaş, Ayşegül İşler Dalgiç
Background: Acupressure is known to be a nursing intervention used to prevent chemotherapy-induced nausea and vomiting in children. Methods: This study was conducted to evaluate and compare the effectiveness of manual and wristband acupressure in the prevention of chemotherapy-induced nausea and vomiting in children. This double-blinded and placebo-controlled study was conducted with 44 children aged
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Pilot Randomized Trial of a Three Times Weekly Heparin Flushing Intervention in Children, Adolescents, and Young Adults With Cancer With Tunneled Central Venous Catheters. J. Pediatr. Oncol. Nurs. (IF 1.7) Pub Date : 2022-05-25 Kathleen Adlard,Carol Brown,Samantha Hayward,Jennifer Barrows,Lori MacLean
Background: Children and adolescents with cancer often undergo aggressive treatment and receive supportive care requiring a long-term tunneled central venous catheter (TCVC). Regular flushing promotes TCVC patency when not in use (i.e., noninfusing). However, TCVC flushing guidelines and the current practice of daily flushing are not based on high-quality evidence. Few studies have compared the effect