TOPIC Clinical registries in ophthalmology. CLINICAL RELEVANCE In recent years, advancements in digital technology and increasing use of electronic medical records in health systems have led to the dramatic growth in large clinical data sets. Clinical data registries are organized systems that collect data on patients diagnosed with a disease or condition or who undergo a certain procedure. METHODS A search of the PUBMED database was conducted in January 2018 for clinical registries in ophthalmology. RESULTS Ninety-seven clinical eye registries were found, with significant growth in numbers in the last 4 decades. The most common conditions captured were blindness or low vision, corneal transplantation, glaucoma, and cataract surgery. Most registries originate in the European region, North America, and Australia. Nine registries had multinational coverage, whereas 48 were national registries. As the numbers and scope of clinical registries have expanded, valuable observational data have been used to study real-world clinical outcomes in healthcare quality measurement and improvement and to develop new guidelines and standards. Pertinent areas of its use include studying treatments and outcomes in cataract surgery, corneal transplantation, and macular degeneration. CONCLUSIONS The use of clinical registries for quality improvement and research has grown significantly in the last few decades, and this trend will continue as information technology infrastructures develop.

中文翻译：

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眼科临床注册。

主题眼科临床注册表。临床相关性近年来，数字技术的进步以及医疗系统中电子病历的日益使用，导致大型临床数据集的急剧增长。临床数据注册表是有组织的系统，可收集有关被诊断患有疾病或状况或正在接受特定程序的患者的数据。方法于2018年1月对PUBMED数据库进行了搜索，以查找眼科的临床注册资料。结果发现有97个临床眼科注册表，在过去的40年中，其数量显着增长。捕获的最常见疾病是失明或弱视，角膜移植，青光眼和白内障手术。大多数注册管理机构起源于欧洲地区，北美和澳大利亚。九个注册管理机构具有跨国服务范围，而48个是国家注册管理机构。随着临床注册机构的数量和范围的扩大，宝贵的观察数据已被用于研究医疗质量测量和改善方面的现实世界临床结果，并制定新的指南和标准。其使用的相关领域包括研究白内障手术，角膜移植和黄斑变性的治疗方法和结果。结论在过去的几十年中，临床注册机构用于质量改善和研究的用途已显着增长，并且随着信息技术基础设施的发展，这种趋势还将继续。有价值的观察数据已被用于研究医疗质量测量和改善方面的现实世界临床结局，并制定了新的指南和标准。其使用的相关领域包括研究白内障手术，角膜移植和黄斑变性的治疗方法和结果。结论在过去的几十年中，临床注册机构用于质量改善和研究的用途已显着增长，并且随着信息技术基础设施的发展，这种趋势还将继续。宝贵的观察数据已用于研究医疗质量测量和改善方面的现实世界临床结局，并制定了新的指南和标准。其使用的相关领域包括研究白内障手术，角膜移植和黄斑变性的治疗方法和结果。结论在过去的几十年中，临床注册机构用于质量改善和研究的用途已显着增长，并且随着信息技术基础设施的发展，这种趋势还将继续。