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Ethnicity recording in health and social care data collections in Ireland: where and how is it measured and what is it used for?
International Journal for Equity in Health ( IF 4.666 ) Pub Date : 2019-12-31 , DOI: 10.1186/s12939-019-1107-y
Ailish Hannigan 1, 2 , Nazmy Villarroel 1 , Maria Roura 1 , Joseph LeMaster 3 , Alphonse Basogomba 4 , Colette Bradley 5 , Anne MacFarlane 1, 2
Affiliation  

BACKGROUND In the European Union (EU), discrimination based on racial and ethnic origin is prohibited under the Racial Equality Directive. Ireland is one of only three EU countries where a legal duty of equality data collection is placed on public bodies. It provides an important context in which to study ethnic equality monitoring; however no systematic mapping of where it occurs in health information systems has been carried out. The aim of this study is to identify all existing national health and social care data collections with information on ethnicity and to explore how this data has been collected and used. METHODS An electronic search of a national catalogue of health and social care data collections (N = 97) was carried out to identify any collections which contained information on ethnicity. Data dictionaries were searched and key informants contacted. For each of the data collections that collected information on ethnicity, data was extracted on the ethnic categories used and how this data is collected; the completeness of ethnicity recording; and other measures related to ethnicity in the data collection. Relevant outputs for these data collections, related to ethnicity, were identified through key informants and electronic searches. RESULTS Of the 97 data collections, 14 (14%) collected information on ethnic or cultural background. Country of birth was collected by 10 of these 14 data collections. Most used the ethnic categories in the Census and recommended that ethnicity should be self-identified and not assigned. Reported rates of identification were generally high (≥90%). Data collections which recorded ethnicity tended to be focused on potentially high-risk populations with no routine recording in primary care. There were some examples of where ethnic equality monitoring had informed targeted interventions e.g. vaccination awareness initiatives or cultural training for healthcare staff. CONCLUSIONS Despite strong policy and legal imperatives, there is limited data collection of ethnicity in health and social care data collections in Ireland. While there are some examples of where differences by ethnicity have been identified and acted upon, a more coordinated and comprehensive approach to the collection, quality and utilization of ethnicity data is needed to promote health equity.

中文翻译:

爱尔兰的健康和社会护理数据收集中的种族记录:在何处以及如何对其进行测量以及将其用于什么目的?

背景技术在欧洲联盟(EU)中,《种族平等指令》禁止基于种族和族裔的歧视。爱尔兰是仅有的三个对公共机构负有平等法律责任的欧盟国家之一。它为研究种族平等监测提供了重要的背景;但是,尚未对其在健康信息系统中发生的位置进行系统的绘制。这项研究的目的是找出所有现有的民族健康和社会护理数据集,并提供有关种族的信息,并探讨如何收集和使用这些数据。方法对国家卫生和社会护理数据收集目录(N = 97)进行电子搜索,以识别任何包含种族信息的收集。搜索数据字典并联系关键线人。对于收集有关种族信息的每个数据收集,都提取了有关所用种族类别以及如何收集这些数据的数据;种族记录的完整性;以及与数据收集中的种族相关的其他措施。通过关键线人和电子搜索,确定了与种族有关的这些数据收集的相关输出。结果在97个数据收集中,有14个(14%)收集了有关种族或文化背景的信息。这14个数据集中有10个收集了出生国。大多数人使用了人口普查中的种族类别,并建议种族应该自我识别而不是分配。报告的鉴定率通常很高(≥90%)。记录种族的数据收集倾向于集中于潜在的高风险人群,而初级保健中没有常规记录。在一些例子中,种族平等监测为目标干预措施提供了信息,例如预防接种意识的倡议或对医护人员的文化培训。结论尽管有强烈的政策和法律强制性,但爱尔兰的健康和社会护理数据收集中的种族数据收集有限。虽然有一些例子可以识别和解决种族差异,但仍需要一种更加协调和全面的方法来收集,质量和利用种族数据,以促进健康公平。有一些例子表明,种族平等监测已为有针对性的干预措施提供了信息,例如预防接种意识的倡议或对医护人员的文化培训。结论尽管有强烈的政策和法律强制性,但爱尔兰的健康和社会护理数据收集中的种族数据收集有限。虽然有一些例子可以识别和解决种族差异,但仍需要一种更加协调和全面的方法来收集,质量和利用种族数据,以促进健康公平。有一些例子表明,种族平等监测已为有针对性的干预措施提供了信息,例如预防接种意识的倡议或对医护人员的文化培训。结论尽管有强烈的政策和法律强制性,爱尔兰的健康和社会护理数据收集中的种族数据收集有限。虽然有一些例子可以识别和解决种族差异,但仍需要一种更加协调和全面的方法来收集,质量和利用种族数据,以促进健康公平。在爱尔兰,健康和社会护理数据收集中的种族数据收集有限。虽然有一些例子可以识别和解决种族差异,但仍需要一种更加协调和全面的方法来收集,质量和利用种族数据,以促进健康公平。在爱尔兰,健康和社会护理数据收集中的种族数据收集有限。虽然有一些例子可以识别和解决种族差异,但仍需要一种更加协调和全面的方法来收集,质量和利用种族数据,以促进健康公平。
更新日期:2019-12-31
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