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Palliative care for people living with heart failure: European Association for Palliative Care Task Force expert position statement.
Cardiovascular Research ( IF 10.8 ) Pub Date : 2020-01-01 , DOI: 10.1093/cvr/cvz200
Piotr Z Sobanski 1 , Bernd Alt-Epping 2 , David C Currow 3, 4 , Sarah J Goodlin 5 , Tomasz Grodzicki 6 , Karen Hogg 7 , Daisy J A Janssen 8, 9 , Miriam J Johnson 10 , Małgorzata Krajnik 11 , Carlo Leget 12 , Manuel Martínez-Sellés 13 , Matteo Moroni 14 , Paul S Mueller 15 , Mary Ryder 16 , Steffen T Simon 17, 18 , Emily Stowe 19 , Philip J Larkin 20, 21
Affiliation  

Contrary to common perception, modern palliative care (PC) is applicable to all people with an incurable disease, not only cancer. PC is appropriate at every stage of disease progression, when PC needs emerge. These needs can be of physical, emotional, social, or spiritual nature. This document encourages the use of validated assessment tools to recognize such needs and ascertain efficacy of management. PC interventions should be provided alongside cardiologic management. Treating breathlessness is more effective, when cardiologic management is supported by PC interventions. Treating other symptoms like pain or depression requires predominantly PC interventions. Advance Care Planning aims to ensure that the future treatment and care the person receives is concordant with their personal values and goals, even after losing decision-making capacity. It should include also disease specific aspects, such as modification of implantable device activity at the end of life. The Whole Person Care concept describes the inseparability of the physical, emotional, and spiritual dimensions of the human being. Addressing psychological and spiritual needs, together with medical treatment, maintains personal integrity and promotes emotional healing. Most PC concerns can be addressed by the usual care team, supported by a PC specialist if needed. During dying, the persons' needs may change dynamically and intensive PC is often required. Following the death of a person, bereavement services benefit loved ones. The authors conclude that the inclusion of PC within the regular clinical framework for people with heart failure results in a substantial improvement in quality of life as well as comfort and dignity whilst dying.

中文翻译:

心力衰竭患者的姑息治疗:欧洲姑息治疗协会特别工作组专家立场声明。

与通常的看法相反,现代姑息治疗(PC)适用于所有无法治愈的疾病,而不仅仅是癌症。当出现PC需求时,PC适用于疾病进展的每个阶段。这些需求可能具有身体,情感,社会或精神性质。本文件鼓励使用经过验证的评估工具来识别此类需求并确定管理的有效性。PC干预措施应与心脏病管理同时提供。当PC干预支持心脏管理时,治疗呼吸困难更为有效。要治疗其他症状,例如疼痛或抑郁,主要需要PC干预。预先护理计划旨在确保即使在失去决策能力后,该人将来所接受的治疗和护理也将与其个人价值观和目标相一致。它还应包括疾病特定方面,例如生命周期结束时可植入设备活动的改变。“全人关怀”概念描述了人类的身体,情感和精神层面的不可分割性。满足心理和精神需求以及药物治疗,可以保持个人品格并促进情绪康复。大多数PC问题可以由通常的护理团队解决,并在需要时得到PC专家的支持。在死亡期间,人们的需求可能会动态变化,并且经常需要密集的PC。死后,丧亲服务使亲人受益。
更新日期:2019-12-19
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