Dynamic consent aims to empower research partners and facilitate active participation in the research process. Used within the context of biobanking, it gives individuals access to information and control to determine how and where their biospecimens and data should be used. We present Dwarna-a web portal for 'dynamic consent' that acts as a hub connecting the different stakeholders of the Malta Biobank: biobank managers, researchers, research partners, and the general public. The portal stores research partners' consent in a blockchain to create an immutable audit trail of research partners' consent changes. Dwarna's structure also presents a solution to the European Union's General Data Protection Regulation's right to erasure-a right that is seemingly incompatible with the blockchain model. Dwarna's transparent structure increases trustworthiness in the biobanking process by giving research partners more control over which research studies they participate in, by facilitating the withdrawal of consent and by making it possible to request that the biospecimen and associated data are destroyed.

中文翻译：

---

Dwarna：用于生物银行动态同意的区块链解决方案。

动态同意旨在增强研究合作伙伴的能力，并促进他们积极参与研究过程。在生物库的背景下使用，它使个人可以访问信息和进行控制，以确定应如何以及在何处使用其生物标本和数据。我们展示了Dwarna，这是一个“动态同意”的门户网站，它充当连接马耳他生物库不同利益相关方的枢纽：生物库管理人员，研究人员，研究合作伙伴和一般公众。该门户将研究伙伴的同意存储在区块链中，以创建研究伙伴的同意变更的不可变审计跟踪。Dwarna的结构还为欧盟《通用数据保护条例》的擦除权提供了一种解决方案，这项权利似乎与区块链模型不兼容。矮人