BACKGROUND Consent to link survey data with health-related administrative datasets is increasingly being sought but little is known about the influence of recruiting via online technologies on participants' consents. The goal of this paper is to examine what factors (sociodemographic, recruitment, incentives, data linkage information, health) are associated with opt-in consent to link online survey data to administrative datasets (referred to as consent to data linkage). METHODS The Australian Longitudinal Study on Women's Health is a prospective study of factors affecting the health and well-being of women. We report on factors associated with opt-in consent to data linkage at the end of an online survey of a new cohort of 18-23 year old Australian women recruited in 2012-13. Classification and Regression Tree analysis with decision trees was used to predict consent. RESULTS In this study 69% consented to data linkage. The provision of residential address by the individual, or not (as a measure of attitudes towards privacy), was the most important factor in classifying the data into similar groups of consenters (76% consenters versus 47% respectively). Thereafter, for those who did not provide their residential address, the incentives and data linkage information that was offered was the next most important factor, with incentive 2: limited-edition designer leggings and additional information about confidentiality showing increases in consent rates over Incentive 1: AUD50 gift voucher: 60% versus 37%. CONCLUSIONS In young Australian women, attitudes towards privacy was strongly associated with consenting to data linkage. Providing additional details about data confidentiality was successful in increasing consent and so was cohort appropriate incentives. Ensuring that prospective participants understand the consent and privacy protocols in place to protect their confidential information builds confidence in consenting to data linkage.

中文翻译：

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同意在2012-13年度对18-23岁的澳大利亚妇女进行的在线大型流行病学调查中的数据链接。

背景技术越来越多地寻求将调查数据与健康相关的行政数据集联系起来的信息，但是对于通过在线技术进行的征募对参与者同意的影响知之甚少。本文的目的是研究哪些因素（社会统计学，招聘，激励措施，数据链接信息，健康）与选择同意有关，以便将在线调查数据链接到管理数据集（称为数据链接同意）。方法澳大利亚妇女健康纵向研究是一项影响妇女健康和福祉的因素的前瞻性研究。在对2012-13年招募的一组18-23岁的澳大利亚新女性进行的在线调查结束时，我们报告了与同意加入数据链接相关的因素。具有决策树的分类和回归树分析用于预测同意。结果在这项研究中，有69％的人同意数据链接。是否将个人提供住所地址（作为对隐私态度的衡量标准）是将数据分为相似的同意者组的最重要因素（同意者分别为76％和47％）。此后，对于那些没有提供住所地址的人来说，提供的激励措施和数据链接信息是下一个最重要的因素，而激励措施2：限量版设计师紧身裤以及有关机密性的其他信息表明，同意率高于激励措施1 ：50澳元的购物券：60％比37％。结论在澳大利亚的年轻女性中，对隐私的态度与同意数据链接紧密相关。提供有关数据机密性的其他详细信息可以成功地增加同意，因此也可以采用适当的同类激励措施。确保准参与者了解到位的同意和隐私协议以保护他们的机密信息，从而建立了同意数据链接的信心。