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Use of Photovoice to engage stakeholders in planning for patient-centered outcomes research.
Research Involvement and Engagement Pub Date : 2019-11-28 , DOI: 10.1186/s40900-019-0166-y
Jill D Nault Connors 1 , Marshall J Conley 2 , Laura S Lorenz 3
Affiliation  

Background Research is needed to inform patient and provider decisions about how to best care for patients who go to the emergency department with complaints of chest pain when their symptoms are due to anxiety rather than a heart problem. However, this research may not be a high priority due, in part, to a lack of awareness for the severity of anxiety symptoms and the impact of anxiety on peoples' daily lives. In this commentary article, we highlight the use of Photovoice as a unique method to share patients' lived experience of anxiety with providers, researchers, and health system leaders. Main text A brief background on Photovoice methods, the process of patient partner involvement in Photovoice, and the project's Photovoice results (posters, photos and captions) is presented. Conclusion Photovoice achieved its intended effects of increasing awareness of all stakeholders about the burden of anxiety in patients' lives and the imperative of improving emergency department care for anxiety. This resulted in increased participation in a multi-stakeholder research partnership, critical health system support that included costs to the health system associated with implementing interventions to be tested, and submission of a patient-centered outcomes research proposal that is currently under review. In addition, Photovoice had positive benefits for participants including a therapeutic effect, may have increased group cohesion, and empowerment of patients as partners in the research process.

中文翻译:

使用 Photovoice 让利益相关者参与规划以患者为中心的结果研究。

背景研究需要告知患者和提供者关于如何最好地照顾那些因胸痛而去急诊科的患者,因为他们的症状是由于焦虑而不是心脏问题。然而,这项研究可能不是一个高优先级,部分原因是缺乏对焦虑症状严重性和焦虑对人们日常生活影响的认识。在这篇评论文章中,我们强调使用 Photovoice 作为一种独特的方法,与提供者、研究人员和卫生系统领导者分享患者的焦虑生活经历。正文 介绍了 Photovoice 方法的简要背景、患者合作伙伴参与 Photovoice 的过程以及项目的 Photovoice 结果(海报、照片和说明)。结论 Photovoice 实现了提高所有利益相关者对患者生活中焦虑负担的认识以及改善急诊科对焦虑的护理的必要性的预期效果。这导致更多利益相关者参与研究伙伴关系、关键的卫生系统支持,包括与实施待测试干预措施相关的卫生系统成本,以及提交目前正在审查的以患者为中心的结果研究提案。此外,Photovoice 对参与者有积极的好处,包括治疗效果,可能增加了团队凝聚力,以及在研究过程中赋予患者作为合作伙伴的权力。生活以及改善急诊科对焦虑症的护理的必要性。这导致更多利益相关者参与研究伙伴关系、关键的卫生系统支持,包括与实施待测试干预措施相关的卫生系统成本,以及提交目前正在审查的以患者为中心的结果研究提案。此外,Photovoice 对参与者有积极的好处,包括治疗效果,可能增加了团队凝聚力,以及在研究过程中赋予患者作为合作伙伴的权力。生活以及改善急诊科对焦虑症的护理的必要性。这导致更多利益相关者参与研究伙伴关系、关键的卫生系统支持,包括与实施待测试干预措施相关的卫生系统成本,以及提交目前正在审查的以患者为中心的结果研究提案。此外,Photovoice 对参与者有积极的好处,包括治疗效果,可能增加了团队凝聚力,以及在研究过程中赋予患者作为合作伙伴的权力。提交目前正在审查的以患者为中心的结果研究提案。此外,Photovoice 对参与者有积极的好处,包括治疗效果,可能增加了团队凝聚力,以及在研究过程中赋予患者作为合作伙伴的权力。提交目前正在审查的以患者为中心的结果研究提案。此外,Photovoice 对参与者有积极的好处,包括治疗效果,可能增加了团队凝聚力,以及在研究过程中赋予患者作为合作伙伴的权力。
更新日期:2020-04-22
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