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Supported and valued? A survey of early career researchers’ experiences and perceptions of youth and adult involvement in mental health, self-harm and suicide research
Research Involvement and Engagement Pub Date : 2019-04-29 , DOI: 10.1186/s40900-019-0149-z
Ruth Wadman 1 , A Jess Williams 2 , Katherine Brown 3 , Emma Nielsen 3
Affiliation  

Patient and public involvement (PPI) in mental health research, including self-harm and suicide research, is desirable (as with other health topics) but may involve specific challenges given the perceived sensitivity of the topic. This is particularly so when involving young people. We explore the experiences and perceptions of Early Career Researchers (ECRs) undertaking youth and adult involvement work in mental health, self-harm and/or suicide research. We consider current practice, barriers and facilitators. An online survey of a convenience sample of ECRs (N = 41) undertaking research on mental health, self-harm and/or suicide. Questions examined the perceived value of involvement work, involvement methods used, funding availability and the extent to which researchers felt knowledgeable, supported and confident in their involvement activities. Descriptive statistics are presented with appropriate tests. Open-ended questions, related to barriers and facilitators for involvement work, were subjected to an inductive thematic analysis. Youth and adult involvement work were valued to a similar extent, though institutions were reported to value youth involvement to a lesser extent. Researchers’ knowledge, confidence and support ratings were comparable for youth and adult involvement. The involvement methods used with young people and adults were also similar, with analysing data being the least popular method used and developing resources (e.g. information sheets) being the most popular method used. Less than a third of participants reported that funding was available for their research involvement activities. Barriers to involvement in research on mental health, self-harm and suicide were: ethical issues and perceived risk; real costs (in terms of money/time) versus perceived value; and the challenge of recruiting people. Facilitators to involvement work were: expert examples, expertise and guidelines; and investment in involvement work. ECRs in the fields of mental health, self-harm and suicide are engaged in youth and adult involvement work. They value (find worthwhile) youth and adult involvement work to a similarly high extent, but feel their institutions may regard youth involvement slightly less highly than adult involvement. ECRs rate themselves as feeling similarly knowledgeable, confident and supported when doing involvement activities with both age groups. Nonetheless, significant barriers to involvement work on these topics are reported and are generally issues that need to be tackled at an institutional level (ethical/governance issues and lack of funding).

中文翻译:

支持和重视?一项关于早期职业研究人员对青少年和成人参与心理健康、自残和自杀研究的经历和看法的调查

患者和公众参与心理健康研究(包括自残和自杀研究)是可取的(与其他健康主题一样),但鉴于该主题的感知敏感性,可能涉及特定挑战。在涉及年轻人时尤其如此。我们探讨了从事青少年和成人参与心理健康、自残和/或自杀研究工作的早期职业研究人员 (ECR) 的经验和看法。我们考虑当前的做法、障碍和促进因素。对 ECR 的便利样本(N = 41)进行的在线调查,该样本进行心理健康、自残和/或自杀研究。问题检查了参与工作的感知价值、使用的参与方法、资金可用性以及研究人员对参与活动的知识、支持和信心的程度。描述性统计数据与适当的测试一起呈现。与参与工作的障碍和促进者有关的开放式问题进行了归纳主题分析。青年和成人参与工作的价值相似,尽管据报道机构对青年参与的重视程度较低。研究人员的知识、信心和支持评级在青年和成人参与方面具有可比性。年轻人和成年人使用的参与方法也相似,分析数据是最不流行的方法,而开发资源(例如信息表)是最流行的方法。不到三分之一的参与者报告说他们的研究参与活动可以获得资金。参与心理健康、自残和自杀研究的障碍是:道德问题和感知风险;实际成本(以金钱/时间而言)与感知价值;以及招聘人员的挑战。参与工作的促进者有:专家案例、专业知识和指导方针;以及对参与工作的投资。心理健康、自残和自杀领域的 ECR 从事青少年和成人参与工作。他们同样高度重视(发现有价值的)青年和成人参与工作,但认为他们的机构可能对青年参与的重视程度略低于成人参与。ECR 认为自己在与两个年龄组一起进行参与活动时感觉同样有知识、自信和支持。尽管如此,
更新日期:2020-04-22
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