As the role of Patient and Public Involvement contributors expands to all stages of the research cycle, there is increasing demand for training that meets the needs of this diverse population. To help meet this demand the National Institute for Health Research Collaboration for Leadership in Applied Health Research and Care, Yorkshire and Humber, worked with members of the public to develop a bespoke training package. The University of Huddersfield’s Public Partnership Group were invited to host the training and undertake an independent evaluation. Participatory action research was used to structure the evaluation, such that participants in the training and public members of the evaluation team were co-collaborators with a robust, significant and visible share in the process. This is evidenced by public team members’ roles in undertaking the majority of data gathering, including surveys, non-participant observation and interviews, and analysis, engaging in all reflective discussions, leading on producing a formal report and contributing significant sections of this paper. The evaluation was approved by a University ethics panel. Public involvement consisted of the 13 participants who received the training, and 3 of the 6 members of the evaluation team. Data collection took place between November 2017 and March 2018. The evaluation found that participants understood more about the research process from attending the training, gaining greater confidence in their ability to volunteer to get involved. It also highlighted the difficulties of meeting the training needs of a diverse group with varying experiences and expectations. Skilful facilitation was needed to maintain pace, whilst engaging people with different levels of interest and knowledge. The management of the environment to maximise comfort and involvement was important. Early feedback to the delivery team enabled timely updating of the package. Involvement in the evaluation was initially daunting for the three public members of the team, but hugely enjoyable and fulfilling, as well as enriching the process and outcomes. In particular, public involvement in the analysis and interpretation stages increased the authenticity of the evaluation findings. This evaluation validated the training package and demonstrated the value and impact of Public Involvement at all levels in research.

中文翻译：

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有效参与：关于评估公众参与健康研究的研究意识培训包的报告

随着患者和公众参与贡献者的角色扩展到研究周期的所有阶段，满足这一多样化人群需求的培训需求不断增加。为了帮助满足这一需求，约克郡和亨伯郡应用健康研究和护理领导力国家健康研究合作研究所与公众合作开发了一个定制的培训包。哈德斯菲尔德大学的公共伙伴关系小组受邀主持培训并进行独立评估。参与式行动研究用于构建评估结构，以便培训参与者和评估团队的公共成员是合作者，在过程中具有强大、重要和可见的份额。公共团队成员在进行大部分数据收集（包括调查、非参与者观察和访谈以及分析）、参与所有反思性讨论、领导生成正式报告和贡献本文的重要部分时，就证明了这一点。该评估得到了大学伦理小组的批准。公众参与包括接受培训的 13 名参与者和评估小组 6 名成员中的 3 名。数据收集于 2017 年 11 月至 2018 年 3 月期间进行。评估发现，参与者通过参加培训更了解研究过程，对他们自愿参与的能力更有信心。它还强调了满足具有不同经验和期望的多元化群体的培训需求的困难。需要熟练的引导来保持步伐，同时让具有不同兴趣和知识水平的人参与进来。环境管理以最大限度地提高舒适度和参与度很重要。对交付团队的早期反馈有助于及时更新包裹。参与评估最初对团队的三位公开成员来说是令人生畏的，但非常愉快和充实，并丰富了过程和结果。特别是，公众参与分析和解释阶段增加了评估结果的真实性。该评估验证了培训包，并展示了公众参与各级研究的价值和影响。