The significance of patient and public engagement is increasingly recognized in health research, demonstrated by explicit requirements for patient and public engagement by funding agencies and journals. Such requirements have charged health researchers with leading patient and public engagement efforts, but evidence suggests that this practice is still evolving. Little research has explored the experiences and training needs of health researchers. This study aimed to establish a baseline understanding of the experiences, perceptions and training needs of health researchers in engaging patients and the public in health research in the context of Manitoba. A cross-sectional 50-item questionnaire was distributed using a multi-phase purposive sampling strategy targeting health researchers in Manitoba, Canada. Data was summarized using frequencies, percentages and analyzed using chi-square testing. A local patient engagement advisory group was consulted at the interpretation stage of the study to obtain feedback and input on the findings and their implications. Responses from 53 health researchers were included. Most participants had engaged patients and the public in their own research (n = 43, 81.1%). Those who had engaged reported having some (n = 19, 44.2%), extensive (n = 14, 32.6%) or a little (n = 10, 23.3%) experience with this process. Most engaged at the levels of inform, consult or involve (81.3, 64.6 and 54.2% respectively), while fewer engaged at the collaborate (37.5%) or patient-directed levels (12.5%). Recruitment occurred using a number of approaches and engagement occurred at various phases of the research process, while main groups engaged were patients (n = 38, 82.6%) and families/caregivers (n = 25, 54.4%). Barriers to engaging patients and the public in health research included funding, time, compensation, logistics, recruitment, motivation at both the patient and researcher level, and skills of researchers to engage. Researchers reported an overwhelming need and interest for supports, funding and training to effectively engage patients and the public in health research. Consultation with the patient advisory group provided further insight on study findings and areas for future research. Participating Manitoba health researchers engaged patients and the public in health research at multiple, but typically lower levels of involvement. Findings highlight the barriers to effective, authentic and meaningful patient and public engagement and support the need for targeted training, supports, funding and time for health researchers.

中文翻译：

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让患者和公众参与健康研究：曼尼托巴省卫生研究人员的经验、看法和培训需求

患者和公众参与的重要性在健康研究中越来越得到认可，资助机构和期刊对患者和公众参与的明确要求证明了这一点。这些要求要求卫生研究人员负责领导患者和公众参与工作，但有证据表明这种做法仍在不断发展。很少有研究探讨卫生研究人员的经验和培训需求。本研究旨在建立对卫生研究人员在马尼托巴省背景下让患者和公众参与卫生研究的经验、看法和培训需求的基本理解。使用针对加拿大马尼托巴省卫生研究人员的多阶段有目的抽样策略分发了一份包含 50 项的横断面调查问卷。使用频率汇总数据，百分比并使用卡方检验进行分析。在研究的解释阶段咨询了当地的患者参与咨询小组，以获取有关调查结果及其影响的反馈和意见。包括来自 53 名健康研究人员的回复。大多数参与者让患者和公众参与了他们自己的研究（n = 43, 81.1%）。那些参与的人报告说在这个过程中有一些（n = 19, 44.2%）、广泛（n = 14, 32.6%）或一点（n = 10, 23.3%）的经验。大多数人在告知、咨询或参与层面参与（分别为 81.3、64.6 和 54.2%），而在协作（37.5%）或患者指导层面（12.5%）参与的人数较少。招募使用多种方法进行，参与发生在研究过程的各个阶段，而参与的主要群体是患者（n = 38, 82. 6%）和家庭/照顾者（n = 25, 54.4%）。让患者和公众参与健康研究的障碍包括资金、时间、报酬、后勤、招募、患者和研究人员层面的动机，以及研究人员参与的技能。研究人员报告了对支持、资金和培训的巨大需求和兴趣，以有效地让患者和公众参与健康研究。与患者咨询小组的磋商为研究结果和未来研究领域提供了进一步的见解。参与的曼尼托巴省卫生研究人员以多种方式让患者和公众参与卫生研究，但参与程度通常较低。调查结果强调了有效、真实和有意义的患者和公众参与的障碍，并支持有针对性的培训、支持、