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An investigation of methods to improve recall for the patient-reported outcome measurement in COPD patients: a pilot randomised control trial and feasibility study protocol
Pilot and Feasibility Studies Pub Date : 2019-07-18 , DOI: 10.1186/s40814-019-0475-9
Sheree M S Smith 1, 2 , Stephen Jan 3 , Joseph Descallar 4, 5 , Guy B Marks 2, 5
Affiliation  

Patient-reported outcomes (PRO) are used to measure the effectiveness of interventions for management of chronic conditions such as chronic obstructive pulmonary disease. Many of these instruments require respondents to describe the change in their health status from baseline to a follow-up assessment and poor recall of previous health status often limits the usefulness and validity of these PRO measures. The use of technology has recently increased in PRO measurement. This study aims to mitigate the problems of poor recall by evaluating different strategies as a way to improve the validity of recall of health status among adults with COPD. A pilot randomised controlled trial of three strategies to improve patient recall will be tested in an acute care clinical environment. The first strategy is the use of tablet computer technology’s audio-visual facility, the second strategy is the provision of base line PRO responses prior to patients completing their follow-up questionnaires and third is standard practice of completing a questionnaire independently of previous responses. The feasibility of conducting this study in a busy clinical environment will be ascertained using the NIHR criteria for assessing feasibility. There is variability in a person’s ability to recall past events. With studies utilising patient-reported outcome measurement, it has become critically important to develop strategies and ways of supporting the patient to be more accurate recalling their health status. The adaptation of various technological features within mobile devices may provide an opportunity in clinical research studies to improve patient recall of their health status. ANZCTR12618001605280 .

中文翻译:

对提高 COPD 患者报告结果测量回忆的方法的调查:一项初步随机对照试验和可行性研究方案

患者报告结果 (PRO) 用于衡量干预措施对管理慢性疾病(如慢性阻塞性肺病)的有效性。其中许多工具要求受访者描述其健康状况从基线到后续评估的变化,而对先前健康状况的回忆不佳通常会限制这些 PRO 措施的有用性和有效性。最近在 PRO 测量中技术的使用有所增加。本研究旨在通过评估不同的策略来减轻回忆不佳的问题,以提高 COPD 成人回忆健康状况的有效性。将在急性护理临床环境中对提高患者回忆的三种策略进行试点随机对照试验。第一个策略是使用平板电脑技术的视听设备,第二个策略是在患者完成后续调查问卷之前提供基线 PRO 响应,第三个策略是独立于之前的回答完成问卷调查的标准做法。在繁忙的临床环境中进行这项研究的可行性将使用 NIHR 评估可行性的标准来确定。一个人回忆过去事件的能力存在差异。随着使用患者报告结果测量的研究,制定支持患者更准确地回忆其健康状况的策略和方法变得至关重要。移动设备中各种技术特征的适应可能为临床研究提供机会,以提高患者对其健康状况的回忆。ANZCTR12618001605280。
更新日期:2019-07-18
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