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A reflection on ethical and methodological challenges of using separate interviews with adolescent-older carer dyads in rural South Africa.
BMC Medical Ethics ( IF 2.7 ) Pub Date : 2019-07-08 , DOI: 10.1186/s12910-019-0383-9
Dumile Gumede 1, 2 , Nothando B Ngwenya 1 , Stella Namukwaya 3 , Sarah Bernays 4, 5 , Janet Seeley 1, 3, 5
Affiliation  

BACKGROUND This article discusses our reflections on ethical and methodological challenges when conducting separate interviews with individuals in dyads in the uMkhanyakude district, South Africa. Our work is embedded in an ethnographic study exploring care relationships between adolescents and their older carers in the context of a large-donor funded HIV programme. We use these reflections to discuss some of the challenges and present possible management strategies that may be adopted in conducting dyadic health research in resource-poor settings. METHODS Drawing from the relational agency, three rounds of separate interviews and participant observation were undertaken with dyads of adolescents aged between 13 and 19 and their older carers aged 50+ from October 2017 to September 2018. A reflexive journal was kept to record the interviewer's experiences of the whole research process. We identified methodological and ethical challenges from these data during the thematic analysis. RESULTS A total of 36 separate interviews were conducted with six pairs of adolescent-older carer dyads (n = 12 participants). Five themes emerged: recruitment of dyads, consenting dyads, confidentiality, conducting separate interviews with adolescents and older carers, and interviewer-dyad interaction. We also illustrated how we dealt with these challenges. CONCLUSIONS Results from this study can guide the recruitment, consenting and collecting data for health studies that employ a similar form of enquiry in LMICs. However, ethical and methodological challenges should be recognised as features of the relationships between cross-generation dyads rather than weaknesses of the method.

中文翻译:

反思在南非农村地区对青少年长者照护者进行单独采访所带来的道德和方法挑战。

背景技术本文讨论了我们在南非uMkhanyakude地区对二元组中的个人进行单独采访时对道德和方法挑战的思考。我们的工作包含在一项人种学研究中,该研究在大额捐赠者资助的艾滋病项目的背景下,探讨了青少年与其年长照料者之间的护理关系。我们使用这些思考来讨论一些挑战,并提出在资源匮乏的环境中进行二元健康研究时可能采用的可能的管理策略。方法从2017年10月至2018年9月,从关系机构抽取三轮分别为13至19岁的青少年和50岁以上的年老照护者进行三轮独立访谈和参与者观察。整个研究过程的经验。在主题分析过程中,我们从这些数据中确定了方法论和道德挑战。结果总共对36对独立访谈进行了六对青春期照料者双亲(n = 12名参与者)。出现了五个主题:招募二元组,同意的二元组,保密性,分别与青少年和年长的看护者进行面谈以及面试官与二元组的互动。我们还说明了我们如何应对这些挑战。结论本研究的结果可指导在LMIC中采用类似查询形式的健康研究的募集,同意和收集数据。但是,应将道德和方法挑战视为跨代二元组之间关系的特征,而不是方法的弱点。
更新日期:2019-07-08
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