Recent discoveries support the principle that palliative care may improve the quality of life of patients with Parkinson’s disease and those who care for them. Advance care planning, a component of palliative care, provides a vehicle through which patients, families, and clinicians can collaborate to identify values, goals, and preferences early, as well as throughout the disease trajectory, to facilitate care concordant with patient wishes. While research on this topic is abundant in other life-limiting disorders, particularly in oncology, there is a paucity of data in Parkinson’s disease and related neurological disorders. We review and critically evaluate current practices on advance care planning through the analyses of three bioethical challenges pertinent to Parkinson’s disease and propose recommendations for each.

最近的发现支持以下原则：姑息治疗可以改善帕金森氏病患者和照料者的生活质量。预先治疗计划是姑息治疗的一个组成部分，它提供了一种工具，患者，家庭和临床医生可以通过该工具进行协作，以便及早以及贯穿整个疾病轨迹来确定价值观，目标和偏好，以促进符合患者意愿的护理。尽管在其他限制生命的疾病（尤其是肿瘤学）中对此主题的研究非常丰富，但有关帕金森氏病和相关神经系统疾病的数据很少。我们通过对与帕金森氏病有关的三个生物伦理挑战的分析来审查和批判性地评估当前的先进护理计划实践，并针对每个挑战提出建议。