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Using clinically stable disease (NEDA 2) as a proxy for disease impact and employment in MS paints an incomplete picture.
Journal of Neurology, Neurosurgery, and Psychiatry ( IF 11.0 ) Pub Date : 2019-11-14 , DOI: 10.1136/jnnp-2019-321778 Sharon Roman 1
Journal of Neurology, Neurosurgery, and Psychiatry ( IF 11.0 ) Pub Date : 2019-11-14 , DOI: 10.1136/jnnp-2019-321778 Sharon Roman 1
Affiliation
Multiple sclerosis (MS) has long been associated with high rates of unemployment.1 While in many countries, patients are entitled to ask for reasonable accommodations,2 the duty to accommodate still operates within the confines of being able to fulfil the job requirements. Fluctuations in disease and pseudo exacerbations can confound meeting these requirements, making permanent and meaningful employment out of reach for many, as most people with MS are not free of all disease activity.3 Obstacles to employment are multifactorial and can be independent of clinically stable disease, a measurement used in the paper by Ameri et al . …
中文翻译:
使用临床稳定的疾病(NEDA 2)作为MS中疾病影响和就业的替代品,并不能得出完整的图景。
长期以来,多发性硬化症(MS)与高失业率相关。1尽管在许多国家,患者有权要求合理的住宿条件2,但住宿职责仍在能够满足工作要求的范围内进行。疾病的波动和假性加重可能使满足这些要求感到困惑,因为大多数MS患者并非没有所有疾病活动,因此永久性和有意义的就业机会对许多人来说是遥不可及的。3就业障碍是多因素的,可以独立于临床稳定的疾病这是Ameri等人在论文中使用的一种测量方法。…
更新日期:2019-12-18
中文翻译:
使用临床稳定的疾病(NEDA 2)作为MS中疾病影响和就业的替代品,并不能得出完整的图景。
长期以来,多发性硬化症(MS)与高失业率相关。1尽管在许多国家,患者有权要求合理的住宿条件2,但住宿职责仍在能够满足工作要求的范围内进行。疾病的波动和假性加重可能使满足这些要求感到困惑,因为大多数MS患者并非没有所有疾病活动,因此永久性和有意义的就业机会对许多人来说是遥不可及的。3就业障碍是多因素的,可以独立于临床稳定的疾病这是Ameri等人在论文中使用的一种测量方法。…