Abstract

Despite growing interest in participatory approaches to healthcare design, the integration of people’s lived experience—direct, first-hand understanding of a certain condition, situation, or identity—remains a key challenge to meaningful participation. Through an interview study with 23 patients, designers, family caregivers, and healthcare professionals involved in participatory healthcare design initiatives, the authors identify underlying tensions associated with leveraging lived experiences in healthcare design and investigate how existing strategies for integrating lived experience relate to these tensions. In doing so, this research offers insights for practitioners regarding ways of strategically navigating tensions when integrating people’s lived experience through design in complex healthcare contexts.

摘要

尽管人们对医疗保健设计的参与式方法越来越感兴趣，但人们生活经验的整合——对特定条件、情况或身份的直接、第一手理解——仍然是有意义参与的关键挑战。通过对参与参与式医疗保健设计计划的 23 名患者、设计师、家庭护理人员和医疗保健专业人员的访谈研究，作者确定了与利用医疗保健设计中的生活经验相关的潜在紧张局势，并调查了整合生活经验的现有策略与这些紧张局势的关系。在这样做的过程中，这项研究为从业者提供了有关在复杂的医疗保健环境中通过设计整合人们的生活体验时战略性地驾驭紧张局势的方法的见解。