Caring for a child, particularly one with a rare disease, presents a challenging set of stressors that can impact entire family networks. Given this shared impact, caregivers can engage in communal coping to address the caregiving process, defined as the perception of caregiving as shared and collaborative behaviors to address it. In this study, we examined one common measure of communal coping-first person plural pronouns or "we-talk"-in caregivers of either (a) children with rare or undiagnosed diseases or (b) typically developing children. We sought to examine how we-talk is linked to (a) caregiver health and well-being and (b) social network involvement in caregiving. Caregivers (n = 311) participated in (a) survey questionnaires (b) a network enumeration interview and (c) a semistructured interview of caregiving. Results indicated we-talk was unrelated to stress or self-rated health, but was linked to more benefit-finding; greater individual-focused language (I-talk) was also linked to worse self-rated health. Additionally, we-talk was unrelated to malfeasant behavior (e.g., overly critical), but was linked to less nonfeasant behavior (e.g., underinvolvement), more uplift behavior (e.g., helping with caregiving), and more health-related communication with network members. Further, these findings did not differ across caregiving context. This work highlights the role of communal coping for caregivers managing general parenting stress as well as the stress associated with caring for a child with complex medical needs. Future research should continue to examine how interpersonal coping processes operate within social networks to impact health and well-being for all involved. (PsycInfo Database Record (c) 2022 APA, all rights reserved).

中文翻译：

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we-talk 与护理人员社交网络系统和健康的链接。

照顾孩子，尤其是患有罕见疾病的孩子，会带来一系列具有挑战性的压力源，这些压力源可能会影响整个家庭网络。鉴于这种共同影响，护理人员可以参与共同应对以解决护理过程，定义为将护理视为解决问题的共享和协作行为。在这项研究中，我们检查了一种常见的公共应对措施——第一人称复数代词或“我们谈话”——在 (a) 患有罕见或未确诊疾病的儿童或 (b) 典型发育儿童的照顾者中。我们试图研究我们的谈话如何与 (a) 照顾者的健康和福祉以及 (b) 社交网络参与照顾有关。护理人员 (n = 311) 参与了 (a) 调查问卷 (b) 网络枚举访谈和 (c) 半结构式护理访谈。结果表明我们谈话与压力或自评健康无关，但与更多的利益发现有关；更多以个人为中心的语言（I-talk）也与更差的自评健康状况有关。此外，我们谈话与渎职行为（例如，过度批评）无关，但与较少的渎职行为（例如，参与不足）、更多的振奋行为（例如，帮助看护）以及与网络成员进行更多与健康相关的沟通有关. 此外，这些发现在不同的护理背景下没有差异。这项工作强调了共同应对对照顾者管理一般育儿压力以及与照顾有复杂医疗需求的孩子相关的压力的作用。未来的研究应继续研究人际应对过程如何在社交网络中运作以影响所有相关人员的健康和福祉。（PsycInfo 数据库记录 (c) 2022 APA，保留所有权利）。