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Pediatric to Adult Transition Literature: Scoping Review and Rheumatology Research Prioritization Survey Results.
The Journal of Rheumatology ( IF 3.9 ) Pub Date : 2022-08-01 , DOI: 10.3899/jrheum.220262
Nicole Bitencourt 1 , Erica Lawson 2 , John Bridges 3 , Kristine Carandang 4 , Ela Chintagunta 5 , Peter Chiraseveenuprapund 6 , Kimberly DeQuattro 7 , Y Ingrid Goh 8 , Tzielan C Lee 9 , Katharine F Moore 10 , Rosemary G Peterson 11 , Jordan E Roberts 12 , Tova Ronis 13 , Rebecca E Sadun 14 , Emily A Smitherman 15 , Elizabeth Stringer 16 , Patience H White 17 , Joyce C Chang 12 ,
Affiliation  

The transition from pediatric to adult care is the focus of growing research. It is important to identify how to direct future research efforts for maximum impact. Our goals were to perform a scoping review of the transition literature, highlight gaps in transition research, and offer stakeholder guidance on the importance and feasibility of research questions designed to fill identified gaps.The transition literature on rheumatic diseases and other common pediatric-onset chronic diseases was grouped and summarized. Based on the findings, a survey was developed and disseminated to pediatric rheumatologists and young adults with rheumatic diseases as well as their caregivers.The transitional care needs of patients, healthcare teams, and caregivers is well-described in the literature. While various transition readiness scales exist, no longitudinal post-transfer study confirms their predictive validity. Multiple outcome measures are used alone or in combination to define a successful transition or intervention. Multimodal interventions are most effective at improving transition-related outcomes. How broader health policy affects transition is poorly studied.Research questions ranked highest for importance and feasibility included those related to identifying and tracking persons with psychosocial vulnerabilities or other risk factors for poor outcomes. Interventions surrounding improving self-efficacy and health literacy were also ranked highly. In contrast to healthcare teams (n=107), young adults/caregivers (n=23) prioritized research surrounding improved work, school or social function.The relevant transition literature is summarized and future research questions prioritized, including the creation of processes to identify and support young adults vulnerable to poor outcomes.

中文翻译:

儿科到成人的过渡文献:范围界定审查和风湿病学研究优先排序调查结果。

从儿科到成人护理的转变是越来越多研究的重点。重要的是要确定如何指导未来的研究工作以获得最大的影响。我们的目标是对过渡文献进行范围界定审查,突出过渡研究中的差距,并就旨在填补已确定差距的研究问题的重要性和可行性向利益相关者提供指导。关于风湿病和其他常见的儿科慢性病的过渡文献疾病进行了分组和总结。根据调查结果,开展了一项调查,并向儿科风湿病学家和患有风湿病的年轻人及其护理人员进行了调查。文献中详细描述了患者、医疗团队和护理人员的过渡性护理需求。虽然存在各种过渡准备量表,没有纵向转移后研究证实它们的预测有效性。单独或组合使用多个结果测量来定义成功的过渡或干预。多模式干预在改善与过渡相关的结果方面最有效。更广泛的卫生政策如何影响过渡的研究很少。研究问题在重要性和可行性方面排名最高,包括那些与识别和跟踪具有心理社会脆弱性或其他不良结果风险因素的人有关的问题。围绕提高自我效能和健康素养的干预措施也排名靠前。与医疗团队 (n=107) 相比,年轻人/看护者 (n=23) 优先研究围绕改善工作、学校或社会功能的研究。
更新日期:2022-08-01
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