ABSTRACT

Objectives

40% of dementia cases can be prevented by addressing 12 lifestyle factors. These risk factors have increased presence in ethnic minorities, yet dementia prevention messages have not reached these communities. This article investigates the experience of co-designing a dementia prevention animated film with 9 ethnic groups in Australia.

Methods

Evidence-based recommendations were adapted through an iterative process involving workshops with a stakeholder advisory committee and nine focus groups with 104 participants from the Arabic-, Hindi-, Tamil-, Cantonese-, Mandarin-, Greek-, Italian-, Spanish-, and Vietnamese-speaking communities. Data were analyzed using the Normalization Process Theory.

Results

Cultural adaptation involves consideration of the mode of delivery, imagery and tone of the resource being developed; ensuring cultural adequacy; anticipating the need of the end-users; and managing linguistic challenges associated with working across multiple languages.

Conclusions

Learnings from this co-design process offer valuable insights for researchers and program developers who work with ethnic minority groups.

Clinical Implications

• Adaptation across cultures and languages is a negotiation not a consensus building exercise

• Linguistic adaptation requires consideration of the education levels, and linguistic and intergenerational preferences of community members

• Co-designing across multiple languages and cultures risks “flattening out” key aspects of cultural specificity.

中文翻译：

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文化上适应不同种族社区痴呆症预防的证据：从共同设计中吸取的教训

摘要

目标

解决 12 种生活方式因素可以预防 40% 的痴呆症病例。这些风险因素在少数民族中的存在率有所增加，但痴呆症预防信息尚未传达到这些社区。本文探讨了与澳大利亚 9 个民族共同设计预防痴呆症动画电影的经验。

方法

基于证据的建议是通过一个迭代过程进行调整的，该过程包括与利益相关者咨询委员会和 9 个焦点小组的研讨会，104 名参与者来自阿拉伯语、印地语、泰米尔语、粤语、普通话、希腊语、意大利语、西班牙语、和越南语社区。使用标准化过程理论分析数据。

结果

文化适应包括考虑正在开发的资源的交付方式、图像和基调；确保文化充分性；预测最终用户的需求；管理与跨多种语言工作相关的语言挑战。

结论

从这个共同设计过程中学到的知识为与少数民族群体合作的研究人员和项目开发人员提供了宝贵的见解。

临床意义

• 跨文化和语言的适应是一种协商，而不是一种建立共识的活动

• 语言适应需要考虑社区成员的教育水平、语言和代际偏好

• 跨多种语言和文化的共同设计存在“扁平化”文化特性关键方面的风险。