Abstract

Objective

To explore the preferences of people with memory complaints (PwMC) and their significant others regarding starting a diagnostic trajectory for dementia.

Methods

A systematic literature search was conducted in PubMed, PsycINFO, CINAHL, Web of Science, and Embase. Selection of abstracts and papers was performed independently by two researchers. Methodological quality was assessed with the Mixed Method Appraisal Tool. Result sections of the selected papers were thematically synthesized.

Results

From 2497 citations, seven qualitative studies and two mixed methods studies published between 2010 and 2020 were included. Overall quality of the studies was high to moderate. A thematic synthesis showed that preferences for starting a diagnostic trajectory arose from the feeling of needing to do something about the symptoms, beliefs on the necessity and expected outcomes of starting a diagnostic trajectory. These views were influenced by normalization or validation of symptoms, the support or wishes of the social network, interactions with health care professionals, the health status of the PwMC, and societal factors such as stigma and socioeconomic status.

Conclusion

A variety of considerations with regard to decision-making on starting a diagnostic trajectory for dementia were identified. This emphasizes the need to explore individual preferences to facilitate a timely dementia diagnosis.

中文翻译：

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了解患者和重要他人对开始痴呆症诊断轨迹的偏好：综合回顾

摘要

客观的

探讨有记忆障碍的人 (PwMC) 及其重要他人对开始痴呆症诊断轨迹的偏好。

方法

在 PubMed、PsycINFO、CINAHL、Web of Science 和 Embase 中进行了系统的文献检索。摘要和论文的选择由两名研究人员独立完成。使用混合方法评估工具评估方法学质量。所选论文的结果部分按主题综合。

结果

从 2497 次引用中，包括 2010 年至 2020 年间发表的七项定性研究和两项混合方法研究。研究的总体质量为高到中等。主题综合表明，开始诊断轨迹的偏好源于需要对症状做某事的感觉、对开始诊断轨迹的必要性和预期结果的信念。这些观点受到症状的正常化或验证、社交网络的支持或愿望、与医疗保健专业人员的互动、PwMC 的健康状况以及耻辱和社会经济地位等社会因素的影响。

结论

确定了关于开始痴呆症诊断轨迹的决策的各种考虑因素。这强调了探索个人偏好以促进及时诊断痴呆症的必要性。