Background Advances in genetics and digital phenotyping in psychiatry have given rise to testing services targeting young people, which claim to predict psychiatric outcomes before difficulties emerge. These services raise several ethical challenges surrounding data sharing and information privacy. Objectives This study aimed to investigate young people’s interest in predictive testing for mental health challenges and their attitudes towards sharing biological, psychosocial and digital data for such purpose. Methods Eighty UK adolescents aged 16–18 years took part in a digital role-play where they played the role of clients of a fictional predictive psychiatry company and chose what sources of personal data they wished to provide for a risk assessment. After the role-play, participants reflected on their choices during a peer-led interview. Findings Participants saw multiple benefits in predictive testing services, but were highly selective with regard to the type of data they were willing to share. Largely due to privacy concerns, digital data sources such as social media or Google search history were less likely to be shared than psychosocial and biological data, including school grades and one’s DNA. Participants were particularly reluctant to share social media data with schools (but less so with health systems). Conclusions Emerging predictive psychiatric services are valued by young people; however, these services must consider privacy versus utility trade-offs from the perspective of different stakeholders, including adolescents. Clinical implications Respecting adolescents’ need for transparency, privacy and choice in the age of digital phenotyping is critical to the responsible implementation of predictive psychiatric services. Data are available upon reasonable request. Data from the digital role-play are uploaded as supplementary information. Interview data are available upon reasonable request.

中文翻译：

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预测精神病学时代的数据共享：青少年的视角

背景 精神病学中遗传学和数字表型分析的进步催生了针对年轻人的测试服务，这些服务声称可以在困难出现之前预测精神病结果。这些服务提出了一些围绕数据共享和信息隐私的道德挑战。目的 本研究旨在调查年轻人对心理健康挑战预测测试的兴趣以及他们对为此目的共享生物、心理社会和数字数据的态度。方法 80 名 16-18 岁的英国青少年参加了数字角色扮演，他们扮演一家虚构的预测精神病学公司的客户，并选择他们希望提供用于风险评估的个人数据来源。角色扮演结束后，参与者在同行主导的访谈中反思了自己的选择。结果 参与者看到了预测测试服务的多种好处，但对他们愿意共享的数据类型有很高的选择性。主要出于隐私考虑，社交媒体或谷歌搜索历史等数字数据源比社会心理和生物数据（包括学校成绩和个人 DNA）更不可能被共享。参与者特别不愿意与学校分享社交媒体数据（但与卫生系统分享则较少）。结论 新兴的预测性精神病学服务受到年轻人的重视；然而，这些服务必须从包括青少年在内的不同利益相关者的角度考虑隐私与实用性的权衡。临床意义 在数字表型分析时代，尊重青少年对透明度、隐私和选择的需求对于负责任地实施预测性精神病学服务至关重要。数据可根据合理要求提供。来自数字角色扮演的数据作为补充信息上传。访谈数据可根据合理要求提供。