Abstract

The aim of the study was to explore beliefs about pain and related coping strategies of individuals experiencing abdominal pain during remitted inflammatory bowel disease (IBD), and their perception of irritable bowel syndrome (IBS) in the context of IBD. In-depth semi-structured interviews were conducted with 23 participants who self-reported experiences of abdominal pain during remitted IBD. The study was embedded in the constructivism tradition and reflexive thematic analysis was used to analyse the interviews. Results encompass 1) How IBS is perceived; 2) How individuals monitor symptoms to distinguish active from quiescent IBD; 3) Coping strategies employed to navigate the pain; 4)How manageability of pain guides the distinction between active and quiescent disease; v. How context influences pain interpretation and management; 5) What role illness history and health literacy play in the meaning of ongoing pain. The IBS label was perceived by some as invalidating, although it helped some people to worry less about ongoing pain and symptoms during remitted IBD. However, even for the latter individuals, IBS did not bring a clear understanding of painful symptoms. Participants’ responses highlight a need for explanations that incorporate both the complexity of IBD and underlying causes of ongoing pain during remission. Communication would benefit from the appreciation of pain (and symptoms) in the wider context of illness history and health literacy.

摘要

该研究的目的是探索在缓解炎症性肠病 (IBD) 期间经历腹痛的个体对疼痛和相关应对策略的看法，以及他们在 IBD 背景下对肠易激综合征 (IBS) 的看法。对 23 名自述在缓解 IBD 期间腹痛经历的参与者进行了深入的半结构化访谈。该研究植根于建构主义传统，并使用反思性主题分析来分析访谈。结果包括 1) 如何看待 IBS；2) 个体如何监测症状以区分活动性和静止性 IBD；3) 用于应对痛苦的应对策略；4）疼痛的可管理性如何指导活动和静止疾病之间的区别；v. 情境如何影响疼痛解释和管理；5) 疾病史和健康素养在持续疼痛的意义中起什么作用。IBS 标签被一些人认为是无效的，尽管它帮助一些人减少了对缓解 IBD 期间持续疼痛和症状的担忧。然而，即使对于后者，IBS 也没有带来对疼痛症状的清晰认识。参与者的回答强调了解释的必要性，包括 IBD 的复杂性和缓解期间持续疼痛的根本原因。在疾病史和健康素养的更广泛背景下，交流将受益于对疼痛（和症状）的认识。然而，即使对于后者，IBS 也没有带来对疼痛症状的清晰认识。参与者的回答强调了解释的必要性，包括 IBD 的复杂性和缓解期间持续疼痛的根本原因。在疾病史和健康素养的更广泛背景下，交流将受益于对疼痛（和症状）的认识。然而，即使对于后者，IBS 也没有带来对疼痛症状的清晰认识。参与者的回答强调了解释的必要性，包括 IBD 的复杂性和缓解期间持续疼痛的根本原因。在疾病史和健康素养的更广泛背景下，交流将受益于对疼痛（和症状）的认识。