Parents give consent for their children’s health data to be used in research, but what happens when the children reach adulthood, and how can researchers keep families involved in the meantime?

中文翻译：

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健康数据：当孩子达到同意年龄时

父母同意将孩子的健康数据用于研究，但是当孩子成年时会发生什么，研究人员如何让家人参与其中？