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COVID-19 and the spinal cord injury community: Concerns about medical rationing and social isolation.
Rehabilitation Psychology ( IF 3.713 ) Pub Date : 2021-11-01 , DOI: 10.1037/rep0000407 Kimberley R Monden 1 , Erin Andrews 2 , Carrie Pilarski 3 , Jasmine Hearn 4 , Robert Wudlick 1 , Leslie R Morse 1
Rehabilitation Psychology ( IF 3.713 ) Pub Date : 2021-11-01 , DOI: 10.1037/rep0000407 Kimberley R Monden 1 , Erin Andrews 2 , Carrie Pilarski 3 , Jasmine Hearn 4 , Robert Wudlick 1 , Leslie R Morse 1
Affiliation
PURPOSE/OBJECTIVE
To provide a descriptive account of the impact of the COVID-19 pandemic on the spinal cord injury (SCI) community focused on participants' concerns about medical discrimination and medical rationing, the impact of the pandemic on access to personal care attendants and medical supplies, and the impact of the pandemic on overall and mental health. Research Method/Design: Cross sectional, observational study among community-dwelling adults with SCI. Data were collected online between May 1, 2020 and August 31, 2020 (n = 187). The online questionnaire included questions regarding medical discrimination and rationing, the impact of the pandemic on access to care and medical supplies, and the impact of the pandemic on overall and mental health.
RESULTS
Individuals with SCI have experienced difficulty accessing medical supplies due to the pandemic, and approximately half of our participants (52%) perceived that discrimination through medical rationing was occurring. Furthermore, compared to the general U.S. population, our sample reported that the pandemic had a greater negative impact on their mental health and access to medical supplies.
CONCLUSION/IMPLICATIONS
Our findings suggest that the COVID-19 pandemic has negatively impacted mental health and increased concerns of social isolation as well as access to medical supplies among those with SCI. Rehabilitation psychologists must advocate alongside the disability community to limit health disparities and to conduct outreach, specifically with regard to mental health issues. Future research should focus on the effects of pandemic-related fears and social isolation, as well as resilience in the context of public health care threats. (PsycInfo Database Record (c) 2021 APA, all rights reserved).
中文翻译:
COVID-19 和脊髓损伤社区:对医疗配给和社会隔离的担忧。
目的/目标 描述 COVID-19 大流行对脊髓损伤 (SCI) 社区的影响,重点关注参与者对医疗歧视和医疗配给的担忧、大流行对获得个人护理人员的影响以及医疗用品,以及大流行对整体和心理健康的影响。研究方法/设计:在患有 SCI 的社区成年人中进行横断面观察研究。数据于 2020 年 5 月 1 日至 2020 年 8 月 31 日期间在线收集(n = 187)。在线问卷包括有关医疗歧视和配给、大流行对获得护理和医疗用品的影响以及大流行对整体和心理健康的影响的问题。结果 由于大流行,SCI 患者难以获得医疗用品,大约一半的参与者 (52%) 认为正在发生通过医疗配给的歧视。此外,与美国总人口相比,我们的样本报告称,大流行对他们的心理健康和医疗用品的获取产生了更大的负面影响。结论/意义 我们的研究结果表明,COVID-19 大流行对心理健康产生了负面影响,并增加了社会孤立的担忧以及 SCI 患者获得医疗用品的机会。康复心理学家必须与残疾社区一起倡导限制健康差异并开展外展活动,特别是在心理健康问题方面。未来的研究应侧重于与大流行相关的恐惧和社会隔离的影响,以及在公共卫生保健威胁的背景下的恢复能力。(PsycInfo 数据库记录 (c) 2021 APA,保留所有权利)。
更新日期:2021-11-01
中文翻译:
COVID-19 和脊髓损伤社区:对医疗配给和社会隔离的担忧。
目的/目标 描述 COVID-19 大流行对脊髓损伤 (SCI) 社区的影响,重点关注参与者对医疗歧视和医疗配给的担忧、大流行对获得个人护理人员的影响以及医疗用品,以及大流行对整体和心理健康的影响。研究方法/设计:在患有 SCI 的社区成年人中进行横断面观察研究。数据于 2020 年 5 月 1 日至 2020 年 8 月 31 日期间在线收集(n = 187)。在线问卷包括有关医疗歧视和配给、大流行对获得护理和医疗用品的影响以及大流行对整体和心理健康的影响的问题。结果 由于大流行,SCI 患者难以获得医疗用品,大约一半的参与者 (52%) 认为正在发生通过医疗配给的歧视。此外,与美国总人口相比,我们的样本报告称,大流行对他们的心理健康和医疗用品的获取产生了更大的负面影响。结论/意义 我们的研究结果表明,COVID-19 大流行对心理健康产生了负面影响,并增加了社会孤立的担忧以及 SCI 患者获得医疗用品的机会。康复心理学家必须与残疾社区一起倡导限制健康差异并开展外展活动,特别是在心理健康问题方面。未来的研究应侧重于与大流行相关的恐惧和社会隔离的影响,以及在公共卫生保健威胁的背景下的恢复能力。(PsycInfo 数据库记录 (c) 2021 APA,保留所有权利)。