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Evaluating the Balance Between Privacy and Access in Digital Information Sharing.
Critical Care Medicine ( IF 8.8 ) Pub Date : 2021-09-22 , DOI: 10.1097/ccm.0000000000005234
Sarah J Beesley 1, 2, 3 , Alex Powell 4 , Danielle Groat 1, 3 , Jorie Butler 5, 6, 7 , Ramona O Hopkins 1, 3, 8 , Ronen Rozenblum 9, 10 , Hanan Aboumatar 11, 12 , Allison M Butler 1, 2 , Jeremy Sugarman 13 , Leslie Francis 14 , Samuel M Brown 1, 2, 3
Affiliation  

Access to personal health records in an ICU by persons involved in the patient's care (referred to broadly as "family members" below) has the potential to increase engagement and reduce the negative psychologic sequelae of such hospitalizations. Currently, little is known about patient preferences for information sharing with a designated family member in the ICU. We sought to understand the information-sharing preferences of former ICU patients and their family members and to identify predictors of information-sharing preferences.

中文翻译:

评估数字信息共享中隐私和访问之间的平衡。

参与患者护理的人员(下文统称为“家庭成员”)访问 ICU 中的个人健康记录有可能增加参与度并减少此类住院治疗的负面心理后遗症。目前,我们对患者与 ICU 指定家庭成员共享信息的偏好知之甚少。我们试图了解前 ICU 患者及其家人的信息共享偏好,并确定信息共享偏好的预测因素。
更新日期:2021-09-22
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