Key Features

• The Alberta Adolescent and Young Adult (AYA) Cancer Survivor Study is the first population-based cohort created to comprehensively assess the risk of late effects in AYA cancer survivors aged 15–39 years at diagnosis in Canada.
• The cohort was formed in collaboration with the Alberta Cancer Registry using data on all AYA first primary malignant neoplasms diagnosed in Alberta between January 1983 and December 2017 (N = 24 459). We included a nested clinical cohort to investigate the association between treatment exposures and late effects for individuals diagnosed from 2000 onwards (N = 14 372).
• Using deterministic data linkage, subsequent primary cancers and vital status information was obtained for the entire cohort; and 75.5–99.1% of the cohort appeared in the administrative health databases that record hospitalizations, ambulatory care, physician claims, perinatal health and patient-reported outcomes.
• The results from this study will inform clinical care and tertiary prevention strategies seeking to improve physical health, well-being and survivorship care in this population.
• Individuals interested in learning more about the study or seeking research collaborations should visit the study website at [https://ayacancerab.com/].

中文翻译：

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数据资源简介：艾伯塔省青少年癌症幸存者研究

主要特征

• 阿尔伯塔省青少年 (AYA) 癌症幸存者研究是第一个基于人群的队列，旨在全面评估加拿大诊断时年龄在 15-39 岁的 AYA 癌症幸存者的迟发效应风险。
• 该队列是与阿尔伯塔癌症登记处合作建立的，使用了 1983 年 1 月至 2017 年 12 月期间在阿尔伯塔省诊断出的所有 AYA 首发原发性恶性肿瘤的数据（N = 24 459）。我们纳入了一个嵌套的临床队列，以调查从 2000 年起诊断出的个体的治疗暴露与迟发效应之间的关联 ( N = 14 372)。
• 使用确定性数据链接，获得整个队列的后续原发性癌症和生命状态信息；75.5-99.1% 的队列出现在记录住院、门诊护理、医生索赔、围产期健康和患者报告结果的行政健康数据库中。
• 这项研究的结果将为寻求改善该人群的身体健康、福祉和生存护理的临床护理和三级预防策略提供信息。
• 有兴趣了解更多有关研究或寻求研究合作的个人应访问研究网站 [https://ayacancerab.com/]。