Aim

The sudden and unexpected cardiac arrest of a family member can be a grief-filled and life-altering event. Every year many hundreds of thousands of families experience the cardiac arrest of a family member. However, care of the family during the cardiac arrest and afteris poorly understood and incompletely described. This review has been performed with persons with lived experience of cardiac arrest to describe, “What are the needs of families experiencing cardiac arrest?” from the moment of collapse until the outcome is known.

Methods

This review was guided by specific methodological framework and reporting items (PRISMA-ScR) as well as best practices in patient and public involvement in research and reporting (GRIPP2). A search strategy was developed for eight online databases and a grey literature review. Two reviewers independently assessed all articles for inclusion and extracted relevant study information.

Results

We included 47 articles examining the experience and care needs of families experiencing cardiac arrest of a family member. Forty one articles were analysed as six represented duplicate data. Ten family care need themes were identified across five domains. The domains and themes transcended cardiac arrest setting, aetiology, family-member age and family composition. The five domains were i) focus on the family member in cardiac arrest, ii) collaboration of the resuscitation team and family, iii) consideration of family context, iv) family post-resuscitation needs, and v) dedicated policies and procedures. We propose a conceptual model of family centred cardiac arrest.

Conclusion

Our review provides a comprehensive mapping and description of the experience of families and their care needs during the cardiac arrest of a family-member. Furthermore, our review was conducted with co-investigators and collaborators with lived experience of cardiac arrest (survivors and family members of survivors and non-survivors alike). The conceptual framework of family centred cardiac arrest care presented may aid resuscitation scientists and providers in adopting greater family centeredness to their work.

中文翻译：

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心脏骤停家庭的护理需求是什么？：幸存者和家庭主导的范围审查

目的

家庭成员突然和意外的心脏骤停可能是一个充满悲伤和改变生活的事件。每年都有成千上万的家庭经历家庭成员的心脏骤停。然而，人们对心脏骤停期间和之后的家人护理知之甚少，描述也不完整。本综述针对具有心脏骤停生活经历的人进行，以描述“心脏骤停家庭的需求是什么？” 从崩溃的那一刻直到结果被知道。

方法

本综述以特定的方法框架和报告项目 (PRISMA-ScR) 以及患者和公众参与研究和报告的最佳实践 (GRIPP2) 为指导。为八个在线数据库和灰色文献综述制定了搜索策略。两名审稿人独立评估所有纳入的文章并提取相关研究信息。

结果

我们收录了 47 篇文章，研究了经历家庭成员心脏骤停的家庭的经历和护理需求。分析了 41 篇文章，因为有 6 篇是重复数据。在五个领域中确定了十个家庭护理需求主题。这些领域和主题超越了心脏骤停环境、病因、家庭成员年龄和家庭组成。这五个领域是 i) 关注心脏骤停时的家庭成员，ii) 复苏团队和家人的合作，iii) 考虑家庭环境，iv) 家庭复苏后的需求，以及 v) 专门的政策和程序。我们提出了一个以家庭为中心的心脏骤停的概念模型。

结论

我们的审查提供了对家庭成员心脏骤停期间家庭经历及其护理需求的全面映射和描述。此外，我们的审查是与共同调查员和合作者一起进行的，他们有心脏骤停的生活经验（幸存者以及幸存者和非幸存者的家属）。提出的以家庭为中心的心脏骤停护理的概念框架可以帮助复苏科学家和提供者在他们的工作中采用更大的以家庭为中心。