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Biases, Barriers, and Possible Solutions: Steps Towards Addressing Autism Researchers Under-Engagement with Racially, Ethnically, and Socioeconomically Diverse Communities
Journal of Autism and Developmental Disorders ( IF 4.345 ) Pub Date : 2021-09-16 , DOI: 10.1007/s10803-021-05250-y
Melissa Maye 1 , Brian A Boyd 2 , Frances Martínez-Pedraza 3 , Alycia Halladay 4, 5 , Audrey Thurm 6 , David S Mandell 7
Affiliation  

Autistic individuals who are also people of color or from lower socioeconomic strata are historically underrepresented in research. Lack of representation in autism research has contributed to health and healthcare disparities. Reducing these disparities will require culturally competent research that is relevant to under-resourced communities as well as collecting large nationally representative samples, or samples in which traditionally disenfranchised groups are over-represented. To achieve these goals, a diverse group of culturally competent researchers must partner with and gain the trust of communities to identify and eliminate barriers to participating in research. We suggest community-academic partnerships as one promising approach that results in high-quality research built on cultural competency, respect, and shared decision making.



中文翻译:

偏见、障碍和可能的解决方案:解决自闭症研究人员在种族、民族和社会经济多元化社区中参与不足的步骤

自闭症患者也是有色人种或来自较低社会经济阶层的人在研究中历来代表性不足。自闭症研究缺乏代表性导致了健康和医疗保健的差异。缩小这些差异将需要与资源匮乏的社区相关的具有文化能力的研究,以及收集具有全国代表性的大型样本,或传统上被剥夺权利的群体代表性过高的样本。为了实现这些目标,多元化的具有文化能力的研究人员必须与社区合作并获得社区的信任,以识别和消除参与研究的障碍。我们建议将社区-学术伙伴关系作为一种有前途的方法,它可以在文化能力、尊重和共同决策的基础上进行高质量的研究。

更新日期:2021-09-16
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