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The importance of assessing parent stress in families with children with severe neuromotor and intellectual disability – a pilot study
Applied Neuropsychology: Child ( IF 1.7 ) Pub Date : 2021-09-07 , DOI: 10.1080/21622965.2021.1971525
Katia De Gaetano 1 , Donatella Saviola 1 , Domenica Brunetti 1 , Antonio De Tanti 1
Affiliation  

Abstract

Parent-related stress represents the level of dysfunction in the parent–child system related to the parents’ functioning. The aim of this retrospective pilot study was to assess the degree of stress perceived by mothers and fathers, in the framework of a family-centred approach to rehabilitation.

We considered 43 parents of 29 children with cerebral palsy, genetic disorders or brain injury admitted to a neurological rehabilitation center. Parenting stress was assessed with the Parenting Stress Index – Short Form (PSI-SF) self-report questionnaire and a semi-structured investigation of situational stress factors of the family. The cognitive and motor disability of the children were assessed with the Diagnostic and Statistical Manual of Mental Disorders 5(DSM-5) and the Gross Motor Function Classification System-(GMFCS), respectively.

The results showed that parental stress is directly correlated with the level of cognitive and behavioral disability and not with motor disability. No significant difference was found in the level of stress perceived by mothers and fathers. The effect of a worsening occupational situation seemed to influence the perception of stress more than a change in the formal relationship of the couple, but neither was statistically significant.



中文翻译:

评估有严重神经运动和智力残疾儿童家庭的父母压力的重要性——一项试点研究

摘要

父母相关压力代表了与父母功能相关的亲子系统功能障碍的程度。这项回顾性试点研究的目的是在以家庭为中心的康复方法的框架内评估父母对压力的感知程度。

我们考虑了入住神经康复中心的 29 名患有脑瘫、遗传疾病或脑损伤的儿童的 43 名父母。育儿压力通过育儿压力指数 - 简表 (PSI-SF)自我报告问卷和对家庭情境压力因素的半结构化调查进行评估。儿童的认知和运动障碍分别使用精神疾病诊断和统计手册 5 (DSM-5) 和粗大运动功能分类系统 - ( GMFCS) 进行评估。

结果表明,父母压力与认知和行为障碍的程度直接相关,与运动障碍无关。父母感受到的压力水平没有显着差异。职业状况恶化的影响似乎比夫妻正式关系的变化更能影响人们对压力的感知,但两者都没有统计学意义。

更新日期:2021-09-07
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