Brain Injury ( IF 1.9 ) Pub Date : 2021-09-06 , DOI: 10.1080/02699052.2021.1972338 Giovanna Girardi 1 , Maria Luisa Farnese 1 , Federico Scarponi 2 , Antonio De Tanti 3 , Michelangelo Bartolo 4 , Domenico Intiso 5 , Rita Formisano 6 , Gabriella Antonucci 1, 6
ABSTRACT
Objective
This study examines the perceived needs, experience, and satisfaction of informal caregivers (ICGs) in in-hospital settings, related to their involvement in the design and delivery of services together with hospital staff, namely co-production.
Design
To obtain a picture of current ICG–staff relationship, a multicenter observational study was carried out. Participants were 75 ICGs recruited in five dedicated in-patient neurorehabilitation wards. Participants answered a self-report questionnaire tapping perceived information/communication needs, emotional/social needs, and their satisfaction; family-centered practices implemented by the staff (namely involving practices and cooperative communication); and ICGs’ satisfaction with the service.
Results
Need satisfaction related positively to staff practices aimed at involving IGCs in treatment and training, but not in decision-making. Involving practices concerning treatment also related positively to ICGs’ information/communication needs. In addition, the more the staff involved ICGs in decision-making and promoted cooperative communication regarding treatment, the more ICGs felt that their collaboration in the healthcare process was valuable. Finally, all involvement practices and cooperative communication were positively related to ICGs’ overall satisfaction with the service.
Conclusion
The results of the study help to identify gaps in meeting ICGs’ needs and to promote strategies to implement family participation toward co-production in in-hospital settings.
中文翻译:
严重获得性脑损伤住院患者的非正式护理人员眼中以用户为中心的做法:需求、护理体验和满意度
摘要
客观的
本研究调查了住院环境中非正式护理人员 (ICG) 的感知需求、经验和满意度,这与他们与医院工作人员一起参与设计和提供服务有关,即共同生产。
设计
为了了解当前 ICG 与员工的关系,开展了一项多中心观察性研究。参与者是在五个专门的住院神经康复病房招募的 75 名 ICG。参与者回答了一份自我报告问卷,调查了感知到的信息/交流需求、情感/社交需求和他们的满意度;员工实施的以家庭为中心的实践(即涉及实践和合作交流);以及 ICG 对服务的满意度。
结果
需求满意度与旨在让 IGC 参与治疗和培训而非决策制定的员工实践积极相关。涉及治疗的实践也与 ICG 的信息/通信需求正相关。此外,工作人员越多地让 ICG 参与决策并促进治疗方面的合作沟通,就越多的 ICG 认为他们在医疗过程中的合作是有价值的。最后,所有参与实践和合作沟通都与 ICG 对服务的整体满意度呈正相关。
结论
研究结果有助于确定在满足 ICG 需求方面的差距,并促进在医院环境中实施家庭参与以实现共同生产的策略。