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Ethnic Differences in Informal Caregiving After Stroke
Stroke ( IF 8.3 ) Pub Date : 2021-08-30 , DOI: 10.1161/strokeaha.120.032740
Lewis B Morgenstern 1, 2 , Cecilia N Hollenhorst 1 , Linda C Gallo 3 , Chia-Wei Hsu 2 , Sehee Kim 4 , River Gibbs 2 , Erin Case 2 , Lynda D Lisabeth 1, 2
Affiliation  

Background and Purpose:Informal (unpaid) caregiving usually provided by family is important poststroke. We studied whether the prevalence of informal caregiving after stroke differs between Mexican Americans (MAs) and non-Hispanic Whites (NHWs).Methods:Between October 2014 and December 2018, participants in the BASIC (Brain Attack Surveillance in Corpus Christi) project in Nueces County, Texas, were interviewed 90 days after stroke to determine which activities of daily living they required help with and whether family provided informal caregiving. Ethnic differences between MAs and NHWs were determined by logistic regression. The logistic models were stratified by formal (paid) care status. Odds ratios (95% CIs) are reported with NHW as the referent group. Fisher exact tests were used to assess the association of ethnicity with relationship of caregiver and with individual activities of daily living.Results:Eight hundred thirty-one patients answered the caregiving questions. Of these, 242 (29%) received family caregiving (33% of MAs and 23% of NHWs), and 142 (17%) received paid caregiving (21% of MAs and 10% of NHWs). There were no ethnic differences in stroke severity. In logistic regression analyses, among those without formal, paid care, MAs were more likely to have informal caregiving (odds ratio, 1.75 [95% CI, 1.12–2.73]) adjusted for age, National Institutes of Health Stroke Scale, prestroke modified Rankin Scale, and insurance. No ethnic differences in informal care were found among those who had formal care. There were no differences between ethnic groups in which family members provided the informal care. MAs were more likely to require help compared with NHWs for walking (P<0.0001), bathing (P<0.0001), hygiene (P=0.0012), eating (P=0.0004), dressing (P<0.0001), ambulating (P=0.0304), and toileting (P=0.0003).Conclusions:MAs required more help poststroke than NHWs for assistance with activities of daily living. MAs received more help for activities of daily living through informal, unpaid caregiving than NHWs if they were not also receiving formal, paid care. Efforts to help minority and low-resource populations provide stroke care are needed.

中文翻译:

中风后非正式护理的种族差异

背景和目的:通常由家人提供的非正式(无偿)护理对中风后患者很重要。我们研究了墨西哥裔美国人 (MAs) 和非西班牙裔白人 (NHWs) 中风后非正式护理的流行率是否不同。方法:2014 年 10 月至 2018 年 12 月期间,Nueces 的 BASIC(Corpus Christi 大脑攻击监测)项目的参与者得克萨斯州县在中风后 90 天接受采访,以确定他们在哪些日常生活活动中需要帮助,以及家人是否提供非正式护理。MA 和 NHW 之间的种族差异通过逻辑回归确定。逻辑模型按正式(付费)护理状态分层。比值比 (95% CI) 以 NHW 作为参照组进行报告。Fisher 精确检验用于评估种族与照顾者关系以及个人日常生活活动的关联。结果:831 名患者回答了照顾问题。其中,242 人 (29%) 接受家庭护理(33% 的 MA 和 23% 的 NHW),142 人 (17%) 接受有偿护理(21% 的 MA 和 10% 的 NHW)。卒中严重程度没有种族差异。在逻辑回归分析中,在那些没有正式、有偿护理的人中,MA 更有可能接受非正式护理(比值比,1.75 [95% CI,1.12–2.73])根据年龄、美国国立卫生研究院卒中量表、卒中前改良 Rankin 进行调整规模,保险。在那些接受过正规照料的人中,没有发现非正式照料方面的种族差异。家庭成员提供非正式照料的族群之间没有差异。与 NHW 相比,MA 更可能需要步行帮助(P <0.0001)、洗澡(P <0.0001)、卫生(P =0.0012)、进食(P =0.0004)、穿衣(P <0.0001)、走动(P =0.0304)、如厕(P =0.0003)。 结论:与 NHWs 相比,MAs 在卒中后需要更多的帮助来帮助日常生活活动。如果 MAs 没有接受正式的有偿护理,则他们通过非正式的、无偿的护理比 NHWs 获得更多的日常生活活动帮助。需要努力帮助少数民族和资源匮乏的人群提供中风护理。
更新日期:2021-08-30
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