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Comprehensive approach to cardiac amyloidosis care: considerations in starting an amyloidosis program
Heart Failure Reviews ( IF 4.6 ) Pub Date : 2021-08-30 , DOI: 10.1007/s10741-021-10163-0
Brett W Sperry 1 , Julie A Khoury 2 , Shahzad Raza 3 , Julie L Rosenthal 4
Affiliation  

Amyloidosis is a multisystem disease which continues to present in later stages due to delayed diagnosis. Once the disease is identified, the coordination of ongoing care and treatment becomes complex and often involves multiple specialists. As knowledge of the disease grows, healthcare providers within institutions have organized to create comprehensive amyloidosis programs to better serve patients in the region. In this review, we present considerations in starting a cardiac amyloidosis program from two institutions that have recently started such programs. Identification of multidisciplinary stakeholders, development of overarching program goals, creation of institutional buy-in, and emphasis on program growth and development are tenets of a successful program. The creation and growth of an amyloidosis program has the potential to raise awareness for the disease and benefit patients and institutions alike.



中文翻译:

心脏淀粉样变性护理的综合方法:启动淀粉样变性计划的考虑因素

淀粉样变性是一种多系统疾病,由于延迟诊断而在后期继续出现。一旦确定了疾病,正在进行的护理和治疗的协调就变得复杂,并且通常涉及多个专家。随着对该疾病了解的增长,机构内的医疗保健提供者已经组织起来创建全面的淀粉样变性计划,以更好地为该地区的患者服务。在这篇综述中,我们提出了从最近开始此类计划的两家机构开始实施心脏淀粉样变性计划的考虑因素。确定多学科利益相关者、制定总体计划目标、建立机构支持以及强调计划的增长和发展是成功计划的原则。

更新日期:2021-08-30
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