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Experience of Autistic Children and Their Families During the Pandemic: From Distress to Coping Strategies.
Journal of Autism and Developmental Disorders ( IF 4.345 ) Pub Date : 2021-08-27 , DOI: 10.1007/s10803-021-05233-z
Claudine Jacques 1, 2 , Geneviève Saulnier 2, 3 , Agnès Éthier 1 , Isabelle Soulières 4, 5
Affiliation  

To understand the perspectives and needs of autistic children and their families in the context of an emergency, 109 parents and 56 autistic children (5.75-18 years) from Canada completed an online survey about needs, barriers and facilitators to coping with the pandemic. Parents' concerns about their child's development and difficulties managing their child's behaviors before and during pandemic were significantly associated. Parents identified maintaining social relationships and implementing appropriate interventions to their child's characteristics as facilitators during the pandemic. Both children and parents identified lack of socialization as a main difficulty. Among children, 92.9% associated electronic devices with their well-being. This study highlighted the need to consider the child's autistic characteristics and interests to implement emergency accommodations and services.

中文翻译:

大流行期间自闭症儿童及其家庭的经历:从苦恼到应对策略。

为了了解紧急情况下自闭症儿童及其家人的观点和需求,来自加拿大的 109 名家长和 56 名自闭症儿童(5.75-18 岁)完成了一项关于应对这一流行病的需求、障碍和促进因素的在线调查。父母对孩子发育的担忧以及在大流行之前和期间管理孩子行为的困难之间存在显着相关性。家长们认为,在大流行期间,维持社会关系并针对孩子的特征实施适当的干预措施是促进者。孩子和家长都认为缺乏社交是主要困难。在儿童中,92.9%的人将电子设备与他们的健康联系起来。这项研究强调需要考虑儿童的自闭症特征和兴趣来实施紧急住宿和服务。
更新日期:2021-08-27
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