In recent years, emphasis has been placed on conducting headache research that is patient-centered to more explicitly incorporate the input of people who live with headache diseases. The Growing Up with Migraine Study was developed with this intention using a two-step process: 1. develop and administer a survey to identify research areas that matter most to people with adolescent migraine and/or their caregivers and 2. use the survey results to guide future secondary data analyses. This brief report summarizes the survey results from 373 individuals impacted by adolescent migraine. Findings suggested that people with history of adolescent migraine and/or their caregivers are most interested in research about migraine comorbidities and effects on psychological/social/emotional health, along with health-related outcomes and family-related topics. Future quantitative studies are planned that will explore these patient-identified priorities through secondary data analysis of an existing dataset.

近年来，重点放在进行以患者为中心的头痛研究上，以更明确地纳入患有头痛疾病的人的意见。与偏头痛一起成长研究的开发目的是通过两步过程：1. 制定和管理一项调查，以确定对青少年偏头痛患者和/或其照顾者最重要的研究领域，以及 2. 使用调查结果来指导未来的二手数据分析。这份简短的报告总结了 373 名受青少年偏头痛影响的人的调查结果。研究结果表明，有青少年偏头痛病史的人和/或其照顾者对偏头痛合并症和对心理/社会/情绪健康的影响，以及健康相关结果和家庭相关主题的研究最感兴趣。