Introduction Achieving glycemic targets and optimizing quality of life (QoL) are important goals of type 1 diabetes care. Hypoglycemia is a common barrier to achieving targets and can be associated with significant distress. However, the impact of hypoglycemia on QoL is not fully understood. The aim of this study was to explore how adults with type 1 diabetes are impacted by hypoglycemia in areas of life that are important to their overall QoL. Research design and methods Participants responded to a web-based qualitative survey involving a novel ‘Wheel of Life’ activity. Responses were analyzed using reflexive thematic analysis. Results The final sample included 219 adults with type 1 diabetes from Denmark, Germany, the Netherlands, and the UK. They had a mean±SD age of 39±13 years and diabetes duration of 20±14 years. Participants identified eight areas of life important to their overall QoL, including relationships and social life, work and studies, leisure and physical activity, everyday life, sleep, sex life, physical health, and mental health. Participants reported emotional, behavioral, cognitive, and social impacts of hypoglycemia within domains. Across domains, participants described interruptions, limited participation in activities, exhaustion, fear of hypoglycemia, compensatory strategies to prevent hypoglycemia, and reduced spontaneity. Conclusions The findings emphasize the profound impact of hypoglycemia on QoL and diabetes self-care behaviors. Diabetes services should be aware of and address the burden of hypoglycemia to provide person-centered care. Clinicians could ask individuals how hypoglycemia affects important areas of their lives to better understand the personal impact and develop tailored management plans. Data are available on reasonable request via contact with the corresponding author (), provided that data are to be used for research projects related to health sciences. Data are deidentified participant data from a web-based qualitative survey.

中文翻译：

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“我再也不会无忧无虑了”：一项关于低血糖对 1 型糖尿病成人生活质量影响的定性研究

简介 实现血糖目标和优化生活质量 (QoL) 是 1 型糖尿病护理的重要目标。低血糖是实现目标的常见障碍，可能与严重的痛苦有关。然而，低血糖对 QoL 的影响尚不完全清楚。本研究的目的是探索 1 型糖尿病成人在对其整体 QoL 很重要的生活领域中如何受到低血糖的影响。研究设计和方法 参与者对一项基于网络的定性调查做出回应，该调查涉及一项新颖的“生命之轮”活动。使用反身主题分析来分析反应。结果最终样本包括来自丹麦、德国、荷兰和英国的 219 名 1 型糖尿病成人。他们的平均±SD年龄为39±13岁，糖尿病病程为20±14年。参与者确定了对其整体 QoL 很重要的八个生活领域，包括人际关系和社交生活、工作和学习、休闲和体育活动、日常生活、睡眠、性生活、身体健康和心理健康。参与者报告了领域内低血糖的情绪、行为、认知和社会影响。在各个领域，参与者描述了中断、活动参与受限、疲惫、对低血糖的恐惧、预防低血糖的补偿策略以及自发性降低。结论 研究结果强调了低血糖对 QoL 和糖尿病自我护理行为的深远影响。糖尿病服务应了解并解决低血糖的负担，以提供以人为本的护理。临床医生可以询问个人低血糖如何影响他们生活的重要领域，以更好地了解个人影响并制定量身定制的管理计划。数据可在合理要求下通过与通讯作者联系获得（)，前提是数据将用于与健康科学相关的研究项目。数据是来自基于网络的定性调查的去标识化参与者数据。