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Relational Aspects of Parent and Home Health Care Provider Care Practices for Children With Complex Care Needs Receiving Health Care Services in the Home: A Narrative Review
Academic Pediatrics ( IF 3.1 ) Pub Date : 2021-08-14 , DOI: 10.1016/j.acap.2021.08.009
Karen LeGrow 1 , Eyal Cohen 2 , Sherry Espin 1
Affiliation  

Children with medical complexity have ongoing health needs that may require dependence on medical technologies. While hospital admissions are an important focus of care delivery for these children, a majority of the time they are cared for in their own homes. Parents’ report feeling overwhelmed and stressed by the scope of their responsibilities, but they become sophisticated care providers and assume greater authority when providing their children's care at home. Communication, decision-making, and dealing with conflict with members of health care teams have been central concerns in parents’ reports of their home health care experiences. The objective is to review literature on relational aspects of parent and home health care provider care practices for children with medical complexity receiving home health care services. A narrative review was conducted. A search of MEDLINE, EMBASE, EBM Reviews, PsychINFO, ERIC, and CINAHL databases for English language studies published since database inception was carried out. Eligible studies focused on relational aspects of parent and home health care provider care practices for children with medical complexity receiving home health care services. Nine empirical studies were selected for this review. Literature describes parents’ and providers’ experiences managing a child with medical complexity in the home and the effects for the family and the parent-health care provider relationship. Parents want to be actively involved in all aspects of care that affects their child and ultimately their family. Further investigation is needed to better understand relational aspects of parent-home health care provider care practices to support child/family health and well-being in the home setting.



中文翻译:

父母和家庭医疗保健提供者对在家中接受医疗保健服务的有复杂护理需求的儿童的护理实践的关系方面:叙述性评论

患有医疗复杂性的儿童有持续的健康需求,可能需要依赖医疗技术。虽然住院是这些儿童提供护理的一个重要重点,但他们大部分时间都在自己的家中得到照顾。父母报告称,他们对自己的责任范围感到不知所措和压力,但他们成为了老练的护理提供者,并在为孩子提供家庭护理时承担了更大的权力。与医疗保健团队成员的沟通、决策制定和处理冲突一直是父母报告其家庭医疗保健经历的核心问题。目的是回顾有关接受家庭保健服务的医疗复杂儿童的父母和家庭保健提供者护理实践的关系方面的文献。进行了叙述性审查。在 MEDLINE、EMBASE、EBM 评论、PsychINFO、ERIC 和 CINAHL 数据库中搜索自数据库成立以来发表的英语语言研究。符合条件的研究侧重于父母和家庭保健提供者对接受家庭保健服务的医疗复杂儿童的护理实践的关系方面。本综述选择了九项实证研究。文献描述了父母和提供者在家中管理患有医疗复杂性的儿童的经验,以及对家庭和父母-医疗保健提供者关系的影响。父母希望积极参与影响孩子并最终影响家庭的所有方面的护理。

更新日期:2021-08-14
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