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The porridge-like framework: A multidimensional guidance to support parents of children with developmental disabilities
Research in Developmental Disabilities ( IF 3.000 ) Pub Date : 2021-08-07 , DOI: 10.1016/j.ridd.2021.104048
Livio Provenzi 1 , Serena Grumi 1 , Elisa Rinaldi 1 , Lorenzo Giusti 2
Affiliation  

Parents of children with developmental disabilities face many daily challenges that can lead to emotional and affective problems, difficulties in caregiving, and partial mental representations about themselves and their children. The multi-faceted nature of these parents’ needs requires a multi-component approach that should include the analysis of priority support goals and the planning of tailored therapeutic actions. Despite different types of validated interventions are available, the choice of the most appropriate strategy to pursue a family-centered approach to support parents of infants with developmental disabilities is not obvious. In this scenario, we propose a multi-dimensional model, the porridge-like framework of parenting. It considers three interrelated domains in parents' experience – affective (A), behavioral (B), and cognitive (C) aspects – that are intertwined with the specific degree of the child's impairment (D). This ABCD model may provide professionals with pragmatically valid guidance to plan and deliver family-centered healthcare interventions. By covering the multi-dimensional nature of parenting challenges, it provides clinicians with conceptual categories to recognize the specific needs and to choose the most suitable therapeutic action to address them. In addition, it aims to promote an ethical approach to family-centered rehabilitation for children with developmental disabilities, maximizing the potentials of a collaborative assessment approach.



中文翻译:

粥样框架:支持发育障碍儿童父母的多维指导

发育障碍儿童的父母面临许多日常挑战,这些挑战可能导致情绪和情感问题、照顾困难以及对自己和孩子的部分心理表征。这些父母需求的多面性需要多方面的方法,其中应包括对优先支持目标的分析和量身定制的治疗行动的规划。尽管有不同类型的有效干预措施可用,但选择最合适的策略来追求以家庭为中心的方法来支持发育障碍婴儿的父母并不明显。在这种情况下,我们提出了一个多维模型,即像粥一样的育儿框架。它考虑了父母体验中三个相互关联的领域——情感(A)、行为(B)、和认知 (C) 方面 – 与儿童的特定损伤程度 (D) 交织在一起。这种 ABCD 模型可以为专业人员提供务实有效的指导,以规划和提供以家庭为中心的医疗干预措施。通过涵盖育儿挑战的多维性质,它为临床医生提供了概念类别,以识别特定需求并选择最合适的治疗措施来解决这些需求。此外,它还旨在促进以家庭为中心的发育障碍儿童康复的伦理方法,最大限度地发挥协作评估方法的潜力。这种 ABCD 模型可以为专业人员提供务实有效的指导,以规划和提供以家庭为中心的医疗干预措施。通过涵盖育儿挑战的多维性质,它为临床医生提供了概念类别,以识别特定需求并选择最合适的治疗措施来解决这些需求。此外,它还旨在促进以家庭为中心的发育障碍儿童康复的伦理方法,最大限度地发挥协作评估方法的潜力。这种 ABCD 模型可以为专业人员提供务实有效的指导,以规划和提供以家庭为中心的医疗干预措施。通过涵盖育儿挑战的多维性质,它为临床医生提供了概念类别,以识别特定需求并选择最合适的治疗措施来解决这些需求。此外,它还旨在促进以家庭为中心的发育障碍儿童康复的伦理方法,最大限度地发挥协作评估方法的潜力。

更新日期:2021-08-09
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