ABSTRACT

Aim

The Rett Syndrome Gross Motor Scale (RSGMS) is an observational measurement, assessing gross motor skills in individuals with Rett syndrome. A Dutch version is lacking. The current study aims to translate and cross-culturally adapt the original RSMGS to Dutch and assess its inter-rater and intra-rater reliability.

Design

Translation and cross-cultural adaptation were performed in concordance with internationally accepted guidelines. A pretest was performed, and expert validation was assured. Video data of three girls with Rett syndrome was independently assessed by 27 physiotherapists via an online webinar to measure inter-rater reliability. Additionally, videos of 17 individuals with Rett syndrome were scored twice by two raters to assess intra-rater reliability. The reliability of the total score, the three subscale scores and the new items were analyzed using Intraclass Correlation Coefficients (ICC).

Results

Good comprehensibility and expert validation of the RSMGS-NL was achieved, and four items were added to the original scale. Inter-rater reliability for the total score was excellent (ICC 0.97, 95% CI 0.89–0.99), and good to perfect inter-rater reliability for the three subscales; Sitting, Standing & walking and Challenge was found (ICC values 1.0 (95% CI 0), 0.98 (95% CI 0.91–0.99) and 0.82 (95% CI 0.93–0.99) respectively). The intra-rater reliability was excellent for the total test score (ICC 0.98, 95% CI 0.97–0.99) and good to excellent for the subscale scores (ICC values 0.87 (95% CI 0.75–0.94), 0.99 (95% CI 0.98–1.0) and 0.97 (95% CI 0.95–0.99) respectively). The four new items (Standing to sitting, walking down a slope, ascending the stairs, descending the stairs) showed good to excellent intra-rater reliability.

Conclusion

The RSGMS-NL is a reliable measure of gross motor skills in Dutch individuals with Rett syndrome.

中文翻译：

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Rett 综合征粗大运动量表 - 荷兰版 (RSGMS-NL) 可以可靠地评估荷兰 Rett 综合征患者的粗大运动技能

摘要

目标

Rett 综合征粗大运动量表 (RSGMS) 是一种观察性测量方法，用于评估 Rett 综合征患者的粗大运动技能。缺少荷兰语版本。目前的研究旨在将原始 RSMGS 翻译和跨文化改编为荷兰语，并评估其评估者间和评估者内部的可靠性。

设计

翻译和跨文化适应是按照国际公认的指导方针进行的。进行了预测试，并确保了专家验证。27 名物理治疗师通过在线网络研讨会独立评估了三名患有 Rett 综合征的女孩的视频数据，以衡量评估者间的可靠性。此外，两名评估者对 17 名 Rett 综合征患者的视频进行了两次评分，以评估评估者内部的可靠性。使用类内相关系数（ICC）分析总分、三个分量表分数和新项目的可靠性。

结果

RSMGS-NL 实现了良好的可理解性和专家验证，并在原始量表中增加了四个项目。总分的评分者间信度非常好（ICC 0.97, 95% CI 0.89–0.99），三个分量表的评分者间信度良好至完美；发现了坐姿、站立和行走以及挑战（ICC 值分别为 1.0（95% CI 0）、0.98（95% CI 0.91–0.99）和 0.82（95% CI 0.93–0.99））。评估者内信度在总测试得分方面非常出色（ICC 0.98, 95% CI 0.97–0.99），在分量表得分方面从好到极好（ICC 值 0.87（95% CI 0.75–0.94）、0.99（95% CI 0.98） –1.0) 和 0.97 (95% CI 0.95–0.99)。四个新项目（站立到坐下、下坡、上楼梯、下楼梯）表现出良好至极好的评估者内信度。

结论

RSGMS-NL 是衡量荷兰 Rett 综合征患者粗大运动技能的可靠指标。