Background

Research practices in IDD need to align current values towards people with IDD, the current understanding of IDD, and best practices regarding change strategies and valued outcomes.

Aims

To describe the components to—and application of—a person-centered outcome evaluation model that meets the above criteria.

Methods and procedures

A person-centered evaluation logic model is used to identify and describe a conceptual framework (input), a change strategy (throughput), personal outcomes (outcome), and meaningful impacts (output).

Outcomes and results

Specific person-centered outcomes and exemplary outcome indicators are presented for two outcome evaluation frameworks: human functioning dimensions, and the four theoretical perspectives on IDD: biomedical, psychoeducational, sociocultural, and justice.

Conclusions and implications

A person-centered approach to outcome evaluation enhances research practices in IDD by identifying and assessing valued personal outcomes that align current values, understanding, and best practices; increases transparency; facilitates accountability; and expands understanding.

中文翻译：

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通过以人为中心的结果评估加强智力和发育障碍的研究实践

背景

IDD 的研究实践需要将当前的价值观与 IDD 患者、当前对 IDD 的理解以及关于变革策略和重要成果的最佳实践保持一致。

宗旨

描述满足上述标准的以人为中心的结果评估模型的组成部分和应用。

方法和程序

以人为中心的评估逻辑模型用于识别和描述概念框架（输入）、变革策略（吞吐量）、个人成果（结果）和有意义的影响（输出）。

结果和结果

针对两个结果评估框架提出了具体的以人为中心的结果和示范结果指标：人类功能维度和 IDD 的四个理论视角：生物医学、心理教育、社会文化和正义。

结论和影响

以人为中心的结果评估方法通过识别和评估与当前价值观、理解和最佳实践相一致的有价值的个人成果来增强 IDD 的研究实践；增加透明度；促进问责制；并扩大理解。