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Cognitive mapping as an approach to facilitate organ donation among African Americans
Science Progress ( IF 2.1 ) Pub Date : 2021-07-14 , DOI: 10.1177/00368504211029442
Jayme E Locke 1 , Rhiannon D Reed 2 , Richard M Shewchuk 3 , Katherine L Stegner 2 , Haiyan Qu 3
Affiliation  

Making up 13.4% of the United States population, African Americans (AAs) account for 28.7% of candidates who are currently waiting for an organ donation. AAs are disproportionately affected by end-organ disease, particularly kidney disease, therefore, the need for transplantation among this population is high, and the high need is also observed for other solid organ transplantation. To this end, we worked with the AA community to derive an empirical framework of organ donation strategies that may facilitate AA decision-making. We used a cognitive mapping approach involving two distinct phases of primary data collection and a sequence of data analytic procedures to elicit and systematically organize strategies for facilitating organ donation. AA adults (n = 89) sorted 27 strategies identified from nominal group technique meetings in phase 1 based on their perceived similarities. Sorting data were aggregated and analyzed using Multidimensional scaling and hierarchical cluster analyses. Among 89 AA participants, 68.2% were female, 65.5% obtained > high school education, 69.5% reported annual household income ≤ $50,000. The average age was 47.4 years (SD = 14.5). Derived empirical framework consisted of five distinct clusters: fundamental knowledge, psychosocial support, community awareness, community engagement, and system accountability; and two dimensions: Approach, Donor-related Information. The derived empirical framework reflects an organization scheme that may facilitate AA decision-making about organ donation and suggests that targeted dissemination of donor-related information at both the individual-donor and community levels may be critical for increasing donation rates among AAs.



中文翻译:

认知图谱作为促进非裔美国人器官捐赠的一种方法

非裔美国人 (AA) 占美国人口的 13.4%,目前等待器官捐赠的候选人中占 28.7%。AA 受终末器官疾病,特别是肾脏疾病的影响尤为严重,因此,该人群对移植的需求很高,对其他实体器官移植的需求也很高。为此,我们与 AA 社区合作,得出了一个器官捐献策略的实证框架,以促进 AA 决策。我们使用认知绘图方法,涉及主要数据收集的两个不同阶段和一系列数据分析程序,以引出并系统地组织促进器官捐赠的策略。AA 成人 ( n  = 89) 根据感知到的相似性对第一阶段名义小组技术会议中确定的 27 种策略进行了排序。使用多维尺度和层次聚类分析来聚合和分析排序数据。在 89 名 AA 参与者中,68.2% 为女性,65.5% 受过高中以上教育,69.5% 的家庭年收入≤ 50,000 美元。平均年龄为 47.4 岁 (SD = 14.5)。衍生的实证框架由五个不同的集群组成:基础知识、社会心理支持、社区意识、社区参与和系统问责制;两个维度:方法、捐助者相关信息。得出的实证框架反映了一种组织计划,可以促进 AA 关于器官捐赠的决策,并表明在个人捐赠者和社区层面有针对性地传播捐赠者相关信息可能对于提高 AA 的捐赠率至关重要。

更新日期:2021-07-15
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