The inclusion of patients as partners in research is a key link in the delivery of patient-centred care in healthcare systems. Despite genuine intentions to engage patients in authentic partnerships, efforts can result in tokenism and benefits of engagement are missed. Understanding how patient engagement provides value along the research to patient-care continuum and how to best engage patients as partners are key. This document describes the method taken by the Canadian Cancer Trials Group (CCTG) to implement meaningful patient centricity and engagement and the benefits realized. Originally, Patient Representatives were recruited and assigned to CCTG Committees. Lacking guidance, the role was one of a passive meeting attendee. A gap analysis identified a need for clarity in expectations, understanding of the linkage to CCTG strategic objectives, and supporting tools and training. A plan was developed and successfully implemented in three phases, each phase building on the previous, the level of patient engagement simultaneously changing from "Inform" to "Involve" to "Collaborate" on the International Association for Public Participation (IAP2) scale. Results include significant contributions to increased patient accrual in CCTG trials, to increased CCTG grant funding, as well as recognition and adoption of these practices within Canada and internationally.

中文翻译：

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将以患者为中心的研究纳入加拿大癌症试验组

将患者纳入研究合作伙伴是在医疗保健系统中提供以患者为中心的护理的关键环节。尽管真诚地打算让患者参与真正的合作伙伴关系，但努力可能会导致象征主义和错过参与的好处。了解患者参与如何为患者护理连续性研究提供价值，以及如何最好地让患者成为合作伙伴是关键。本文件描述了加拿大癌症试验组 (CCTG) 为实施有意义的以患者为中心和参与所采取的方法以及实现的收益。最初，患者代表被招募并分配到 CCTG 委员会。由于缺乏指导，该角色是被动的会议参与者之一。差距分析确定需要明确预期，理解与 CCTG 战略目标的联系，以及支持工具和培训。一个计划分三个阶段制定并成功实施，每个阶段都建立在前一个阶段，患者参与的水平同时在国际公众参与协会 (IAP2) 范围内从“告知”到“参与”再到“合作”。结果包括对增加 CCTG 试验中的患者人数、增加 CCTG 赠款资金以及在加拿大和国际上认可和采用这些做法做出了重大贡献。国际公众参与协会 (IAP2) 量表。结果包括对增加 CCTG 试验中的患者人数、增加 CCTG 赠款资金以及在加拿大和国际上认可和采用这些做法做出了重大贡献。国际公众参与协会 (IAP2) 量表。结果包括对增加 CCTG 试验中的患者人数、增加 CCTG 赠款资金以及在加拿大和国际上认可和采用这些做法做出了重大贡献。